Search found 825 matches

by Didge
Thu Jun 01, 2017 9:28 am
Forum: Family, friends and carers
Topic: Our story...
Replies: 24
Views: 25108

Re: Our story...

I continued to try to cram turmeric and juices down my partner's throat until nearly the end but he countered it by eating kilos of liquorice all sorts as soon as my back was turned! Btw blood clots are common both with pc and the chemo but as long as it's treated it is manageable. If your step dad ...
by Didge
Thu Jun 01, 2017 7:53 am
Forum: Family, friends and carers
Topic: Our story...
Replies: 24
Views: 25108

Re: Our story...

I love your title! In spite of extensive knowledge of cancer I had no knowledge of pc or even where it was like most of us. Now all on here know where, what shape, symptoms of something wrong etc. I am glad your step dad is making good progress. Folfirinox can work wonders and if it was caught early...
by Didge
Sat May 20, 2017 7:11 pm
Forum: Family, friends and carers
Topic: Grumpy's Story
Replies: 95
Views: 77030

Re: Grumpy's Story

Glad it was peaceful and he got his contact with you and your other sister. Xx
by Didge
Fri May 19, 2017 7:30 am
Forum: Family, friends and carers
Topic: A time to live
Replies: 3
Views: 7781

A time to live

If anyone missed the BBC's A time to Live this week it is really worth watching on catch up.
by Didge
Sun May 14, 2017 6:09 pm
Forum: Advanced pancreatic cancer
Topic: Metastatic adenocarcinoma
Replies: 19
Views: 26730

Re: Metastatic adenocarcinoma

My partner asked what the expected lifespan was after starting folfirinox (it was a lot longer than 6 months) and he managed it almost to the day. However, it is just the average so there must be many people who do much better. He only managed a couple of months of folfirinox but it almost destroyed...
by Didge
Sun May 14, 2017 6:06 pm
Forum: Patient Experience Forum
Topic: Whippleversary
Replies: 13
Views: 20932

Re: Whippleversary

That's brilliant Nikki! Clear margins and no lymph node involvement is half the battle!
by Didge
Sun May 07, 2017 10:30 am
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 120972

Re: Thoughts from the PC frontline

Hi there. I'm glad you have onside a private oncologist who is on your wave length. Will he advise on more conventional treatments and trials too? I assume you have done the BRCA gene mutation test which was done by our NHS hospital. There are also immunotherapy and vaccines to consider. I know you ...
by Didge
Mon May 01, 2017 5:53 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 120972

Re: Thoughts from the PC frontline

Wonderful new W&M. Having seen many stories in the US where they do belt and braces chemo every so often and appear to get some long-term survival, is this something you would consider if it was available in the UK? (I don't think it is - I think the thinking is wait until it needs treating again). ...
by Didge
Mon May 01, 2017 10:06 am
Forum: General chat
Topic: Pancreatic Cancer worry
Replies: 44
Views: 49855

Re: Pancreatic Cancer worry

Hi CDC I can see where you're coming from. You now think that they may not have scanned the Pancreas because it was not mentioned in the report? I think you need to clarify that for your own peace of mind. Quite often things are not mentioned because there is nothing unusual. However as others have ...
by Didge
Sat Apr 29, 2017 8:57 pm
Forum: Patient Experience Forum
Topic: please please please help meunderstand these PET scan results
Replies: 3
Views: 11367

Re: please please please help meunderstand these PET scan results

Hi Violette. There are various treatments for a one small liver met. He may be offered more chemo (he probably will) but there is also a possibility that they will try to take it out surgically. However, even if they do, they would probably want to do more chemo as this means that the disease is spr...
by Didge
Thu Apr 27, 2017 9:38 pm
Forum: Family, friends and carers
Topic: Calling all survivors!
Replies: 3
Views: 7398

Re: Calling all survivors!

Lovely to hear from you Anne. When Rob was diagnosed I read all the stories on the website. I'm glad you're well and enjoying life.
xx
by Didge
Wed Apr 26, 2017 7:25 pm
Forum: Family, friends and carers
Topic: Calling all survivors!
Replies: 3
Views: 7398

Calling all survivors!

I would like to make a request to survivors! We know that there are long-term survivors out there but they rarely post. Understandably, they want to get on with their lives and forget about PC if they are able. However, if you are one of those who has perhaps used the forum, or just been a silent re...
by Didge
Wed Apr 26, 2017 7:18 pm
Forum: Family, friends and carers
Topic: How long to get definite diagnosis
Replies: 72
Views: 62014

Re: How long to get definite diagnosis

Lovely to hear from you, Fiona. Sorry to hear James is not good but glad he is still here. And glad that our lovely Leila was able to help in that process. Those who research tirelessly are so appreciated by others! x
by Didge
Wed Apr 26, 2017 7:07 pm
Forum: Coping with loss/ Memorial
Topic: Worried about my son...
Replies: 16
Views: 23567

Re: Worried about my son...

Hi PW There is no right way to do things but it has struck me that as he lives with you, he has been sucked into doing it your way, which is working (sort of) for you but may not work for him at all. I don't think you should be forcing him to look at any photos (but in actual fact he is forced to lo...
by Didge
Thu Apr 20, 2017 1:22 pm
Forum: Advanced pancreatic cancer
Topic: Awaiting diagnosis
Replies: 7
Views: 13455

Re: Awaiting diagnosis

Hi SMJ. I can imagine how terrified you would be after the doctor's comments! I do know that at one stage they were hoping for high levels of amylase in my partner's case when he developed new pain which would indicate pancreatitis but his level was normal and they told him it was therefore likely t...

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