Search found 115 matches

by Bowie
Wed May 21, 2014 9:12 am
Forum: Patient Experience Forum
Topic: And another ones got it
Replies: 37
Views: 23771

Re: And another ones got it

Wacky hi, sorry to hear about the set back, but as you say as least you are getting some plan of treatment. We are still waiting and every addition ache and pain James gets, he is still really well, but had a sore back thus morning and I immediately thought has it metastases-ed somewhere else? I jus...
by Bowie
Wed May 21, 2014 8:56 am
Forum: Patient Experience Forum
Topic: Post Whipples
Replies: 7
Views: 5911

Re: Post Whipples

RoyBoy, that's great news and does really help. I spent hours scouring the internet for anything and everything with any glimmer of hope and even though James' is currently inoperable I hope that in the future this may change. I wish you all the best for your continued recovery and a happy life. Fio...
by Bowie
Tue May 20, 2014 9:42 pm
Forum: Family, friends and carers
Topic: How long to get definite diagnosis
Replies: 72
Views: 61366

Re: How long to get definite diagnosis

Fiji, hi work is quite good. I have a degree of flexibility in that I can generally work the hours to suit providing I get the work done, so that's a blessing. I had initially thought about retiring I'm 58 and could take my pension early, but James is adamant that I should not be too hasty in case t...
by Bowie
Mon May 12, 2014 11:28 pm
Forum: Family, friends and carers
Topic: How long to get definite diagnosis
Replies: 72
Views: 61366

Re: How long to get definite diagnosis

Hi Didge, yes I can understand how it is worse if you're not together and I completely understand re not being able to concentrate on other stuff. I had taken some time off work initially as I expected James would have loads of appointments, but as nothing much is happening am gradually going back a...
by Bowie
Mon May 12, 2014 11:19 pm
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 126269

Re: Wish someone would help him

Leila, glad that's over for your dad and hope it is OK.

Fiona X
by Bowie
Mon May 12, 2014 2:19 pm
Forum: Patient Experience Forum
Topic: And another ones got it
Replies: 37
Views: 23771

Re: And another ones got it

Hi, wacky wacky, I'm so sorry you have needed this forum too, but at least you are getting treated quickly. In James' case it's the waiting that's really causing extra stress and having to work out for ourselves what to do and how to get help and most of it has come from others' experiences on this ...
by Bowie
Sun May 11, 2014 8:38 pm
Forum: Family, friends and carers
Topic: How long to get definite diagnosis
Replies: 72
Views: 61366

Re: How long to get definite diagnosis

Thanks for replying so quickly. No he's just taking Creon, 25k and 10k, although after reading your previous helpful posts he has asked for 40k. What does Loperamide help with? Is Codeine for pain, because at the moment he doesn't gave any, but would this help with diarrhoea? I'll definitely get him...
by Bowie
Sun May 11, 2014 10:06 am
Forum: Family, friends and carers
Topic: How long to get definite diagnosis
Replies: 72
Views: 61366

Re: How long to get definite diagnosis

Thanks really helpful. Especially about the liaison nurse I asked and it is the Macmillan nurse, but the difficulties have been because we have been referred to a hospital outside where she normally work, hence she said it was best to chase ourselves. Have now got an appointment for the second biops...
by Bowie
Thu May 08, 2014 9:20 am
Forum: Family, friends and carers
Topic: How long to get definite diagnosis
Replies: 72
Views: 61366

Re: How long to get definite diagnosis

Thanks everyone for your comments and the confidence to keep pushing. It does feel quite daunting to be fighting the system, when I naively thought that a cancer diagnosis would mean that everything was speeded up. I have been constantly researching the internet and hoping that it maybe autoimmune p...
by Bowie
Wed May 07, 2014 10:17 pm
Forum: Family, friends and carers
Topic: How long to get definite diagnosis
Replies: 72
Views: 61366

How long to get definite diagnosis

Hello, my beautiful husband was diagnosed on 27th March with likely pancreatic cancer stage iv. He hadn't been ill, just lost a stone since Christmas and some intermittent diarrhoea. GP wasn't convinced anything much was wrong so he paid for tests himself, colonoscopy and finally CT scan. He then ha...

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