Search found 228 matches

by MSH
Thu Mar 24, 2016 5:10 pm
Forum: Patient Experience Forum
Topic: Three years post-Whipple - issues/ideas
Replies: 17
Views: 24083

Re: Three years post-Whipple - issues/ideas

I can't say anything about Whipples but I found activated charcoal to be very helpful for bloating.
by MSH
Sun Mar 20, 2016 4:04 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 122091

Re: My Journey So Far

I had a very enjoyable week skiing in Val d'Isere. If anything there was too much snow, we got well over a metre when we were there, and at times conditions weren't too good. One day in particular I suffered after feeling my lack of fitness and anaemia, but in the main an excellent week. I was inter...
by MSH
Sun Mar 20, 2016 12:42 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 143129

Re: Thank you and our story... but we are not that far yet!

Hi L, Nausea and vomiting are a very common side of chemotherapy and can be difficult to control. Your father should keep his doctors informed. If the vomiting is persistent it could lead to biochemical effects much more likely to be prejudicial to the trial continuing. I take a multivitamin as my t...
by MSH
Tue Mar 15, 2016 4:29 pm
Forum: Treatment & side effects
Topic: White Blood Cell Count Low - advice for a newbie?
Replies: 9
Views: 15057

Re: White Blood Cell Count Low - advice for a newbie?

When you say 1.4 is that the figure for the WBC or the neutrophils? The latter are a component of the former and are often the limiting factor with chemo. Does your father have a stent? Low neutrophils can be dangerous particularly if a stent is present. I had an infection probably in the stent afte...
by MSH
Mon Mar 14, 2016 6:36 pm
Forum: Treatment & side effects
Topic: Abraxine, Germcitabine + MM-141 trial - worried wrong choice
Replies: 9
Views: 11863

Re: Abraxine, Germcitabine + MM-141 trial - worried wrong ch

We can only really know the implications of our decisions by looking back on them, and even then it's not always clear. With that proviso I would go with the conventional treatment, at least in the first instance. Folfirinox doesn't suit everyone but it can give many months of good quality life. The...
by MSH
Sat Mar 05, 2016 12:47 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 300084

Re: So far so good!

This place won't be quite the same.

RIP
by MSH
Wed Feb 10, 2016 10:36 am
Forum: Advanced pancreatic cancer
Topic: Totally in awe of my wonderful Husband!
Replies: 494
Views: 185144

Re: Totally in awe of my wonderful Husband!

Hi PW, It can be difficult reducing analgesia especially when it's been used over a long period. The general idea is to use the faster acting oral morphine as a top up if needed. If needed on a regular basis then the regular morphine would be increased. To downscale the regular morphine would be red...
by MSH
Thu Feb 04, 2016 3:55 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 122091

Re: My Journey So Far

I was brought up on a small farm and one of my abiding memories is the sheer bliss of merely being able to stand up after a period of back-breaking work. The lesson I took from this is that all things are relative. This was brought to mind last night because there are parallels with my current state...
by MSH
Wed Jan 13, 2016 10:54 am
Forum: Family, friends and carers
Topic: My Dads diagnosis
Replies: 106
Views: 41669

Re: My Dads diagnosis

Given that for most of us pancreatic cancer is a terminal condition, I think it would be unethical as well as untruthful for doctors to give any expectation of cure to anyone not having surgery. I also think it important to prepare psychologically for death, and to have the opportunity to influence ...
by MSH
Mon Dec 07, 2015 8:21 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 300084

Re: So far so good!

Steve, very sorry to learn of your news. Here's hoping you get a lot of quality time to enjoy with your family.
by MSH
Sat Nov 28, 2015 3:55 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 177070

Re: Mum of 42 recently diagnosed inoperable PC

As well as a bit of Creon I have taken a multivitamin from the start, as fat soluble vitamins can be tricky to absorb. I have also taken bitter melon capsules twice a day since reading this article in Carcinogenesis. http://carcin.oxfordjournals.org/content/early/2013/03/07/carcin.bgt081 I also now ...
by MSH
Sat Nov 28, 2015 1:00 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 177070

Re: Mum of 42 recently diagnosed inoperable PC

I'm very sorry to read your story. My best wishes for a good response to treatment. You'll need some chemo first, but it would be worth enquiring about treatment with the Nanoknife. This appears to be as successful as chemo but isn't yet established as on the NHS. That said there are centres where t...
by MSH
Fri Nov 20, 2015 9:47 am
Forum: Patient Experience Forum
Topic: Tracy's Story - Two Years......... And Counting!
Replies: 6
Views: 9537

Re: Tracy's Story - Two Years......... And Counting!

Good to hear that Tracy is doing so well, especially so as I'm about to start treatment with GemCap, or at least I will when my stent is fitted, hopefully next week.

Mark
by MSH
Fri Nov 13, 2015 9:57 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 122091

Re: My Journey So Far

After weeks of being careful with my diet it was something of a change to deliberately load up on the calories in a Melrose restaurant prior to my walk. Fortunately the weather was kind and I really enjoyed what was in effect a mini-adventure. Three hard walking days covering something over twenty m...
by MSH
Thu Sep 17, 2015 9:38 pm
Forum: General chat
Topic: Carl's on channel 4 news tonight re:abraxane
Replies: 4
Views: 8195

Re: Carl's on channel 4 news tonight re:abraxane

http://blogs.channel4.com/victoria-macdonald-on-health-and-social-care/astonishing-omission-nhs-spends-1-billion-cancer-drugs-checking-working/3121 Rather a negative report. It's difficult to see just how the benefits could be assessed outside the structure of a properly conducted trial, and it's ha...

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