Search found 332 matches

by InfoForMum
Fri Feb 07, 2014 1:21 am
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 247029

Re: Carls story

Lol at the breathing crack. Believe it or not I don't talk as much or as quickly as I type, whereas my sister does and we all sometimes wonder why she doesn't pass out from oxygen deprivation. Also, the evangelising thing - SOOOoo identify deeply with that. Think yourself lucky you have a captive au...
by InfoForMum
Fri Feb 07, 2014 12:16 am
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 131297

Nanoknife Vs Cyberknife

Thanks Bee, I will remember! Can't say how much the support helps. You've all got so much on your own plates at the moment it's amazing that you're taking the time out to look out for me. I hope you're getting looked after too. I've put that title for the post as I had a dose of literary diarrhoea o...
by InfoForMum
Thu Feb 06, 2014 11:23 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 247029

Nanoknife Vs Cyberknife

Hi there Rob, I remember that shoulders dropping, emotions breaching floodgates feeling. Not surprising. Everything I have read on nanoknife suggests it can have promising results and hopefully he has a quick, simple, complication-free time. I am not, and I stress this hard, from a medical backgroun...
by InfoForMum
Thu Feb 06, 2014 10:04 pm
Forum: News archive
Topic: Pancreatic Cancer Action Campaign
Replies: 18
Views: 22005

Re: Pancreatic Cancer Action Campaign

Sarah18 wrote: > Hi, > > I couldn't agree more with this campaign my Mam lived 24 pain filled days > past her diagnosis she died on 11th January 2014 tomorrow would have been > her 62 birthday. I wish it had been breast cancer because that would have > meant, we would have more than likely been spen...
by InfoForMum
Thu Feb 06, 2014 9:59 pm
Forum: News archive
Topic: Pancreatic Cancer Action Campaign
Replies: 18
Views: 22005

Re: Pancreatic Cancer Action Campaign

Good for you Mike. I've taken to twitter and facebook to put the point across; "5Yr Survival - Breast Cancer 85.1%, Testicular Cancer 97.2%, Pancreatic Cancer 3.7%. No-one should go through the anguish of a cancer diagnosis, but to those angry about the campaign, please respect this as a very person...
by InfoForMum
Thu Feb 06, 2014 9:42 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 313353

Re: So far so good!

Hi there, totally get your perked upness. We all so so need someone in the profession firmly in our corner and willing to help you look into things outside their own specialism and experience. One of the reasons my Mum and I volunteered to have some of her experiences published on the Saatchi Bill b...
by InfoForMum
Tue Feb 04, 2014 8:49 pm
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 131297

Re: Waiting nervously for delayed CRT

Nikki! Brill to hear from you and hear good news about Paul. So, so, cheered me up! Keep me posted hon and sending hugs. Know what you mean about the greater good Rob. Mum might have had a horrid time post nanoknife, but she always found comfort in the fact that she made her choice the right way, re...
by InfoForMum
Tue Feb 04, 2014 12:53 pm
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 131297

Re: Waiting nervously for delayed CRT

Thank you both. The news about progress does make a difference Jeni. While hating all this I'm glad others might not have to have such a hard time. Unfortunately Cathy MacMillan did demand a GP referall and her GP can't see her til Monday. She understandably doesn't want to go through this with anot...
by InfoForMum
Tue Feb 04, 2014 9:56 am
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 131297

Re: Waiting nervously for delayed CRT

Mark, thank you. Right about managing expectations better ref procedure related pain, but sounds like you are doing incredibly and I'm so pleased. Julia, thank you too hon. This is a new phase for me. Cedeing control, feeling helpless and all against backdrop of new job and kids being hellions. Not ...
by InfoForMum
Tue Feb 04, 2014 12:33 am
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 131297

Unsettled Quiet

I'm so so glad that the #CanCan4PanCan campaign is going so well, but I've kind of run out of steam. Mum continues to have symptoms and it's crushing me to not know what's pancreas, what's ongoing stomach problems and what's something else entirely. Her CRT has been delayed by a month because her lo...
by InfoForMum
Sun Feb 02, 2014 9:00 pm
Forum: General chat
Topic: 15,000 VIEWS!!!! #CanCan4PanCan AMAZING :-)
Replies: 7
Views: 6823

Re: 15,000 VIEWS!!!! #CanCan4PanCan AMAZING :-)

This is pretty flipping fab! Bit of a life of it's own now. Brill. 5 #CanCan4PanCan views a day keeps the silent killer at bay - my new motto :-)
by InfoForMum
Sat Feb 01, 2014 5:15 pm
Forum: General chat
Topic: 15,000 VIEWS!!!! #CanCan4PanCan AMAZING :-)
Replies: 7
Views: 6823

10,000 VIEWS!!!! #CanCan4PanCan onwards to 15K :-)

YOU DID IT! Let's do it all again twice as hard :-) <<<<sounded somewhat iffier than intended.

Chuffed to bits on everyone's behalf :-)
by InfoForMum
Sat Feb 01, 2014 3:45 pm
Forum: General chat
Topic: 15,000 VIEWS!!!! #CanCan4PanCan AMAZING :-)
Replies: 7
Views: 6823

#CanCan4PanCan Vid NEARLY 10,000 VIEWS

NEARLY 10,000 VIEWS YOU YouTUBE - FANTASTIC. Keep going folks. Have another look or two http://www.youtube.com/watch?v=PFSBPfCh ... e=youtu.be, keep spreading the #CanCan4PanCan hash tag around liberally in all your posts/tweets (no matter what they are) and pass the same on to everyone you know! Br...
by InfoForMum
Fri Jan 31, 2014 3:47 am
Forum: General chat
Topic: 15,000 VIEWS!!!! #CanCan4PanCan AMAZING :-)
Replies: 7
Views: 6823

Re: 3pm Today - #CanCan4PanCan Vid Live - Let's cause a stir

Over 4,800 views, already spent some time trending with London Twitter users and all sorts of famous bodies getting involved. Aren't folk good and kind when you give them the chance to be :-)
by InfoForMum
Fri Jan 31, 2014 3:47 am
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 131297

Re: 3pm Today #CanCan4PanCan Vid Launched - Spread the word

Over 4,800 views, already spent some time trending with London Twitter users and all sorts of famous bodies getting involved. Aren't folk good and kind when you give them the chance to be :-)

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