Search found 220 matches

by cestrian
Thu Feb 13, 2014 9:08 am
Forum: Family, friends and carers
Topic: Strategies for understanding and coping
Replies: 21
Views: 10443

Re: Strategies for understanding and coping

Dear Chris As a patient myself I have often said on here that it is so much more difficult for carers like yourself. Keeping a brave face while watching a loved one suffer is so hard to bear but really all you can do apart from showing your love and support for them and trying to make sure they are ...
by cestrian
Tue Feb 11, 2014 8:40 am
Forum: Family, friends and carers
Topic: Overwhelmed - husband diagnosed, in hospital - decisions.
Replies: 41
Views: 19843

Re: Overwhelmed - husband diagnosed, in hospital - decisions

Welcome Larrybee Surgical intervention was never an option for me thanks to the customary delay in diagnosis and I also have lung and liver Mets. I think the decision on surgery is a very difficult one and must depend on so many factors, not least the patient's underlying health problems. It is a ma...
by cestrian
Sun Feb 09, 2014 8:13 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 317848

Re: So far so good!

Thanks Laura I think I post all over the place on here so don't think you need to worry too much which forum you're on as it's surely all about mutual support. Apologies to mods if this is against the rules! It is great to hear of stories like Brian's and I will ask specialist about markers on Wedne...
by cestrian
Sat Feb 08, 2014 12:20 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 62196

Re: Chemotherapy options

Isn't it amazing that in my profession of Financial Services the complaints procedure is very prescriptive with firms facing heavy penalties for non-compliance! Strict time scales are laid down for initial and final responses to be issued and if a client feels the response is not satisfactory they c...
by cestrian
Sat Feb 08, 2014 12:13 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 317848

Re: So far so good!

Hi Steve As you say, two steps forward one back but hopefully the marker reading is just a blip! For some reason I've never been given any readings - perhaps they are too depressing!! Whenever I raise anything of a technical nature I always get the same response "Oh it's how you look and feel that's...
by cestrian
Sat Feb 08, 2014 8:57 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 317848

Re: So far so good!

Hi Catherine So sorry to hear of your father's diagnosis and the delays in getting his treatment underway. There does seem to be this hiatus while all the confirmatory tests are carried out, in my own case 2 months from diagnosis to first chemo on a clinical trial. Please don't worry too much about ...
by cestrian
Sat Feb 08, 2014 8:45 am
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 62196

Re: Chemotherapy options

Hi Carole I can only echo what Steve has said as here in Chester and Merseyside I have had the benefit of consistently excellent treatment and care. Luckily I haven't "hit the wall" yet so have not needed any emergency admissions or weekend treatment. It is patently not right that Steve and I have s...
by cestrian
Thu Feb 06, 2014 8:15 pm
Forum: News archive
Topic: Pancreatic Cancer Action Campaign
Replies: 18
Views: 22288

Re: Pancreatic Cancer Action Campaign

Hi All I'd texted in my thoughts and was contacted by a researcher who invited me to join the discussion which I was pleased to do. Obviously most air time was given to the spokespersons from P C Action and the Breast Cancer Charity but I did get the chance to make my comments live on air just befor...
by cestrian
Wed Feb 05, 2014 8:26 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 317848

Re: So far so good!

Hi Steve That is brilliant and must have been really reassuring to know that she's walking the walk! Very encouraging for you. Take care and good luck. Move from Clexane would be a boon, I'm on Tinzaparin injections and it's not really a problem but capsules would just be so much easier Love and Pea...
by cestrian
Tue Feb 04, 2014 10:26 am
Forum: Family, friends and carers
Topic: False negative result ERCP
Replies: 22
Views: 15266

Re: False negative result ERCP

Are they trying to do the biopsies from the pancreas or the lesion in her liver? Mine was the latter and gave an immediate confirmation. Perhaps I was just lucky in getting a positive result so treatment could get underway. Obviously different teams will have their own preferred methods but if it's ...
by cestrian
Tue Feb 04, 2014 10:13 am
Forum: Family, friends and carers
Topic: Mum - Just Diagnosed
Replies: 83
Views: 35498

Re: Mum - Just Diagnosed

Hi Ruth With your Mum's pain probably preventing proper sleep and her lack of appetite it will be far too easy for her to suffer from depression. I know that before my pain relief op and chemo I just did not feel like eating and was losing weight at an alarming rate. Luckily I had a stone or two to ...
by cestrian
Mon Feb 03, 2014 6:14 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 250198

Re: Carls story

Hi Rob God bless you both in your struggles. I think folk on here set a lot of store by Prof so you can hopefully rely on his judgement. I can understand your frustration at the delay but these things sometimes work for the best! I had no hair to start with but poor Carl, what a shock to see it disa...
by cestrian
Sun Feb 02, 2014 3:00 pm
Forum: General chat
Topic: waiting for diagnosis
Replies: 91
Views: 73867

Re: waiting for diagnosis

Hi Judi Wonderful news as we don't want one more person suffering from PC if at all possible. I hope your “watch and wait" policy pays off which it should do if you are vigilant. Creons are a boon to aid digestion, maybe supplemented with Omeprazole or similar which seems to increase their effective...
by cestrian
Fri Jan 31, 2014 8:18 am
Forum: Advanced pancreatic cancer
Topic: Jonathan's final performance
Replies: 73
Views: 36398

Re: Jonathan's final performance

Cathy

Sounds like a brilliant "send off" and very much in line with my own vision of the perfect celebration. Thank you so much for the superb account and I do hope the love shown for your beloved husband will help you through the coming days and weeks ahead.

Love and Peace

Mike x
by cestrian
Thu Jan 30, 2014 2:47 pm
Forum: News archive
Topic: My Lovely Daughter makes the Press
Replies: 12
Views: 14874

My Lovely Daughter makes the Press

Hi All Very proud of my darling daughter's resilience and her initiative in getting into our local paper http://www.chesterchronicle.co.uk/lifestyle/elaine-morleys-vow-dads-cancer-6647868#.UupG3Pl_usc … pic.twitter.com/DOWBTAyXv6 She is a huge help to me and a constant source of support, though it i...

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