Search found 826 matches

by Didge
Thu Apr 20, 2017 1:22 pm
Forum: Advanced pancreatic cancer
Topic: Awaiting diagnosis
Replies: 7
Views: 16967

Re: Awaiting diagnosis

Hi SMJ. I can imagine how terrified you would be after the doctor's comments! I do know that at one stage they were hoping for high levels of amylase in my partner's case when he developed new pain which would indicate pancreatitis but his level was normal and they told him it was therefore likely t...
by Didge
Mon Apr 17, 2017 11:10 am
Forum: Patient Experience Forum
Topic: Newly diagnosed
Replies: 9
Views: 13062

Re: Newly diagnosed

Hi Helen. Just a word of encouragement- you may not die! If the chemo works and you are able to have the Whipples you may enter the happy statistics! Try looking on the real life stories for encouragement. Also worth mentioning is that most people who use the forum do not have a good prognosis and t...
by Didge
Mon Apr 17, 2017 10:57 am
Forum: Family, friends and carers
Topic: New diagnosis
Replies: 25
Views: 23413

Re: New diagnosis

Hi Cig, my partner was 48 on diagnosis and it was also in the tail. He did not get folfirinox until it spread to the liver but when he did it almost eradicated the tumours before he couldn't tolerate the chemo any more. I do hope your husband gets a good response. It is a terrible shock but you adju...
by Didge
Mon Apr 17, 2017 10:50 am
Forum: Family, friends and carers
Topic: Newly Diagnosed
Replies: 240
Views: 128296

Re: Newly Diagnosed

Dear Elaine, so sorry to hear your news but am glad it was peaceful in the end. How lovely that the grandchildren were able to tell him how much he meant to them. Your description of an alternative world that we enter on diagnosis struck a chord with me. Mine lasted 22 months. It is a surreal world....
by Didge
Thu Apr 13, 2017 11:37 pm
Forum: Patient Experience Forum
Topic: Three years post-Whipple - issues/ideas
Replies: 17
Views: 24872

Re: Three years post-Whipple - issues/ideas

You might like to try different gut bacteria (probiotics). Ask at your pharmacy, try one type for 4 weeks, if it doesn't work switch to a different one for 4 weeks. etc etc. Good luck!
by Didge
Thu Apr 13, 2017 2:45 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 199410

Re: Mum of 42 recently diagnosed inoperable PC

Tony, I am so sorry to hear of the shocking news about Ruth. She showed that it was possible to live life to the full under the shadow of this dreadful disease and that was truly inspirational to others. Thinking of you and your family. xx
by Didge
Thu Apr 06, 2017 10:54 pm
Forum: Family, friends and carers
Topic: Waiting for more news.....
Replies: 13
Views: 10370

Re: Waiting for more news.....

CA19-9 levels being raised can be linked to other cancers not just pancreatic. I am impressed if they have included this blood test. I wish more GPs would do it. But it could be liver function that has been abnormal from the blood test. I know it's scary but maybe you could get more info while you w...
by Didge
Mon Mar 27, 2017 9:16 pm
Forum: General chat
Topic: Hospital Diagnostics Review
Replies: 35
Views: 49435

Re: Hospital Diagnostics Review

Absolutely amazing, Marmalade. Thank you so much. This will undoubtedly mean the difference between life and death for those in early stages x
by Didge
Mon Mar 20, 2017 11:22 pm
Forum: Family, friends and carers
Topic: Mum refusing Whipple operation.
Replies: 9
Views: 10996

Re: Mum refusing Whipple operation.

Hello Michelle sorry to hear about your mum. Surgery is considered to give the only chance of cure although it is not guaranteed. And chemo is no easy option. I would encourage your mum to decide quickly as this is not a cancer you can delay.best of luck x
by Didge
Fri Feb 24, 2017 6:32 pm
Forum: Advanced pancreatic cancer
Topic: Travel Insurance
Replies: 4
Views: 15501

Re: Travel Insurance

I seem to remember others using "insurewith". Perhaps that is one on the website though.
by Didge
Mon Feb 20, 2017 8:28 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 248214

Re: Carls story

I suppose you could ask for a second opinion from Prof XX . We were supposed to see him but accepted a member of his team to keep the waiting time down as Rob was operable. They favour younger patients and the fact that Carl has clocked up 4 years plus might be of interest to them. If you could get ...
by Didge
Sat Feb 18, 2017 11:31 pm
Forum: Family, friends and carers
Topic: New Diagnosis, First Oncologist Meeting tomorrow
Replies: 54
Views: 38504

Re: New Diagnosis, First Oncologist Meeting tomorrow

Fiona, so sorry but glad you were there. They can monitor your son from age 18 if he wants it. I believe you are eligible if you have 2 close members. My partner's children may do this but the eldest is only 15 so too young at the moment. My partner's mother also died of it in her 50s as did he. But...
by Didge
Sat Feb 18, 2017 6:20 pm
Forum: Family, friends and carers
Topic: Hello
Replies: 110
Views: 84032

Re: Hello

Hi Veebee. Perhaps if Allan is feeling emotional he could sit with you in the garden while you work. Does he have a wheelchair for when he is feeling too tired? Sometimes it's a case of finding compromises so that you can do these things. Hopefully spring weather is coming but I still think it lifts...
by Didge
Thu Feb 16, 2017 8:13 am
Forum: Family, friends and carers
Topic: Already Hormonal Teen playing up after Dad's diagnosis
Replies: 7
Views: 8355

Re: Already Hormonal Teen playing up after Dad's diagnosis

They have a website with lots of useful information x
by Didge
Thu Feb 16, 2017 8:12 am
Forum: Family, friends and carers
Topic: Already Hormonal Teen playing up after Dad's diagnosis
Replies: 7
Views: 8355

Re: Already Hormonal Teen playing up after Dad's diagnosis

Contact Winston's Wish. They help not only bereaved children but those with parents with life threatening and terminal illness. X

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