Search found 228 matches

by MSH
Fri Mar 27, 2015 2:01 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 226335

Re: Carls story

Rob I would take the marker over the scan any day of the week. Scans can mislead as it can be difficult to know what's tumour and what is scar tissue. The best way of knowing about activity is by a PET scan and even these can be wrong. If the marker is declining steadily then the tumour activity is ...
by MSH
Thu Mar 19, 2015 7:50 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 122110

Re: My Journey So Far

Hi Annette, I'm sorry I can't really be of any help. I haven't bothered with insurance since I was diagnosed. My wife was just saying the other day about someone at her work questioning the wisdom of going to North America without insurance. As she said at the time life is to be lived, and this is p...
by MSH
Tue Mar 03, 2015 3:29 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 226335

Re: Carls story

Good to hear that things are going well. Folfirinox even on reduced regimes can be very effective.
by MSH
Thu Feb 26, 2015 9:48 am
Forum: Treatment & side effects
Topic: Abraxane -our experiences so far
Replies: 243
Views: 100698

Re: Abraxane -our experiences so far

So very sorry to read of Paul's demise. He's had a hard time of things these last two years, borne bravely and with good heart.

My condolences.

Mark
by MSH
Wed Feb 25, 2015 12:55 am
Forum: Advanced pancreatic cancer
Topic: Newly Identified Tumours One Year on from Whipple
Replies: 42
Views: 28020

Re: Newly Identified Tumours One Year on from Whipple

So sorry to read your post Amanda. With over 600 people there he must have been a very special person to all those around him. Yet another taken far too young.

My condolences.

Mark
by MSH
Mon Feb 23, 2015 11:56 pm
Forum: Patient Experience Forum
Topic: Hi my story
Replies: 15
Views: 14409

Re: Hi my story

Hello Graham, what desperate bad news so soon after going through a Whipples. You must be feeling pretty much on the floor at the moment. In a way I can relate to your decision as I was in the same position two years ago. I was told I had a 33% chance of responding and if I did I could get eleven mo...
by MSH
Sat Feb 21, 2015 1:36 pm
Forum: Patient Experience Forum
Topic: Symptoms
Replies: 41
Views: 42916

Re: Symptoms

Josi, for what it's worth I think it unlikely that your husband has PC. It's not impossible but his age and the duration of his symptoms would be points against. That said we all tend to think the worst and you need the results of the scan as soon as possible. I would tend to think the long reportin...
by MSH
Fri Feb 20, 2015 3:01 pm
Forum: Family, friends and carers
Topic: Husband just diagnosed at 36
Replies: 98
Views: 38286

Re: Husband just diagnosed at 36

So very sorry to learn of Jim's passing. He was far too young, life can be so unfair.

My condolences.

Mark
by MSH
Thu Feb 19, 2015 11:20 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 226335

Re: Carls story

Steve, Prof is an interventional radiologist. Point your insurers to this page.

(removed - moderators)
by MSH
Thu Feb 19, 2015 5:13 pm
Forum: Advanced pancreatic cancer
Topic: my husband of 2 weeks with weeks to live
Replies: 74
Views: 49951

Re: my husband of 2 weeks with weeks to live

Sorry to learn your news, you've really been through the mill in recent times. As you say this disease can be so cruel.

My condolences.
by MSH
Sun Feb 15, 2015 9:57 pm
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 213559

Re: Mum's diagnosis

Does anyone have any suggestions for wind?

Charcoal biscuits were the traditional remedy. More recently probiotics such as live yoghurt and lactobacillus capsules have been claimed to help.
by MSH
Tue Feb 03, 2015 3:01 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 122110

Re: My Journey So Far

Just a quick update after receiving excellent news today. I had a very good skiing holiday in Niederau Austria, as opposed to my wife who fell on the first run, twisted her knee and was unable to ski for the rest of the holiday. She then picked up a bad cold to round things off. I only had one fall ...
by MSH
Tue Feb 03, 2015 12:58 pm
Forum: Family, friends and carers
Topic: New member...
Replies: 22
Views: 16787

Re: New member...

Just to echo Julia, good luck with the treatment. There is a good chance of surgery after the chemo +/- chemoradiation, and it seems to be beneficial to have chemotherapy before surgery.

Best Wishes

Mark
by MSH
Mon Feb 02, 2015 9:44 pm
Forum: Treatment & side effects
Topic: port problems
Replies: 1
Views: 5990

Re: port problems

I am now on my second port, the first having been in for twelve months and have had no pain other than transitory stinging when any crusting has been wiped away. Both mine have been/are central lines which means there is a fair amount of tunnelling under the skin from the exit site. It may well be "...
by MSH
Sat Jan 31, 2015 4:22 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 300151

Re: So far so good!

Sounds like you're getting a good response to the chemo Steve, long may it continue.

Go to advanced search