Search found 228 matches

by MSH
Wed Jun 17, 2015 11:29 am
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 43841

Re: Newbie Diagnosis Rollercoaster

I hope it's good news tomorrow.
by MSH
Sat Jun 06, 2015 10:01 pm
Forum: Treatment & side effects
Topic: Statin Anyone?
Replies: 5
Views: 8888

Re: Statin Anyone?

Yes he gave me Simvastatin 40mgs to use "off licence". I'm waiting until I have my cholesterol checked before starting, to see what it does there, just for interest's sake. As you say it's worth trying, though it does seem that statins increase the risk of diabetes.
by MSH
Wed Jun 03, 2015 6:08 pm
Forum: Treatment & side effects
Topic: Statin Anyone?
Replies: 5
Views: 8888

Statin Anyone?

Very interesting reports stemming from the 2015 ASCO meeting, suggesting that statins may sometimes be as effective as chemotherapy. The benefit seems to be from slowing the progression rather than prevention. http://www.theguardian.com/society/2015/jun/03/statins-could-halve-risk-of-dying-from-canc...
by MSH
Mon Jun 01, 2015 7:53 pm
Forum: General chat
Topic: Just diagnosed, is it as good as they say?
Replies: 10
Views: 10302

Re: Just diagnosed, is it as good as they say?

Hi Anna, Your Mum's doctors most be pretty confident to give you such a good prognosis, let's hope this is bourn out. When you see the statistics you must separate out the majority of patients for whom surgery isn't an option, which leaves a group with a much better survival rate. If this is a total...
by MSH
Mon Jun 01, 2015 9:16 am
Forum: General chat
Topic: How long did original diagnosis take after CT scan?
Replies: 18
Views: 62921

Re: How long did original diagnosis take after CT scan?

Chris, I know very well that once you get something into your mind it can be difficult to shake off, and I don't wish to offend, but I don't think you are doing yourself any favours by coming to these forums. Some things are difficult to diagnose, others rule themselves out by exclusion. If you had ...
by MSH
Sat May 23, 2015 8:27 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 122011

Re: My Journey So Far

When I first saw my oncologist the course of treatment was pretty clear. A recent study had shown major survival benefits with Folfirinox over the then standard treatment of Gemcitabine, 11.1 months as opposed to 6.8months. Because the study had used a course of twelve treatments at two weekly cycle...
by MSH
Fri May 22, 2015 11:59 pm
Forum: Treatment & side effects
Topic: Side effects
Replies: 6
Views: 8316

Re: Side effects

Hi Loretta, You are doing really well to have come through major surgery and now to have chemo. Mouth ulcers are a very common side effect of this, and usually transitory. I remember having one or two with each cycle of my first round of chemo. If the soreness persists it's worth checking for thrush.
by MSH
Fri May 22, 2015 11:41 pm
Forum: Family, friends and carers
Topic: New member... wish I knew what was coming
Replies: 4
Views: 5910

Re: New member... wish I knew what was coming

Hi Penny, This is a really bad cancer to get, the prognosis is awful and as far as we know the only chance of a cure is from surgery. Sadly when most people are diagnosed this isn't possible. That leaves chemotherapy as the best form of treatment, but with this the aim isn't to cure but to ease the ...
by MSH
Wed May 20, 2015 8:21 am
Forum: General chat
Topic: Lessons from the New World.
Replies: 0
Views: 6527

Lessons from the New World.

Some right wing politicians have claimed that the money for healthcare has been protected in the recent austerity measures. It is true that the budget has been ring-fenced, but effectively has seen major cuts because of advances in medical technology and treatment and because of the ageing populatio...
by MSH
Wed May 20, 2015 7:38 am
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 43841

Re: Newbie Diagnosis Rollercoaster

I get my CA19-9 result within 24 hours, I expect the CEA would be similar. That said I suspect that waiting for this result is code for reviewing pathology, consulting with colleagues and generally making sure that surgery is the right option. Whipple's is major surgery and needs careful considerati...
by MSH
Sat Apr 11, 2015 4:22 pm
Forum: Family, friends and carers
Topic: Trevor's Story
Replies: 278
Views: 143483

Re: Trevor's Story

sandraW wrote: > it wasn't their fault that Trevor was unable > to stand the pain having it done under a local, and that they had tried. Yes it was. There shouldn't be any pain when a procedure is done under a local anaesthetic. Sometimes a little might be unavoidable, but if a procedure has to be a...
by MSH
Fri Apr 10, 2015 2:04 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 299817

Re: So far so good!

I didn't have my markers checked from Dec to May when having the Nanoknife in January, so I can't say for sure. I would have expected them to go down after perhaps a post treatment flare, as the tumour shrinks. Maybe whatever was causing the vomiting has increased the marker for a while. My best wis...
by MSH
Thu Apr 09, 2015 9:02 am
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 32096

Re: Roger's Story

Reminds me of my own story two years ago. Good luck with the Folfirinox, it can be very effective.

I don't think he needs to worry about the PICC line, I've had two central lines fitted and it's entirely painless, also they save a lot of needle probing during chemo.
by MSH
Wed Apr 08, 2015 1:08 pm
Forum: Patient Experience Forum
Topic: Chemo for new diagnosis
Replies: 17
Views: 15164

Re: Chemo for new diagnosis

Gemcitabine/Abraxane is an effective treatment for pancreatic cancer. It may not be curative but the objective is to extend life and ease symptoms. It is not quite as effective as Folfirinox in trials but less toxic. Of course trials give an overall picture and individuals differ. http://www.ncbi.nl...
by MSH
Mon Mar 30, 2015 1:04 pm
Forum: Patient Experience Forum
Topic: Chemo for new diagnosis
Replies: 17
Views: 15164

Re: Chemo for new diagnosis

Hi Valerie, you must be pretty devastated to have this come back after doing so well after the Whipples. I think there is an argument for starting treatment based on raised markers, but the fact that it's been 3 years before anything has shown on the scan suggests to me that it might be rather indol...

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