Search found 228 matches

by MSH
Thu Sep 17, 2015 4:02 pm
Forum: Advanced pancreatic cancer
Topic: So frightened for my Dad
Replies: 31
Views: 22897

Re: So frightened for my Dad

Hello Kate, I'm sorry to read of your news, it must be devastating for your family. You're right there are different types of pancreatic cancer. The majority are adenocarcinomas, but a proportion are neuroendocrine which are easier to treat. Then you can get uncommon types such as squamous cell. Wit...
by MSH
Mon Sep 07, 2015 3:16 pm
Forum: Patient Experience Forum
Topic: Newbie Diagnosis Rollercoaster
Replies: 50
Views: 43861

Re: Newbie Diagnosis Rollercoaster

That's great news, it must be a huge weight off your mind. I hope your recovery from surgery proceeds without further problems.

Mark
by MSH
Tue Aug 18, 2015 3:53 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 122102

Re: My Journey So Far

Given that we start from a bad place, and there aren't too many places worse than inoperable metastatic pancreatic carcinoma, in many respects I have been very fortunate. The disease has now responded on two occasions to chemotherapy giving me a good quality of life. The only symptom I have had, asi...
by MSH
Sat Aug 08, 2015 5:53 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 226295

Re: Carls story

Congratulations - Carl looks really well.
by MSH
Wed Aug 05, 2015 7:25 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 300118

Re: So far so good!

Sorry to hear that Steve. Still if the stent stops the sickness that's got to help, also the Gem/Abraxane combination can I am told be very effective. Let's hope the funding issues are sorted quickly.
by MSH
Wed Aug 05, 2015 10:10 am
Forum: General chat
Topic: Thought for the Day 4th August
Replies: 7
Views: 10084

Re: Thought for the Day 4th August

Didge, I take a very different view. I think one of the advantages of this disease is that it makes us face up to our own mortality. Something we all know but as you say tend not to think about. In the words of the good reverend "As he stares down the intimidating frame of death give him a richer se...
by MSH
Tue Aug 04, 2015 1:30 pm
Forum: General chat
Topic: Thought for the Day 4th August
Replies: 7
Views: 10084

Thought for the Day 4th August

I aren't at all religious but the Thought for the Day section from the Today program touched on pancreatic cancer and I think the described transfiguration is what we should all perhaps aim for.

http://www.bbc.co.uk/programmes/p02ys8b7
by MSH
Tue Aug 04, 2015 1:13 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 226295

Re: Carls story

Good to hear that Carl is so good and the Ca19 is so low, long may it continue.
by MSH
Fri Jul 31, 2015 7:26 pm
Forum: Family, friends and carers
Topic: Bad news
Replies: 107
Views: 38643

Re: Bad news

Sorry to learn of your sad news, my condolences.

I still miss cestrian too, he was always so positive.

Mark
by MSH
Tue Jul 28, 2015 9:04 am
Forum: Advanced pancreatic cancer
Topic: Gutted sister couldn't start her Chemo
Replies: 17
Views: 15591

Re: Gutted sister couldn't start her Chemo

Most drugs are metabolised in the liver, so if there is a problem as might be reflected in the blood by disordered liver function tests (LFTs) the body can't process them properly. This is particularly important with chemotherapeutic drugs. When I was first diagnosed I was jaundiced and had to wait ...
by MSH
Sat Jul 25, 2015 11:07 pm
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 108280

Re: frustrated

Are you able to discuss this with Steve? As Diane says the decision is really one for the patient rather than the next of kin. I would be angry if I thought someone had taken such an important decision behind my back. I have been thinking of getting a DNR recorded, the only thing stopping me is that...
by MSH
Thu Jul 02, 2015 9:02 am
Forum: Patient Experience Forum
Topic: Help with treatment regime - patient experience
Replies: 21
Views: 21390

Re: Help with treatment regime - patient experience

Hi Keith, I'm sorry that you find yourself here. Pancreatic cancer has a poor prognosis because it tends to spread early, and even if metastases aren't apparent it's best to assume that they're there and have chemotherapy. Gemcitabine/Abraxane is a relatively new combination which has been shown to ...
by MSH
Thu Jul 02, 2015 8:45 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 300118

Re: So far so good!

Good to hear things are going well, and enjoy your trip to Paris. I'm on a three weekly cycle myself and it's very useful having the extra week. Strictly speaking without oxaliplatin it's Folfiri. I'm sure we have much to learn about how best to use this regime.
by MSH
Tue Jun 23, 2015 12:04 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 226295

Re: Carls story

I hope you enjoyed your holiday, and great to hear that Carl has responded so well to his treatment. It gives hope to the rest of us.

Mark
by MSH
Sat Jun 20, 2015 10:28 am
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 213524

Re: Mum's diagnosis

It might be like a balloon angioplasty, but used to try and open a partially blocked stent.

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