Search found 69 matches

by Theresa Upton
Mon Feb 25, 2019 9:09 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 96076

Re: First folfirinox experience

Hi Kate, I hope you are keeping well, unfortunately the conference is full but that said I don't think we could get to London that early.


Theresa
by Theresa Upton
Sun Feb 24, 2019 7:45 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 96076

Re: First folfirinox experience

Hi Kate, sounds like things are going well for you and I hope you get the chemo sorted soon. The trial is immunotherapy at Liverpool, my oncologist has spoken to them and was told that I was a good candidate but then my papers never got to the right department so had to be resent. We are in London o...
by Theresa Upton
Sat Feb 23, 2019 5:50 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 96076

Re: First folfirinox experience

I am so pleased things are going so well. I am so unsure about what to do next, I have been referred for a trial but that was 3 weeks ago and I have not heard anymore. I would have to self fund nanoknife which makes the decision quite difficult as does losing Ericka. My tumours have significantly re...
by Theresa Upton
Fri Feb 22, 2019 9:35 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 96076

Re: First folfirinox experience

Hi Kate, how are you doing following the surgery?

Theresa
by Theresa Upton
Tue Feb 19, 2019 9:47 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 85
Views: 207454

Re: My mum - Stage 4 PC with liver mets

That is brilliant news.
by Theresa Upton
Sun Feb 17, 2019 9:11 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 132262

Re: This cruel disease

Hi Keith, thank you for your update on Kerry, it is truly a difficult journey and I am so sorry that she has been unwell with folfirinox. Although the side effects for me are minimal compared to what other seem to suffer I am struggling but I am determined to finish the 12 cycles. My last chemo was ...
by Theresa Upton
Thu Feb 07, 2019 7:52 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 132262

Re: This cruel disease

Hi Keith. Just a quick update, first things first, how is Kerry doing? I hope the chemo is going well, it is indeed a tough regime but I am sure her positivity and your support is keeping her going. I had my scan results last week which are pretty positive, my main tumour has shrunk by just over 50%...
by Theresa Upton
Wed Jan 30, 2019 5:09 pm
Forum: Advanced pancreatic cancer
Topic: update/advice
Replies: 1
Views: 8285

update/advice

Hi, today I received my midway scan results and although there is a cure they are good. The tumour on my pancreas has reduced by 50% and my liver metastases has significantly reduced in size. Although I am well in myself I am finding that the chemo is taking it toil and I am feeling unwell for longe...
by Theresa Upton
Wed Jan 23, 2019 10:00 pm
Forum: Advanced pancreatic cancer
Topic: Disapointed
Replies: 6
Views: 10658

Re: Disapointed

Thank you Keith, I have written a letter of complaint, I have tried to be gentle because staff are so busy but I have raised a number of issues. I spend so much time waiting around in the hospital and time is very precious, I feel more could be done by telephone and better planning. I am also worrie...
by Theresa Upton
Wed Jan 23, 2019 7:58 pm
Forum: Advanced pancreatic cancer
Topic: Disapointed
Replies: 6
Views: 10658

Re: Disappointed

I just feel a bit numb, I was hoping for news that would support how well I feel and look...……….still I am doing OK and I will have to be patient. You travel a long way for appointments and I think I would be soooo annoyed if I travelled all that way just to be sent home again. I was trying to expla...
by Theresa Upton
Wed Jan 23, 2019 4:31 pm
Forum: Advanced pancreatic cancer
Topic: Disapointed
Replies: 6
Views: 10658

Disapointed

So we waited for 2 1/2 hours today to be told that they could not give me the results of the scan I had on Saturday. I knew that the scan would not have been reported on by today but I was told that all the images would be on my file and the oncologist would be able to tell me something...……….nope, ...
by Theresa Upton
Tue Jan 22, 2019 8:28 pm
Forum: Advanced pancreatic cancer
Topic: positive thoughts
Replies: 3
Views: 8480

Re: positive thoughts

Thank you Ann, I wish your husband all the best for Friday, lets hope its positive news all around. This cancer has such a poor prognosis, positive stories are always great to read.

Good luck

Theresa
by Theresa Upton
Tue Jan 22, 2019 6:58 pm
Forum: Advanced pancreatic cancer
Topic: positive thoughts
Replies: 3
Views: 8480

positive thoughts

:D :D Hi, as some of you are aware I was diagnosed with PC and liver Mets in Oct 2018. I have just completed 6 rounds of folfirinox and the results of my midway scan will be discussed with me at a meeting with my oncologist tomorrow. I find that the chemotherapy is tough going and the side affects, ...
by Theresa Upton
Sun Jan 20, 2019 8:13 pm
Forum: General chat
Topic: Waterproof cover for PICC line?
Replies: 5
Views: 15248

Re: Waterproof cover for PICC line?

I have just purchased one of these and it is great.
by Theresa Upton
Fri Jan 18, 2019 7:04 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 132262

Re: This cruel disease

Hi Keith, I am so sorry but it is a good thing that Kerry has decided to be part of the trial and like you say the additional medical support will be a bonus. I am so pleased that Kerry continues to do so well, she really is an inspiration and gives hope to so many of us. I am OK thank you, I have j...

Go to advanced search