Search found 954 matches

by J_T
Sun Jan 31, 2016 4:53 pm
Forum: Patient Experience Forum
Topic: My journey so far.
Replies: 33
Views: 37251

Re: My journey so far.

ps - look for the thread with same title as yours 'my journey so far' by MSH.

He has had nanoknife and takes bitter melon capsules/tablets. Lots of positivity on his thread.

Jx
by J_T
Sun Jan 31, 2016 4:50 pm
Forum: Patient Experience Forum
Topic: My journey so far.
Replies: 33
Views: 37251

Re: My journey so far.

Hi and welcome. After the initial awfulness of your symptoms you seem to be doing much better, hope that continues! As didge says you did get diagnosed quickly in terms of a pc diagnosis hopefully that will prove beneficial. Things to find out about Creon - enzyme replacement that help digest your f...
by J_T
Mon Jan 25, 2016 11:56 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 207597

Re: Mum of 42 recently diagnosed inoperable PC

Fantastic positive update Ruth, keep it up!

Enjoy Spain!

Julia x
by J_T
Thu Jan 14, 2016 9:56 pm
Forum: General chat
Topic: Radio interview
Replies: 13
Views: 11428

Re: Radio interview

this is good Leila, be sure to post the link here when it's on.

There was a small item on the news tonight about PCRF's new tissue bank.

Did you know Alan Rickman died of pc? :(
by J_T
Tue Jan 12, 2016 9:54 am
Forum: Patient Experience Forum
Topic: Massive surgery twice in 12 months
Replies: 12
Views: 14913

Re: Massive surgery twice in 12 months

Hello Sheila and welcome to the forum, it certainly proved a lifeline for me when my husband was ill. Sorry to hear William's diagnosis and he certainly seems to have been through it! I suppose he would be considered 'lucky' to be able to have surgery but we know just what a massive undertaking that...
by J_T
Sat Jan 09, 2016 1:45 pm
Forum: Family, friends and carers
Topic: My Dads diagnosis
Replies: 106
Views: 46310

Re: My Dads diagnosis

I find totally unacceptable. We had those conversations but in the privacy of our own home. I cared for Ray at home with the help of DNs and Macmillan. It was our GP who broached the end of life subject. Of course it was difficult but she was excellent in her approach. We did have an occasion when a...
by J_T
Sat Jan 02, 2016 11:32 am
Forum: Family, friends and carers
Topic: Our Story
Replies: 33
Views: 22699

Re: Our Story

Don't EVER let the thought that our loved ones 'gave up' cross your minds. They don't. They do their damnedest to stay around with their families. There comes a time though, of acceptance of their situation. I am in awe of them. Never mind coping with the vile disease they have, we have no idea of t...
by J_T
Mon Dec 07, 2015 3:48 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 332178

Re: So far so good!

Sending lots of love to you Steve and Margaret and the girls.

Hoping you have a good Christmas and get some quality family time.

Thinking of you all.

Much love
Julia x
by J_T
Thu Nov 19, 2015 4:56 pm
Forum: General chat
Topic: This looks very promising
Replies: 0
Views: 7254

This looks very promising

Pancreatic cancer treatment 'breakthrough' - Ulster University

http://www.bbc.co.uk/news/uk-northern-ireland-34839453
by J_T
Fri Nov 13, 2015 11:42 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 132814

Re: My Journey So Far

Hello Mark, your trip sounds amazing! I know you felt, quite some time ago, that your first stent had 'disappeared' somehow, so time now for refitting! Get it done as soon as, that skin irritation can drive you nuts, it did Ray! Sounds like on the whole you are still faring quite well. I hope with a...
by J_T
Wed Nov 11, 2015 9:43 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 258494

Re: Carls story

Sorry to hear of Carl's latest struggles but I know you will both be doing your utmost to get him back on an even keel for more of the Prof's magic!

Always checking in to read your updates.

Much love to you both.

Julia x
by J_T
Sat Oct 17, 2015 3:01 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 258494

Re: Carls story

Yes, what sandra said!

We always talk about roller coaster journeys but by gum, Carl has certainly been up and down. Fingers crossed the Prof can sort out what's occurring when he gets back.

Love to you both
Julia x
by J_T
Sun Oct 11, 2015 3:46 pm
Forum: General chat
Topic: Does this mean people can sign up for trials for AMD3100 ?
Replies: 2
Views: 8419

Re: Does this mean people can sign up for trials for AMD3100

Looks very interesting Jon, thank you for sharing.

Julia
by J_T
Thu Oct 01, 2015 4:49 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 258494

Re: Carls story

Good to hear from you Rob. Hope the meeting goes well and you can get some definitive answers on where you are up to.

All the best
Julia x
by J_T
Thu Oct 01, 2015 4:48 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 332178

Re: So far so good!

Steve, good to hear things are better and you are eating well and the Abraxane side effects are minimal.

I'm sure you'll get that NY break!

KBO

Julia x

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