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New to this pancreatic journey


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Hello

I was diagnosed with locally advanced pancreatic cancer last June 2020. I have had 6 rounds of Folfirinox, which I have tolerated well and feel extremely well at the moment. I am starting five weeks of radiotherapy and chemo by pump next week. Unfortunately the tumour is still unresectable but I am hoping the tumour will shrink more so that I can have surgery.

Feeling a bit anxious about the next stage, just wondering if anyone else can give any advice/tips? Trying to keep upbeat.

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Barbie it's great you have managed the Firenfox chemo.


Has your consultant suggested that dr /dietician supplies telephone advice and a supply of protein shakes ?

We had a box delivered to our door of 24 bottles.(like milk shakes) It helped get the proteins in my bro when he didn't feel like a meal.

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Hello Skippy


Thanks for your reply. Yes I have been fortunate with the advice and help and I did have the smoothies on the days when my appetite wasn't so good, but I then had the juices which I prefer.

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Hi Barbie. My father was diagnosed just like you in June 2020. Had 12 rounds of Folfirinox, this week he starts radiotherapy. The oncologist said there is good chance that the tumour disappear with radiation. Have you experienced weight loss, this is my Dad's major problem in all other respects he is feeling quute well. Best, Vasil.

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Hi Vasil


Thanks for your reply.

Yes I have suffered weight loss especially during the poorly days after chemo but going back up now. Pleased your Dad is well and it sounds very positive, Thank you.

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Hi Barbie and thanks for your reply. Same with my Dad he had bad days when having chemo but now that chemo is over he's been able to put back some weight. He has appetite and I buy protein drinks for him. Are you going to have chemoradiation? My father has pure radiation with no chemo. A machine rotates above him and emits some rays (i think so). Started yesterday.

I hope this treatment will work for you and the tumour will shrink enough to make surgery possible.

With kindest wishes, Vasil

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