Search found 825 matches

by Didge
Tue Nov 14, 2017 3:07 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 284882

Re: Thanks for sharing your experiences . . .

Hope all has gone well today. Can’t Boris eat the out of date salmon and chicken or is it too far gone for even him?! I’m sure Peter will just be glad to be home and won’t worry about untidiness. Xx
by Didge
Mon Nov 13, 2017 5:56 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 284882

Re: Thanks for sharing your experiences . . .

Mo it does sound as if Peter has perked up a bit and if he’s eating quite well that’s a good sign. If neither of you want to have the DNR conversation then don’t. You have to be ready for that conversation and some people never are. I remember getting a phone call from Rob when I was on my way to my...
by Didge
Sat Nov 11, 2017 8:29 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 284882

Re: Thanks for sharing your experiences . . .

Mo I am so sorry to hear that. Sending you lots of love 💕
by Didge
Wed Nov 08, 2017 6:06 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 158931

Re: 36 yo adv pancr cancer patient treated in France

Oh what a palava! I well remember Rob telling the nurses that if he were given a blood thinner (standard procedure for all in patients on arrival) it would kill him and the nurses quoting the “not unless the doc agrees and they are not here”. I do hope things improve soon. Lots of love to you and yo...
by Didge
Fri Sep 15, 2017 2:26 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 120034

Re: Stephen's Story

Sorry to hear your news but glad it was peaceful. No more pain for Stephen. Thinking of you and your boys and sending you love. Xx
by Didge
Wed Sep 13, 2017 10:02 pm
Forum: Patient Experience Forum
Topic: Jane's story
Replies: 30
Views: 39500

Re: Jane's story

What a wonderful picture! You both look fabulous. So glad you had a wonderful day and I do hope you feel better soon xx
by Didge
Mon Sep 11, 2017 9:41 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 120034

Re: Stephen's Story

Sandie I am so sorry. It does sound as if he is near the end. I well remember those days when they gradually stop eating even the ensures. Can your other son come soon? I will be thinking of you so much in the coming days xx
by Didge
Sat Sep 02, 2017 8:53 pm
Forum: Family, friends and carers
Topic: New diagnosis
Replies: 25
Views: 22125

Re: New diagnosis

Cjg, I am so sorry to hear your news. In fact very few people get 2 years. My partner who was operable managed 22 months. I know there are some who manage more but understandably they often don't come to the forum so much but just get on with their lives. But I completely understand how you hold on ...
by Didge
Wed Aug 30, 2017 9:56 pm
Forum: Family, friends and carers
Topic: The nightmare so far....
Replies: 34
Views: 37973

Re: The nightmare so far....

That roller coaster again. Fingers crossed things continue to improve x
by Didge
Wed Aug 30, 2017 9:54 pm
Forum: Family, friends and carers
Topic: You've got to be kidding me...
Replies: 7
Views: 8553

Re: You've got to be kidding me...

A bummer. But just occasionally someone with a small tumour and no mets becomes operable after chemo. If that's the way your mum chooses x
by Didge
Wed Aug 30, 2017 4:31 pm
Forum: Family, friends and carers
Topic: The nightmare so far....
Replies: 34
Views: 37973

Re: The nightmare so far....

Hi AndAde, sorry to hear things are not good. I do hope some of the suggestions bring an improvement and he is in the percentage that the 2nd line chemo works for. I feel for the dog too! He must sense that his master isn't well. How sweet! Xx
by Didge
Mon Aug 28, 2017 7:00 am
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 120034

Re: Stephen's Story

Patrigib, how was the scan? Your husband has done amazingly well but it is certainly tough on the carers x
by Didge
Wed Jul 26, 2017 3:20 pm
Forum: Family, friends and carers
Topic: The nightmare so far....
Replies: 34
Views: 37973

Re: The nightmare so far....

My partner tolerated folfironox much better than gemcitabine which he couldn't tolerate at all so worth asking if he could try that.
by Didge
Fri Jul 21, 2017 6:52 pm
Forum: Advanced pancreatic cancer
Topic: Molecular Profiling
Replies: 4
Views: 9111

Re: Molecular Profiling

A drug can be used off label I believe, which means that it has a license but has not been tested for your particular condition. There has been some success treating PC with drugs used for breast cancer when the patient has tested positive for the BRCA gene so I suppose that would be a good example....
by Didge
Mon Jul 17, 2017 9:14 am
Forum: Coping with loss/ Memorial
Topic: Carrying On
Replies: 77
Views: 75210

Re: Carrying On

Marmalade so much of your post resonates with me! Today would have been Rob's birthday and in 13 days will be the 2nd anniversary of his death. I miss his presence, his touch, his embracing of life and fun, his love. After nearly 2 years I feel I have not found the new life that awaits me yet. My da...

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