Pancreatic Cancer UK

Good Day All: Monday's treatment went without a hitch, this for the Gemcitabine IV. A much easier treatment to tolerate administration-wise, just a couple of hours and I was done. We still have not started the Tarceva but I expect that will happen next week. I've not experienced any particularly unc...

Hi Linda and thanks for the reply. Yes, I have a PICC line in my upper left arm, above the elbow, it's been in place for about 6 weeks now and I understand it can stay in place for a year or more. I have to go in once a week just to have it flushed and a fresh dressing placed over the site. The vein...

Greetings All: Got the final results from the latest ct-scan and met with my oncologist yesterday to discuss and plan. CA19-9 markers are 6830, 2505, 1382, and 623 respectively. The single met tumor no longer appears on the scan and we consider it taken care of by the Falfurinox chemo. This after 4 ...

Thanks all for the very positive and uplifting comments. I tend to be a bit cautious because it seems a bit "too good to be true" that in just 5 treatments the met tumor has disappeared? However, I celebrated anyway with a couple of friends over a nice dinner and a pint of Guinness (my weekly allowa...

Hi folks: I got a prelim ct-scan result from my oncy's partner today when I went in for a PICC dressing change. We did the scan last Friday and my oncologist is on vacation for the next couple of weeks. In the meantime I'm on chemo break for more than a week now after 5 treatments of Folfirinox. Lab...

Hi tummywoes: Sorry you had such an unpleasant scan. I've had most of them now and I think the MRI the worst. If you're at all claustrophobic, which I am, it's more than a trial, more like an execution 8) . Here's hoping the results are negative and they'll find what they need to find to get you up ...

I'm in the latter part of treatment #5 now. My CA19 marker was once again down, this time at 1382 from the previous 2505 so we're continuing in progress along that line. We did have to remove the Camptosar from the mix this time because of the increasing dysarthria. Cheers, Mike

Greetings all:

Finished treatment #5 today and my CA19-9 marker was down to 1382 from 2505 at treatment #4. The dysarthria went away with the drug so that's out of the regimen for now and he may substitute gemcitabine at a later date.

Cheers, Mike

Thanks folks.

I did immediately call my oncologist's office. He was concerned, of course, and gave me instruction for treatment and so far it has not repeated. I'm guessing it was just a one-of-a-kind thing. I keep the area moistened with Vaseline and so far so good. Cheers, Mike

Hi Mandy:

I'm so sorry to hear of your husband's diagnosis and prognosis. I know it's of no consolation but here in the States it took five months for my diagnosis of pancreatic cancer to come about before treatment could begin.

I'll hold good thoughts and prayers for you both.

Cheers, Mike

Greetings all: Had a new problem two days ago, was walking down the street and got a sudden and rather generous nosebleed. Nothing to provoke it that I know of and no advance warning. On the humorous side I made a dash for the nearest wc, which was in a restaurant, only to find out the paper towel d...

Thanks, Dianne. I'm trying my very best to be positive; some days that's really tough to do. Cheers, Mike

My CA19-9 marker was 2505 three days ago at the beginning of chemo #4, down from some 6,800 two weeks prior. The lab report I have says that anything less than 34 is good. The unit of measurement is U/mL and this is from the States. Not sure if you good folks across the pond use that or another meas...

Hi Linda: I'm sorry, but I'm not taking in part of any trial, just working directly with the doctors and cancer center. Following the Falfurinol regime which is 3 days of constant intravenous infusion of 5 different chemicals. The first 4-5 hours are done in the cancer center then I get fitted with ...

Hi All and hope everyone is well and in good spirits. I just finished up inpatient chemo #4 and now doing the outpatient thing with the portable pump. Lab results this pre-treatment were encouraging: WBCS 6/6/13 4.2K/uL, 6/24/13 9.4K/uL, 7/9/13 13.2K/ul (high) RBCS 6/6/13 3.56K/ul, 6/24/13 3.89K/uL,...