Search found 825 matches

by Didge
Fri Dec 15, 2017 2:59 pm
Forum: Patient Experience Forum
Topic: Diagnosed in May 2017
Replies: 18
Views: 16610

Re: Diagnosed in May 2017

Hi Tina. I’m on a bus but just wanted to say a quick hello. Was it folfirinox you were on? That can cause numbness but does often improve with time. It’s a very rollercoaster disease so hopefully you will get periods when you feel better and have an appetite. Steroids can sometimes help. I’m sure mo...
by Didge
Wed Dec 13, 2017 10:55 am
Forum: Treatment & side effects
Topic: Radiotherapy on inoperable pancreatic cancer
Replies: 5
Views: 7509

Re: Radiotherapy on inoperable pancreatic cancer

Hi Melanie. My partner had radiotherapy on liver tumours and was told that initially he could well experience more pain because it can cause inflammation. But this may depend where he is having the pain so I would definitely ask if this is expected. There is a nerve block that can sometimes be done ...
by Didge
Mon Dec 11, 2017 12:14 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 291664

Re: Thanks for sharing your experiences . . .

Pat I’m so glad your hubby has passed the 3 year mark. That’s a tremendous achievement and must give you hope that something is working. But it’s so hard being a carer for someone with PC so that 3 years will have taken a heavy toll. I do hope you manage to have a good Christmas and don’t find it to...
by Didge
Sat Dec 09, 2017 4:43 pm
Forum: General chat
Topic: A new Forum here?
Replies: 14
Views: 12582

Re: A new Forum here?

I don’t think that would work here as the display of the most recent posts doesn’t show which forum the post is in. I do think it would work better if a reason had to be given for joining so that the admins can gently direct people away from here if it’s not a suitable place for them to be posting.
by Didge
Thu Dec 07, 2017 1:57 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 291664

Re: Thanks for sharing your experiences . . .

Me neither. If necessary I’d just say “the docs asked me to come in” or “I was asked to come in” and if asked to specify an actual name become forgetful (not hard to actually BE forgetful in the circs). Rarely had any probs. Most of the time I just walked in with no conversation taking place x
by Didge
Wed Dec 06, 2017 11:39 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 291664

Re: Thanks for sharing your experiences . . .

Mo you poor thing. And poor Peter too. I do hope they get to the bottom of it. PC is such a weird cancer. There can be so many peculiar happenings it’s often hard to work out what’s going on. Hope you manage to get some sleep tonight. Much love xx
by Didge
Tue Dec 05, 2017 11:05 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 291664

Re: Thanks for sharing your experiences . . .

Mo, I hope the confusion gets sorted. It’s quite common with PC but can come from all sorts of causes so needs investigation. As for the ‘nasties’ we’d not be human if we didn’t crack sometimes. As long as we forgive ourselves no harm done xx
by Didge
Sat Dec 02, 2017 11:32 pm
Forum: General chat
Topic: Not feeling well at all and very worried.
Replies: 6
Views: 7953

Re: Not feeling well at all and very worried.

Hi Matt, if you’ve had a CT scan of your pancreas which I assume was included then PC will have been ruled out. The tumour marker test is for CA19-9 when PC is suspected although it is also sometimes raised in other cancers. Not everyone with PC has raised levels though. In a way as you’ve been ill ...
by Didge
Fri Dec 01, 2017 8:25 am
Forum: General chat
Topic: reliability of CT scans
Replies: 14
Views: 14245

Re: reliability of CT scans

Fifi, this is what sometimes happens here. Someone is worried that they have PC and their docs are concerned too so they are having some tests. They then get the all clear and often say they feel guilty for getting good news when so many on here have such a dire prognosis to deal with, either for th...
by Didge
Wed Nov 29, 2017 11:20 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 161376

Re: 36 yo adv pancr cancer patient treated in France

Sending condolences and love to the family xx
by Didge
Mon Nov 27, 2017 5:10 pm
Forum: Family, friends and carers
Topic: New - feeling scared
Replies: 8
Views: 6681

Re: New - feeling scared

Hi Sue. I think that is why the forum is so appreciated. We’ve all been there and you can say things to us that you may feel unable to say to those close to you for fear of upsetting them etc. Plus you will find a lot of useful tips and the nurses are on the end of a phone too when you need to hear ...
by Didge
Mon Nov 27, 2017 1:42 pm
Forum: Family, friends and carers
Topic: New - feeling scared
Replies: 8
Views: 6681

Re: New - feeling scared

Hi Sue I am sorry you find yourself in this position. Pancreatic cancer is not good as you probably already know but some tumours are less aggressive than others and you won’t really know what you are dealing with until you get the biopsy results. I know it’s hard but you need to take one step at a ...
by Didge
Thu Nov 16, 2017 2:49 pm
Forum: Advanced pancreatic cancer
Topic: Metastatic adenocarcinoma
Replies: 19
Views: 25480

Re: Metastatic adenocarcinoma

Enjoy Venice! Fingers crossed for a problem free trip xx
by Didge
Thu Nov 16, 2017 2:38 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 161376

Re: 36 yo adv pancr cancer patient treated in France

Sorry to hear that you’re in hospital again but it looks like you will be home soon with support in place that you are happy with. Taking that worry away is essential. Do keep an eye on the ascites though. If you are uncomfortable it’s better to have it drained sooner rather than later xx
by Didge
Wed Nov 15, 2017 8:50 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 291664

Re: Thanks for sharing your experiences . . .

Sweating does go with PC territory I’m afraid but it’s a good sign that Peter can still eat substantial amounts! No harm done in not waking. Tiredness gets you in the end when you are constantly on the alert. Hope things continue to go well. As for sharps boxes I’m afraid I still have some hanging a...

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