Search found 34 matches

by Borobi
Wed Oct 14, 2020 4:22 am
Forum: Advanced pancreatic cancer
Topic: Successful Surgery in Heidelberg Germany - Inoperable in UK
Replies: 32
Views: 70318

Re: Successful Surgery in Heidelberg Germany - Inoperable in UK

Hi Lucyjev

If you go back to the original post and click on AmadaJ’s username it’ll bring up a list of all her posts.

If you read them you’ll see that her husband sadly died a few years ago.
by Borobi
Fri Oct 09, 2020 9:05 pm
Forum: General chat
Topic: Beyond scared
Replies: 6
Views: 4748

Re: Beyond scared

It’s difficult to reassure you until you’ve got the results of your MRI, but I think if they thought it was cancer they’d refer you straight away to a consultant.
by Borobi
Tue Sep 01, 2020 11:46 am
Forum: General chat
Topic: Advice from survivors?? I need to save my dad’s life 🙏
Replies: 6
Views: 3581

Re: Advice from survivors?? I need to save my dad’s life 🙏

We all need hope. But beware of stories in the media. If you google the man in the story you’ll see that he died in 2013. Travelling to Germany isn’t a magic cure. There are success stories from there, but also from people who had their Whipple in the UK. Make every day count. Sometimes not having m...
by Borobi
Mon Aug 31, 2020 9:51 pm
Forum: General chat
Topic: Advice from survivors?? I need to save my dad’s life 🙏
Replies: 6
Views: 3581

Re: Advice from survivors?? I need to save my dad’s life 🙏

My understanding is that without a biopsy they can’t even be sure that it’s cancer - scans aren’t that specific. The first consultant appt we were told that there was a growth and they would treat it as if it was cancer unless it was confirmed not to be. We were told it wasn’t operable at the appoin...
by Borobi
Mon Aug 31, 2020 1:26 pm
Forum: General chat
Topic: Advice from survivors?? I need to save my dad’s life 🙏
Replies: 6
Views: 3581

Re: Advice from survivors?? I need to save my dad’s life 🙏

Welcome to the forum that no one wants to be a member of. Hope things turn out OK for your dad. I’m not sure how effective diet is with cancer TBH. My sister had breast cancer and did all the vegan diet plus other alternative therapies stuff. (Not mistletoe injections though). Didn’t help her. But i...
by Borobi
Thu Aug 13, 2020 2:24 pm
Forum: Family, friends and carers
Topic: Coping with the mental health aspects of all this.
Replies: 9
Views: 3533

Coping with the mental health aspects of all this.

Hi all. I’m really struggling with the mental health side of living with someone with incurable cancer. My partner was diagnosed 18 months ago - his tumour was picked up early. But that doesn’t help much. Surgery not an option. 6 months chemo last year, 3 months radiotherapy early this year and now ...
by Borobi
Fri Jul 10, 2020 10:53 pm
Forum: Family, friends and carers
Topic: Dad's PC - Stage 4 with liver mets
Replies: 2
Views: 3472

Re: Dad's PC - Stage 4 with liver mets

Hi C. Sorry to hear about your dad. It’s a tough thing to deal with. My partner was diagnosed with pancreatic cancer 18 months ago and now has liver mets. He had 12 cycles of Folfirinox last year and started on Gemcap a couple of months ago. Obviously each person responds to chemo differently, but h...
by Borobi
Wed Jan 29, 2020 11:10 pm
Forum: General chat
Topic: New to all of this
Replies: 5
Views: 10134

Re: New to all of this

Oh Sammi, I’m so sorry for you. What a scary thing to deal with when you should be enjoying time with your new baby. All I can say is try not to let the scary stuff get to you. When my partner was diagnosed just over a year ago, I read all the stats and thought he hadn’t got long left. But we’re a y...
by Borobi
Wed Nov 06, 2019 9:47 pm
Forum: Patient Experience Forum
Topic: Locally advanced head of Pancreas Adenocarcinoma with locoregional lymphadenopathy
Replies: 2
Views: 9192

Re: Locally advanced head of Pancreas Adenocarcinoma with locoregional lymphadenopathy

Hi Len Good luck with your treatment. It sounds like you were caught fairly early. My husband was diagnosed in Feb and had 12 cycles of Folfirinox. He tolerated it very well - people have different experiences of it. It didn’t make him nauseous but changed his appetite quite dramatically. No tiredne...
by Borobi
Fri Oct 18, 2019 9:53 pm
Forum: Patient Experience Forum
Topic: Newly diagnosed with Stage 3 locally advanced PC
Replies: 14
Views: 26767

wly diagnosed with Stage 3 locally advanced PC

Hi Val Hope your treatment is going well and you’re not suffering with too many side effects. Altho my husband was initially told his tumour was inoperable, after his 12 cycles of Folfirinox it had shrunk so much he’s now been listed for an op. So you never know what the outcome of treatment might b...
by Borobi
Fri Oct 18, 2019 9:53 pm
Forum: Patient Experience Forum
Topic: Newly diagnosed with Stage 3 locally advanced PC
Replies: 14
Views: 26767

wly diagnosed with Stage 3 locally advanced PC

Hi Val Hope your treatment is going well and you’re not suffering with too many side effects. Altho my husband was initially told his tumour was inoperable, after his 12 cycles of Folfirinox it had shrunk so much he’s now been listed for an op. So you never know what the outcome of treatment might b...
by Borobi
Tue Sep 17, 2019 7:16 pm
Forum: Family, friends and carers
Topic: Recent diagnosis
Replies: 5
Views: 14011

Re: Recent diagnosis

Hi Alison1972 Welcome to the club that no-one wants to join. There was a recent post on here - I think it might have been a response to another post- from a woman who was 5 years post surgery. So some people do get there. You’re in the same boat as me I’m afraid. My husband had an abnormal scan on N...
by Borobi
Mon Sep 16, 2019 10:19 pm
Forum: Family, friends and carers
Topic: Four week nightmare
Replies: 4
Views: 10809

Re: Four week nightmare

Dear Winnieweg I’m so sorry to hear of your mum’s rapid decline and death. Pancreatic cancer is a very cruel disease and I know that large numbers of people are diagnosed so late that they die really quickly, before any effective treatment can be given. I hope you have close family and friends who c...
by Borobi
Fri Aug 30, 2019 8:56 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 85
Views: 207636

Re: My mum - Stage 4 PC with liver mets

That’s lovely to hear.
by Borobi
Sun Aug 18, 2019 10:30 pm
Forum: General chat
Topic: Scared and desperate
Replies: 24
Views: 25521

Re: Scared and desperate

Hi Curlysue. Sorry that you’re still waiting. It does seem a very long time to wait. Was it your GP who referred you for the scan? If so could you ask them to chase it? it’s probably easier for them to get information. My partner was referred under the 15 day cancer target. He got the phone call fro...

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