Search found 220 matches

by cestrian
Fri Jun 21, 2013 12:02 pm
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 164873

Re: Welcome to this new sub forum

Thanks all but I'm afraid I've no information about the actual treatment the trial will involve. Having Biopsy next Friday prior to getting underway. I guess my feeling is that there is nothing to lose and as long as the side effects are not too dire then I am happy to give it a whirl. Even if I onl...
by cestrian
Thu Jun 20, 2013 11:26 am
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 164873

Re: Welcome to this new sub forum

hi All A busy week with my first appointment with my oncologist on Monday followed by an appointment with the surgeon who does key-hole pain relief procedure, Things are moving apace and I am booked in for the key-hole surgery next Tuesday and having the pre-assessment this afternoon. Mr {name remov...
by cestrian
Fri Jun 14, 2013 12:51 pm
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 164873

Re: Welcome to this new sub forum

Hi All Saw my GP this morning for review of pain control and general update. As far as Creons are concerned it does look very much like trial and error and as far as their being restricted he did say that they are very expensive - but that he was not bothered about that although it may explain some ...
by cestrian
Wed Jun 12, 2013 8:45 am
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 164873

Re: Welcome to this new sub forum

From the comments above looks like my dosage is too low. Dianne, as usual, has been great at providing information to help me get it right. TBH although I only started with them yesterday I have not noticed any real difference in digestion and still have a lot of discomfort. I think I will need to u...
by cestrian
Tue Jun 11, 2013 1:26 pm
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 164873

Re: Welcome to this new sub forum

Hi All Just collected Creons and they are the 10000 capsules. Prescription says one tablet twice a day but it looks as though most users are taking rather more than this and dosing just before and during eating. As I eat so little I am thinking of taking one before each snack sized meal that I have....
by cestrian
Mon Jun 10, 2013 7:49 am
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 164873

Re: Welcome to this new sub forum

Hi Julia I'm Mike and I am pleased with the people that are caring for me. The Creons should be with me today or possibly tomorrow if not in stock at our local pharmacy. No mention of any tests as the specialist just did a note to my GP for him to prescribe. The key hole procedure does sound interes...
by cestrian
Sun Jun 09, 2013 1:29 pm
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 164873

Re: Welcome to this new sub forum

Saw Colo-Rectal Specialist on Friday, I actually thought I would be seeing Oncologist but was obviously confused. Appointment went well, I think he was relieved that I had been given the bad news by my GP. Already on the case for Creons to be prescribed and my wife delivered his letter to our GP yes...
by cestrian
Wed Jun 05, 2013 9:54 am
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 164873

Re: Welcome to this new sub forum

Again many thanks all. I've contacted GP this morning but having read replies will speak to his secretary about McMillan as they are highly recommended. I just wonder if they will get involved before I have my initial meeting with the consultant this Friday.
by cestrian
Tue Jun 04, 2013 6:59 pm
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 164873

Re: Welcome to this new sub forum

Thank you for the very supportive replies and the e-mail to which I have responded. One question I do have is when any treatment is likely to start. If this is some time off then I think I do need some help in the meantime as I have lost a lot of weight and have little appetite as well as very inter...
by cestrian
Tue Jun 04, 2013 11:14 am
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 164873

Re: Welcome to this new sub forum

I have very recently been diagnosed with PC which of course came as a major shock when broken to me by my GP. I have my initial appointment with the specialist this week and am of course very apprehensive as it appears that apart from the tumour being inoperable I also have lesions on lung and liver...

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