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Terms of Use for our Forum

Support Team

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The forums have been set up for people affected by pancreatic cancer to offer and receive support.

The forums have been designed to primarily:

• Provide practical and emotional support to users;

• Enable individuals to share real life experiences with groups of people who understand and are going through similar experiences themselves; and

• Provide mutual support to other people using the forums.

We have produced these Terms of Use to ensure that forum users act appropriately and lawfully so as to ensure that each of the forums are friendly and welcoming and are a supportive space for people affected by pancreatic cancer.

Terms of Use – General

By signing up to be a part of this forum community, you agree to respect and follow these Terms of Use (including any amended versions of the Terms of Use as amended by Pancreatic Cancer UK).

If you do not comply with these Terms of Use Pancreatic Cancer UK (or “we”) reserve the right to [immediately] close your account and thereby withdraw your access to posting on the forums. Of course, we hope that will not be necessary.

Please note that the information contained in the forums is shared by users in a supportive manner only and that anyone using the Pancreatic Cancer UK forums does so at their own risk.

The information posted or contained in the forums are not intended to constitute medical or other professional advice and it should not be used to replace or supplement advice given by health or other relevant professionals. Pancreatic Cancer UK cannot be held responsible for the contents of any material posted on the forums and you are strongly advised to consult a doctor or other health professional(s) if you have any concerns or queries.

By using the forums you understand and accept that you may be exposed to inappropriate and/or inaccurate material and agree that you will not seek to hold Pancreatic Cancer UK liable for any loss, harm or damage you suffer as a result of your use of the forums. You agree that you will not bring any legal or other claim of whatsoever nature against us arising out of or in relation to your or a third party's use of the forums.

By using the forums you also recognise and agree that the messages posted on them do not necessarily reflect the views of Pancreatic Cancer UK or any other person or entity associated with us and we do not accept any responsibility for the contents of the posts and are not responsible for the accuracy, completeness or validity of any information posted in them.

Please see the additional disclaimers in the Disclaimers section below.

1. Registering with the forums

The forums are public. Please therefore remember that anyone can view the forums without registering and your posts may appear in internet searches and could be seen by anyone browsing the World Wide Web.

All messages are indexed by search engines such as Google. This ensures that the site continues to attract new users and the forums remain fresh, but please bear this in mind before you give any details about your diagnosis, treatment, where you live or any other personal information.

To post messages on the Pancreatic Cancer UK forums you must be over 18 and registered as a “member”. By registering with us you agree to abide by these terms and conditions.

To register on the forums you will need to choose a unique 'user name' and must provide one unique and valid 'email address' to us.

For your own safety you are not permitted to use your real full name or your email address as your username. Users are only allowed one user name and must provide us with a current live email address.

If you wish to change your user name or email address you must first inform us by emailing discussionboard@pancreaticcancer.org.uk. We will close your old account before you can re-register.

Pancreatic Cancer UK may delete all accounts held by individual users found to have more than one user name or an invalid email address. Pancreatic Cancer UK, at its own discretion, may close an existing forum account from any specific email service or internet service provider.

2. Interaction with other forum users

When posting on the forums you must make your points politely, respectfully and lawfully.

Many people using the forums are going through difficult times. A few kind words can go a long way. We encourage you to welcome new forum posters – it can be very nerve-wracking to post on the forum for the first time.

Give each other the benefit of the doubt: it can be easy to misinterpret other people’s comments, especially when read or written in haste.

A wide range of people with different experiences may use the forums. Differences, debate and an exchange of ideas are welcome, but these forums are no place for any personal attacks and will not be tolerated. You must be respectful of other people’s opinions. Also be prepared for people to disagree with you and try not to take it as a personal attack if they do.

We will not tolerate content that discriminates anyone because their sex, sexual orientation, race, colour, nationality, ethnic or national origin, religion or philosophical belief, disability, gender identity/reassignment, marital status, family circumstance or age or that treats anyone unfairly.

As a user of the forums you are not permitted to post any material, or links to any material, which is knowingly false, defamatory, libellous, inaccurate, abusive, extremist, hateful, harassing, pornographic, obscene, profane, sexually orientated, offensive, racist, homophobic, ageist, threatening, invasive of a person's privacy, or otherwise in violation of any law.

You are not permitted to swear or use terms that people could find offensive.

Any content that violates these terms will be removed.

3. Your identity and safety

You are not permitted to post your contact details (or links to any personal websites) on the forums. If it comes to our attention that any users have posted this information we will remove the details from the forums.

You are not permitted to pretend to be someone else when posting on the forums and nor can you share or post anyone else’s personal information or contact details of any kind on the forums.

We hope you will make friends on the forums. If you get on with someone online we recognise that you may want to meet up in person. If you do wish to meet someone then we strongly recommend that you think carefully about your safety and make appropriate arrangements to safeguard your safety before doing so (for example, you should consider meeting in a public place and letting others know when and where you are meeting. You may wish to take someone with you).

Unfortunately some people may use the forums to provoke a reaction. As such, from time to time you may come across unconstructive or unsupportive comments. If you come across any such posts please report them to us (details of how to report any posts to us are set out below), and then do your best to ignore it.

All sorts of personalities use message boards. If you start to feel uncomfortable or upset for any reason at all, remember you can always report any posts to us and/ or just turn off the computer and walk away.

4. Identity of others

You are not permitted to disclose the identity of any other users of the forum or any healthcare or other professionals in your posts by their name or to post any information which might reasonably enable other users to identify them. Any references to other forum users must be with reference to their user names only.

Any 'naming and shaming' of individuals or organisations, or the posting of any other potentially defamatory content, will not be tolerated. Publishing statements which does or could damage others’ reputations could leave both the forum users who posted the statement(s), and Pancreatic Cancer UK, vulnerable to legal action under libel law.

