Search found 332 matches

by InfoForMum
Fri Feb 28, 2014 11:34 pm
Forum: News archive
Topic: My Lovely Daughter makes the Press
Replies: 12
Views: 14596

Re: My Lovely Daughter makes the Press

It should be no surprise that a man like you has raised a girl who can do something like that. Proud Dad at all? ;-) You should be.
by InfoForMum
Fri Feb 28, 2014 11:34 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 313434

Re: So far so good!

Fantastic Steve. Marvellous news :-)
by InfoForMum
Mon Feb 24, 2014 9:25 pm
Forum: Family, friends and carers
Topic: Creons, Nurses, and Here. I'm at a loss.
Replies: 110
Views: 36440

Re: Creons, Nurses, and Here. I'm at a loss.

Leila, so identify with this. Thankfully my Mum is open to what I bring her, but I know, had it been my Dad, I would have been in a desperate position always being told to not contradict the doctors even when I knew they were wrong.

Cracking job hon and trust your instincts.

Sarah
XXX
by InfoForMum
Tue Feb 18, 2014 2:24 am
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 247099

Re: Carls story

Awww Carl, so sorry he's so poorly. A few practical tips on the old cold sensitivity. Rubber gloves next to the fridge and freezer - expensive thin but grippy ones are good - colour and design optional. Silk socks, silk helmet liner (the kind bikers use rather than anything else!), silk ski glove li...
by InfoForMum
Mon Feb 17, 2014 12:41 am
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 131340

Re: Small improvements and off to the House of Lords

There's a "Search this Topic" field you can use if you're on a thread (top left of 1st post on the page). Stick "nanoknife" in there and it will bring all mentions of it up with most recent first. If you want to see Mum's story in order go to the last post and work forwards. In there you'll find a l...
by InfoForMum
Sat Feb 15, 2014 7:38 pm
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 131340

Re: Small improvements and off to the House of Lords

Brill, thanks Cathy and will keep you posted if I get your details Sara.

Sarah
by InfoForMum
Sat Feb 15, 2014 10:59 am
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 131340

Re: Small improvements and off to the House of Lords

Thank you Sara. It's not amazing so much as fallout from my tendency to fire off a tweet/FB post/Email whenever I see something that gets my goat. They picked up on it and asked if I'd write somthing. Didn't expect anything like the invite though! I saw your thread and suggestion of trying to get fo...
by InfoForMum
Sat Feb 15, 2014 1:52 am
Forum: Patient Experience Forum
Topic: She's gone
Replies: 289
Views: 131340

Re: Small improvements and off to the House of Lords

Hi all, I've been unusually quiet of late as so much has been going on. Mum is up and down. Still having days feeling too nauseus or appetite-less to eat much. Gnawing pain in lower abdomen is still fairly constant with some good patches for no apparent reason or because she gets her Paracetamol, Di...
by InfoForMum
Sat Feb 15, 2014 1:29 am
Forum: Treatment & side effects
Topic: Folfirinox- seems to be working!
Replies: 60
Views: 36286

Re: Folfirinox- seems to be working!

Nikki, lovely lady, so sorry your man is feeling horrid still. Those four words "we think it's because..." are horrid aren't they. You know from looking after me on my post I've had a taster of that recently. No damn certainties appart from the fact you're an utter rock and are helping him keep up t...
by InfoForMum
Sat Feb 15, 2014 1:21 am
Forum: Family, friends and carers
Topic: Overwhelmed - husband diagnosed, in hospital - decisions.
Replies: 41
Views: 19463

Re: Overwhelmed - husband diagnosed, in hospital - decisions

Ladies I'm so sorry this is so hard on you all. Larrybee, I was really struck by that post. You are being so strong and pragmatic. Another example of the enormous well of strength all you ladies seem to draw on when most folk would crumble. Make sure you keep your own strength up too and take time f...
by InfoForMum
Tue Feb 11, 2014 5:12 pm
Forum: Family, friends and carers
Topic: Overwhelmed - husband diagnosed, in hospital - decisions.
Replies: 41
Views: 19463

Re: Overwhelmed - husband diagnosed, in hospital - decisions

Dianne is quite right Larrybee. The professor doing this sets his limit at 5cm, but as she said <4cm is better. Chemo first is to go after any unseen mets floating about (as Nanoknife doesn't tackle that) and knock the health of the tumour as much as poss. Sorry to have left that information out. A ...
by InfoForMum
Tue Feb 11, 2014 12:28 pm
Forum: Family, friends and carers
Topic: Overwhelmed - husband diagnosed, in hospital - decisions.
Replies: 41
Views: 19463

Re: Overwhelmed - husband diagnosed, in hospital - decisions

Hi Larrybee, Talking to the nurses saved my sanity (number on the home page of the site). I come here for great patient and carer perspective on EVERYTHING and the neverending stream of kind support the PCUK family offers, but when you're in the middle of these post diagnosis dilemas and set adrift ...
by InfoForMum
Sat Feb 08, 2014 4:25 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 313434

Re: So far so good!

I can't wish you luck with the rugby, my Mum would kill me, but will add my hope to the fact that blip is a blip.

Sarah
XX
by InfoForMum
Fri Feb 07, 2014 2:01 pm
Forum: News archive
Topic: Pancreatic Cancer Action Campaign
Replies: 18
Views: 22015

Re: Pancreatic Cancer Action Campaign

Oh Marvellous! - better sort that out. Think more type slower - DONE - deffo says 100mph on Facebook
by InfoForMum
Fri Feb 07, 2014 1:21 pm
Forum: News archive
Topic: Pancreatic Cancer Action Campaign
Replies: 18
Views: 22015

Re: Pancreatic Cancer Action Campaign

As Jeni says, lovely to hear from you. I've posted Sarah's bang on analogy on Facebook and without asking it's been retweeted and shared so there's some thought going into this in some quarters.

The other Sarah

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