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by yorkypaul
Sun Dec 09, 2012 5:52 pm
Forum: Advanced pancreatic cancer
Topic: No bed available at hospital for gastric bypass!!!
Replies: 204
Views: 101758

Re: No bed available at hospital for gastric bypass!!!

Am a bit concerned that folks refer to creon capsules being big. Andrea's are tiny! Wonder if we have the right ones?
by yorkypaul
Fri Dec 07, 2012 11:11 am
Forum: Advanced pancreatic cancer
Topic: First post
Replies: 3
Views: 4418

Re: First post

Hi. What you describe will be familiar to many users of this site. Please feel free to use the forum to write about how you feel - it can be therapeutic to write things down when you are in such turmoil. Also, you can be sure that most users of the forum know EXACTLY what you are going through - sim...
by yorkypaul
Fri Dec 07, 2012 8:22 am
Forum: Advanced pancreatic cancer
Topic: No bed available at hospital for gastric bypass!!!
Replies: 204
Views: 101758

Re: No bed available at hospital for gastric bypass!!!

After getting some really useful information via Jeni on the PCUK support team, I was able to press the GP for Creon for Andrea. Hopefully we should collect it today from the pharmacy. The GP appeared to have no knowledge about the need for the use of enzymes and, even after reading (hopefully) the ...
by yorkypaul
Tue Dec 04, 2012 4:24 pm
Forum: Advanced pancreatic cancer
Topic: No bed available at hospital for gastric bypass!!!
Replies: 204
Views: 101758

Re: No bed available at hospital for gastric bypass!!!

Thanks Jeni. That would be great.GP doesn't even seem to know what Creon is!
by yorkypaul
Sat Dec 01, 2012 12:32 am
Forum: Advanced pancreatic cancer
Topic: No bed available at hospital for gastric bypass!!!
Replies: 204
Views: 101758

Re: No bed available at hospital for gastric bypass!!!

Today they have found the sample at the surgery!! It will now be next week when we get the results. Palliative care consultant awaiting results to determine if we will go ahead with Creon. Yet another delay. At least there is some movement now though. Can't wait to be up there again tomorrow. Feel s...
by yorkypaul
Thu Nov 29, 2012 10:38 pm
Forum: Patient Experience Forum
Topic: Joint pain?
Replies: 20
Views: 16815

Re: Joint pain?

That's brilliant news Sue!! Sleep well.
by yorkypaul
Thu Nov 29, 2012 6:19 pm
Forum: Advanced pancreatic cancer
Topic: No bed available at hospital for gastric bypass!!!
Replies: 204
Views: 101758

Re: No bed available at hospital for gastric bypass!!!

I am lost for words. The GP surgery is unbelieveable. A stool sample was requested following a GP visit (not the regular GP, she seems to do everything she can now to avoid any contact). It was suggested that there might be an infection causing the frequent bowel movements. A sample was taken to the...
by yorkypaul
Mon Nov 26, 2012 10:50 pm
Forum: Advanced pancreatic cancer
Topic: No bed available at hospital for gastric bypass!!!
Replies: 204
Views: 101758

Re: No bed available at hospital for gastric bypass!!!

A bumpy ride this week. On Friday, Andrea was sick in the morning - first time in 6 days. I should have smelt a rat. In the afternoon she was in real pain (scale of 1 to ten? I asked. 7 she replied.) DN's asked GP to write up meds for the weekend - stronger doses of morphione etc. Request was left o...
by yorkypaul
Sun Nov 25, 2012 10:03 am
Forum: Advanced pancreatic cancer
Topic: Dad still holding on.
Replies: 6
Views: 6038

Re: Dad still holding on.

Hi Lulu.I'm sorry that you feel that your GP is not being very helpful. I have come across this (and incompetence!) many times during this horrible journey. For example, the district nurses wanted meds - especially increased morphine dose - writing up by the GP for the weekend as my wife was getting...
by yorkypaul
Sun Nov 25, 2012 9:37 am
Forum: Advanced pancreatic cancer
Topic: The longest days but there gone so fast
Replies: 23
Views: 15634

Re: The longest days but there gone so fast

Dear Jools, I am so sorry to read that your dear Bill has passed away. Thank you so much for all the support you have given us all on this forum through your strength and courage throughout this awful journey. I will be thinking of both you and Bill. Please continue to look to your forum friends for...
by yorkypaul
Thu Nov 22, 2012 4:40 pm
Forum: Advanced pancreatic cancer
Topic: No bed available at hospital for gastric bypass!!!
Replies: 204
Views: 101758

Re: No bed available at hospital for gastric bypass!!!

Thanks everyone for your good wishes. 2nd day at home now. Pain and sickness still under control but she is so very, very weak. Needs help with getting up and down, out of bath etc etc. Mood is up and down. Feels a bit "odd" today like when blood pressure was too low at one point in hospital. Sleepi...
by yorkypaul
Thu Nov 22, 2012 4:29 pm
Forum: Advanced pancreatic cancer
Topic: The longest days but there gone so fast
Replies: 23
Views: 15634

Re: The longest days but there gone so fast

Jools, Ella is right, Bill knows you are there. So sad for you at how exhausted you must be, but glad to see the word "peaceful" in your description of Bill.
Thinking of you and Bill many times a day. Big hug
Paul x
by yorkypaul
Tue Nov 20, 2012 9:20 am
Forum: Advanced pancreatic cancer
Topic: No bed available at hospital for gastric bypass!!!
Replies: 204
Views: 101758

Re: No bed available at hospital for gastric bypass!!!

Thanks guys. The hospital seem to have got the sickness under control at last (I hope it lasts). They are sending her back home today complete with the portable syringe driver that belongs to the community nurses that she went in with. She was very tired and so very low in mood yesterday. It may hav...
by yorkypaul
Tue Nov 20, 2012 9:11 am
Forum: Advanced pancreatic cancer
Topic: Where now ?
Replies: 24
Views: 15865

Re: Where now ?

Hi Diane. Have been thinking about you and Alan during the night. I really hope there is more comfort for him and a little better news for you both today. Keep talking to your forum friends, for we understand totally what you are going through.
Love and hugs,
Paul x
by yorkypaul
Tue Nov 20, 2012 9:08 am
Forum: Advanced pancreatic cancer
Topic: Another 'newbie'
Replies: 35
Views: 21877

Re: Another 'newbie'

Hi Lulu. How are things today? This stealthy vile disease keeps us on our toes as it messes with our loved ones. You never know what is coming next. Make the most of every minute. Just being there for him will be a great help. I sometimes just sit while my wife sleeps, but she knows I am there and I...

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