Any such posts will be removed and we reserve the right to remove them without notifying you.

5. Copyright and Intellectual property

You are only permitted to post your own content on the forum and you cannot use the forums to post any copyright material or other intellectual property without the express permission of the copyright, including any poems, stories, photos, reports or any other form of content that has not been created by you, unless you have the express permission of the copyright or intellectual property holder.

As a forum user you agree to indemnify Pancreatic Cancer UK for all losses it suffers as a result of you posting any copyright or other intellectual property that does not belong to you.

6. Content of your posts

Sharing experiences is what lies at the heart of the forums.

However, Pancreatic Cancer UK does not censor or edit posts before they ‘go live’ on the forums. Whilst we encourage people to share their views on the forums, not everything people post will be accurate and we do not and cannot verify the voracity of the contents of posts.

The giving of medical advice is not permitted. You are not permitted to post on the forums any specific health or medical information other than that of which you have personal experience and only then provided you post authorities for that information in the same post. We reserve the right to remove any such content without notifying you.

You are not permitted to advertise your or a third party’s services or use the forums to try to sell any items of any kind to other forum users. Such posts may be removed and your account may be closed. Advertisements, endorsements of particular products or treatments, chain letters, pyramid schemes, and solicitations are inappropriate and are also not permitted.

Pancreatic Cancer UK cannot be held responsible for the contents of any material posted on the forums. You agree that you are solely responsible for the content of your messages and that you will indemnify and hold harmless Pancreatic Cancer UK with respect to any claim arising as a result of your posts.

You accept and understand that you may be exposed to inappropriate and/or inaccurate material and will not seek to hold Pancreatic Cancer UK liable for any consequence or result occurring pursuant to use of the forums, nor will you bring any legal or other claim of whatsoever nature arising out of in relation to your or a third party's use of the forums.

Users may edit their posts at any time subject to these terms and conditions.

6. Alternative therapies

It is sometimes very difficult to prove the efficacy of an alternative therapy.

Please keep in mind that the majority of alternative therapies are not approved by the medical authorities (i.e. they are not officially registered drugs or treatments).

As such, whilst you can be honest about your experience of any alternative therapies do not exaggerate the benefit of any such therapies. If you believe you have reliable references, then you are permitted to provide links to these sources of information for others to access.

Pancreatic Cancer UK does not officially endorse any alternative therapies and any content in relation to these on the forum is not to be taken to represent Pancreatic Cancer UK’s view on the therapies or to be seen as an endorsement of them.

7. Links to other information or websites

Pancreatic Cancer UK does not generally link to any third party site other than recognised registered charities or relevant partners, and we do not endorse any other websites.

Where any post contains links to other websites or information Pancreatic Cancer UK is not responsible for the information contained within those links or for any consequences of you following them.

We recommend that you always consult a medical professional if you have any queries or concerns.

8. Notify us about posts

We do not approve or censor posts before they “go live” and appear on the forums.

We therefore require forum users to take responsibility for their own postings, and to report to us any posts that are inappropriate or that violate these Terms of Use.

Please report it to us by sending us an email to nurse@pancreaticcancer.org.uk.

Alternatively you can use the ‘Report this post button’ which looks like this “!” and appears at the top of each post.

If you report a post to us we will endeavour to respond to you within 1-3 [working] days (though it may be sooner). If you report a post, we will usually let you know what action we have taken in relation to it.

9. Action Pancreatic Cancer UK may take

On receiving a notification we will review the relevant post(s) and determine whether we believe it violates these Terms of Use.

If we believe that the post does violate these Terms of Use we may do one or more of the following:-

• Remove the post(s) in its entirety;

• Edit the post;

• Close the relevant thread: for example, if a discussion “breaks down” into an exchange of “attacks” and/or insults, or we view that it has become too heated, we may close a thread to end the discussion and encourage people to move on;

• Place the relevant user(s) in moderation (so all posts must be approved before going live)

• Withdraw / ban the relevant user or users’ access to posting on the forums;

• Contact you by email to issue a warning or to make suggestions.

We will endeavour to try to contact the user who posted the post to explain our reasons for taking any of the action above.

We reserve the right to, at our own discretion, immediately take any of the action above in relation to any post(s) for any reason whatsoever (whether or not we have been notified of a post by a user) without prior contact with the author of the post.

10) Your Feedback

We welcome your feedback about how you think the forums are working. Please email any feedback to us to nurse@pancreaticcancer.org.uk.

We would also encourage you to complete our feedback survey, which is available at https://www.surveymonkey.co.uk/r/KY5GZYR. You can complete this at any time.

Your feedback will help us to ensure that our discussion forum is working in the best way it can and is meeting your needs.

11) Miscellaneous

"Pancreatic Cancer UK" includes its connected companies, trustees, officers, employees and all those employed or otherwise engaged by it and/or them.

Unless expressly otherwise stated no trustee, officer, employee or other person connected with Pancreatic Cancer UK is medically trained or qualified.

Pancreatic Cancer UK reserves the right to suspend a user's account following any formal complaint or threatened legal action until resolution is achieved, and to edit or delete any messages for any reason, at Pancreatic Cancer UK's sole discretion. You agree that you are solely responsible for the content of your messages and that you will indemnify and hold harmless Pancreatic Cancer UK with respect to any claim based upon the appearance and/or transmissions of your messages.

In the event of any complaint about inappropriate use or posts or in case of actual or threatened legal action arising from any message posted by you, Pancreatic Cancer UK reserves the right to reveal your identity to appropriate authorities or bodies (including, but not limited to, the police and other legal authorities, government bodies, ISPs, and the Charity Commission) and any other information we may know about you to comply with due process.

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