Search found 954 matches

by J_T
Sat Mar 26, 2016 3:21 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 332913

Re: So far so good!

You're dad was amazing. He will be sorely missed.

Much love to you all.

Julia xxx
by J_T
Mon Mar 21, 2016 11:03 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 132999

Re: My Journey So Far

Once again Mark, great to hear so much positivity from you. What fantastic holidays you are having and long may it continue, think I need to get booking something myself! Good to hear you can go ahead with Nanoknife sooner than later. Your treatments and therapies have worked so well for you! Hope y...
by J_T
Tue Mar 15, 2016 5:19 pm
Forum: General chat
Topic: Walking the Courses
Replies: 2
Views: 8521

Re: Walking the Courses

Well done didge, I've been following on Facebook x
by J_T
Sun Mar 06, 2016 1:22 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 332913

Re: So far so good!

The world (and this forum) has lost one heck of a man.

My deepest condolences to you all. Steve will be sorely missed.

With love
Julia x
by J_T
Fri Mar 04, 2016 11:12 pm
Forum: Coping with loss/ Memorial
Topic: Slewis7313
Replies: 10
Views: 20794

Re: Slewis7313

Oh goodness, so, so sad to hear this news.

RIP the lovely Steve

xxx
by J_T
Fri Mar 04, 2016 6:22 pm
Forum: Coping with loss/ Memorial
Topic: The loss of Mum!
Replies: 19
Views: 33444

Re: The loss of Mum!

Two and half years on, I still think about it all. Plus the coulda, shoulda, wouldas. Not everyday obviously but I don't think something like this leaves you very easily, if ever.

Much love.

Julia x
by J_T
Thu Mar 03, 2016 9:28 pm
Forum: Advanced pancreatic cancer
Topic: Totally in awe of my wonderful Husband!
Replies: 494
Views: 225395

Re: Totally in awe of my wonderful Husband!

Hi Proudwife, the only way to know if Creon needed is to do a faecal elastase test. When Ray was ill our oncologist told us several times Ray didn't need Creon. Armed with information from Jeni and Dianne we pushed for the test and guess what? He needed Creon! Creon can't do any damage and will prob...
by J_T
Mon Feb 22, 2016 12:51 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 258869

Re: Carls story

Blimey Carl and Rob, your lives certainly ain't dull! I guess it's been an exhausting three years for both you.

It all looks very positive and so pleased about that. Good luck with the ablation. Keep fighting the demon together, you're a great team.

Lots of love
Julia x
by J_T
Sat Feb 20, 2016 2:36 pm
Forum: Advanced pancreatic cancer
Topic: John panicking
Replies: 9
Views: 13471

Re: John panicking

hi, talking candidly with his Macmillan nurse might help. They are gentle and good at getting people to talk. He may get upset but I think it would help, it certainly helped my husband. Even if he doesn't want to open up she may come up with some good strategies to help him.

Good luck.

Julia
by J_T
Fri Feb 12, 2016 6:32 pm
Forum: General chat
Topic: Positive thinking
Replies: 11
Views: 12367

Re: Positive thinking

Absolutely and utterly agree Wife&Mum, couldn't have put it better myself.
by J_T
Fri Feb 12, 2016 1:41 am
Forum: Patient Experience Forum
Topic: My journey so far.
Replies: 33
Views: 37288

Re: My journey so far.

Good news JED, hope it continues. You can always email Prof at xxx re Nanoknife. I don't actually know what the criteria is either. You may as well research it with the people in the know and know your options. Maybe with more shrinkage it could become a possibility. Nothing ventured, nothing gained...
by J_T
Sun Feb 07, 2016 2:43 pm
Forum: Advanced pancreatic cancer
Topic: From inoperable to Whipple
Replies: 12
Views: 15315

Re: From inoperable to Whipple

very excellent news and so hopeful for others. Thank goodness you pursued further options and surgeons!

stmfst, I wouldn't wait until Monday week, I would start make noises now!

good luck with it.

Julia x
by J_T
Fri Feb 05, 2016 1:32 am
Forum: Family, friends and carers
Topic: frustrated
Replies: 361
Views: 122646

Re: frustrated

Sheena you are doing so well looking after Steve. I know how hard it is to watch your man suffering and to hear them say such things, we can only give them love and support so keep on doing what you're doing.

Nights can be the worst time, I'm sending you a virtual hug. Hang in there.

Julia x
by J_T
Thu Feb 04, 2016 8:42 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 132999

Re: My Journey So Far

Yes Mark, what Jeni said! A-MAZING!

I have already pointed a new member in the direction of your thread as it's so positive. Keep us up to speed with the possibility of a second zapping of Nanoknife, that would be brilliant.

Have a fabulous holiday.

Very best wishes to you and your family.

Julia x
by J_T
Mon Feb 01, 2016 3:59 pm
Forum: Patient Experience Forum
Topic: My convoluted diagnostic thread
Replies: 58
Views: 86443

Re: My convoluted diagnostic thread

You need to get the faecal elastase test. It's the only way to know for sure you need Creon. Insist on it. My husband's oncologist was convinced he didn't need Creon but said he was happy to do the test. We prevaricated for a few weeks because we thought our onc would be right, then he had it. He ne...

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