Search found 788 matches

by Cathy
Thu Jan 15, 2015 10:13 pm
Forum: Treatment & side effects
Topic: Abraxane -our experiences so far
Replies: 243
Views: 100237

Re: Abraxane -our experiences so far

Good to hear from you Nikki and that Paul is still doing well.

Long may that continue!!!!!

Cathy xx
by Cathy
Thu Jan 15, 2015 10:09 pm
Forum: Family, friends and carers
Topic: Trevor's Story
Replies: 278
Views: 143051

Re: Trevor's Story

Hi Sandra Glad Trevor is feeling pretty good. Just for info, when Jonathan was to go back onto treatment (he'd been on folfironox) he was offered gemcitabine as a second line but the Onc agreed (after I'd asked) to offer Gemcap instead. Saying that, I believe that gemcitabine can be very effective f...
by Cathy
Thu Jan 15, 2015 10:03 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 298513

Re: So far so good!

Hi Steve Your experience is exactly the same as Jonathan. His neuropathy worsened for a while even after chemo had stopped. His chemo stopped in May and I think it finally started to improve (after getting worse) in about Sept/Oct. it affected his arms and legs. Hope this offers some reassurance bef...
by Cathy
Sun Jan 11, 2015 7:29 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 224854

Re: Carls story

Hi Rob Have come onto the forum for the first time in a little while and wanted to look up how the scan had gone. I'm sorry that the tumour has popped up. I had a horrible feeling when you mentioned right shoulder pain. Jonathan was told by his oncologist that this was a referred pain from his liver...
by Cathy
Sun Jan 11, 2015 7:16 pm
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 126445

Re: Wish someone would help him

Hi Leila

Well, I know tumour markers aren't an exact science.. they can be raised by other things too (an infection for example) but let's hope once chemo starts it will be reduced again quickly.

Take care

Cathy xxx
by Cathy
Sun Jan 11, 2015 6:44 pm
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 121634

Re: My Journey So Far

Nice to hear from you Mark and great news that you feel pretty good (and especially not needing pain killers).

Have a great holiday and keep onwards and upwards (in more ways than one!)

Best wishes

Cathy xxx
by Cathy
Fri Jan 09, 2015 9:34 pm
Forum: Family, friends and carers
Topic: suspected blood clot
Replies: 5
Views: 3932

Re: suspected blood clot

Hi Hannie Unfortunately blood clotting is a side effect of both PC and chemo. My partner was on Clexane. It was a pain (more for him than me of course) but it became part of our routine and I used to do the injections and it soon became part of our daily life. I wouldn't worry about it too much at t...
by Cathy
Fri Jan 09, 2015 9:20 pm
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 126445

Re: Wish someone would help him

You're doing a great job too Leila

It's a hard job caring for someone but I'm sure your Dad is proud

Cathy xxx
by Cathy
Fri Jan 09, 2015 9:15 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 298513

Re: So far so good!

Have the most fantastic holiday Steve.

Look forward to seeing you when you return

Cathy xxxx
by Cathy
Wed Dec 24, 2014 3:10 pm
Forum: Family, friends and carers
Topic: My 41 years old husband has inoperable pancreatic cancer
Replies: 162
Views: 58884

Re: My 41 years old husband has inoperable pancreatic cancer

Hi Susanna I am so glad that you seem to have good support around you and that your Dad is there to help with the boys. I wish I could wave a wand and make things better but I'm afraid I can't. All I can say is to take any help or support offered you and to ignore people who tell you what you should...
by Cathy
Tue Dec 23, 2014 10:03 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 224854

Re: Carls story

Hi Rob So sorry to be replying just now. How are things? Its difficult to give great advice in as much as Carl isn't Jonathan as we don't know what is causing Carl's pain. Jonathan's was a referred pain we think, nothing to do with his shoulder. Anyhow, what used to work for a while was a good back ...
by Cathy
Mon Dec 22, 2014 12:27 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 298513

Re: So far so good!

Hi Steve

We (Jonathan) had this experience.

Dropped oxalyplatin but neuropathy continued (and got worse) for a while after. Drove Jonthan nuts but it did get better. He started playing guitar again! It was lovely :)

Xxx
by Cathy
Sun Dec 21, 2014 10:57 am
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 224854

Re: Carls story

Dear Rob, Yes, why do these things happen around Christmas!? It is probably of no help but I know exactly how you will be feeling. And don't feel guilty for "letting your guard down". While Carl was feeling well of course you will want to get on with having as normal a life as possible and I'm sure ...
by Cathy
Sun Dec 21, 2014 10:46 am
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 126445

Re: Wish someone would help him

Hi Leila I am so sorry that the disease has progressed a little. It is a good sign that your Dad is well enough still to restart chemo. Jonathan's last cycle of folfironox had the oxalyplatin dropped. Don't worry about flushing the line and disconnecting the pump. I used to do this and it really is ...
by Cathy
Sun Dec 21, 2014 9:05 am
Forum: General chat
Topic: Christmas Wishes
Replies: 12
Views: 8980

Re: Christmas Wishes

Thank you. I am now facing my first Christmas without my beautiful Jonathan. Just typing those words makes me realise how very raw this all still feels. Jonathan died January this year and so 2014 has been a very different kind of year for me. However, not all bad. I have met, through the charity an...

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