Search found 157 matches

by karen17
Sun Sep 15, 2013 10:18 am
Forum: Family, friends and carers
Topic: Folfirinox started on Wednesday and other stuff
Replies: 241
Views: 100831

Re: Folfirinox started on Wednesday and other stuff

Cathy - I will be thinking of you tomorrow and hope to see good news
Julia - Hope your weekend is going along ok and Ray is feeling a bit better. Sending a big virtual hug to you
Karen xxx
Ps - Actually hugs to everyone
by karen17
Sat Sep 14, 2013 10:26 pm
Forum: Family, friends and carers
Topic: Folfirinox started on Wednesday and other stuff
Replies: 241
Views: 100831

Re: Folfirinox started on Wednesday and other stuff

Hi NIkki I agree that 3 HV's is strange indeed as there are not that many of us. Also strange is that I had a part time student over 2 years and during that first year she lost a close family member to PC within 4 months of diagnosis. So in her 2nd year with me when bob began 2 get symptoms it was j...
by karen17
Sat Sep 14, 2013 9:38 am
Forum: Family, friends and carers
Topic: Folfirinox started on Wednesday and other stuff
Replies: 241
Views: 100831

Re: Folfirinox started on Wednesday and other stuff

Hi girls, Julia I'm sure that Ray will be so much more comfortable with a syringe driver and hope he starts to perk up. You will have fantastic support from the district nurses and will build up a great relationship with them. They are usually so good at lifting spirits and will be just invaluable. ...
by karen17
Sat Sep 14, 2013 9:17 am
Forum: General chat
Topic: Planning Chemo in Prep for Surgery
Replies: 74
Views: 42842

Re: Planning Chemo in Prep for Surgery

Hi Sarah, So pleased mum is home and also relieved you will be going to {name removed - moderator} as I was aware there is little knowledge of folfirinox at {name removed - moderator}. We ended up in {name removed - moderator} a couple of times ourselves when Bob became pyrexial and I would have to ...
by karen17
Wed Sep 11, 2013 11:07 pm
Forum: Family, friends and carers
Topic: Pancreatic cancer or bile duct cancer?
Replies: 41
Views: 23383

Re: Pancreatic cancer or bile duct cancer?

Hi Hilary
Like the rest of the "forum family" I am so saddened 2 hear your sad news and hope you have a good support network around you.
Sending a virtual hug
Karen xxx
by karen17
Sun Sep 08, 2013 8:56 am
Forum: Family, friends and carers
Topic: Folfirinox started on Wednesday and other stuff
Replies: 241
Views: 100831

Re: Folfirinox started on Wednesday and other stuff

Hi Julia, Just seen your post and realised that Ray is not feeling great. I'm really sorry to hear that and hope that he gathers some strength soon. So pleased for all of you that he does not appear to have much pain because that is just so draining. Hope he managed to enjoy his birthday ( happy bel...
by karen17
Sun Sep 08, 2013 8:49 am
Forum: General chat
Topic: Planning Chemo in Prep for Surgery
Replies: 74
Views: 42842

Re: Planning Chemo in Prep for Surgery

Hi Ladies, I'm still here, still reading your posts, still thinking of you all - just not much time to post myself. Sarah I'm so pleased you seem to have got the folfirinox sorted out - twice weekly would have been far too much! Keep fighting for your mum and try not to focus on statistics as we are...
by karen17
Fri Sep 06, 2013 8:55 am
Forum: General chat
Topic: Planning Chemo in Prep for Surgery
Replies: 74
Views: 42842

Re: Planning Chemo in Prep for Surgery

Hi Sarah - lovely to hear some good news and as I'm always saying never be afraid to post good news. Is mum going to the same hospital as us? We have not made London or work! Bob is still in hospital as an infection appears to have set in but unsure as to where. Pain is not controlled even though ha...
by karen17
Tue Sep 03, 2013 10:57 pm
Forum: Advanced pancreatic cancer
Topic: my lovely dad
Replies: 75
Views: 38686

Re: my lovely dad

Oh Petra,
That is just so beautiful and moving. Sitting here now with tears streaming down my face.
Like Cathy said you were so brave to be able to manage to read this at the funeral. Your dad would have been proudly looking down on you.
Take care
Karen xxx
by karen17
Mon Sep 02, 2013 7:09 pm
Forum: General chat
Topic: Planning Chemo in Prep for Surgery
Replies: 74
Views: 42842

Re: "Borderline" Suitable for Op

Thank you all for your kind words and just a quick update. Today Bob appears to be perking up again. Pain seems to be resolving and they talk of removing the biliary drain this evening so obviously we do all produce that amount of bile. He has been up and about, hopefully will be discharged Wednesda...
by karen17
Sun Sep 01, 2013 10:24 pm
Forum: General chat
Topic: Planning Chemo in Prep for Surgery
Replies: 74
Views: 42842

Re: "Borderline" Suitable for Op

Hi Ladies, Have not posted again for a while due to recent events. So sorry to hear of your car crash Sarah, "it never rains but pours" springs to mind! Keeping fingers crossed for Jonathons next scan Cathy and please never feel bad about posting how well he is doing. Pleased Bee had good holidays a...
by karen17
Thu Aug 29, 2013 10:58 am
Forum: Family, friends and carers
Topic: Pancreatic cancer hereditary ?
Replies: 13
Views: 10509

Re: Pancreatic cancer hereditary ?

That's interesting Linda, I was not aware of a DNA test for PC. I have read somewhere that if you have a first degree family member with PC then you are at risk and I guess if more than one relative then definitely so. When we had an appointment with the consultant he said he suspected Bob's was gen...
by karen17
Tue Aug 27, 2013 9:48 pm
Forum: Family, friends and carers
Topic: Nanoknife and stents
Replies: 7
Views: 5006

Re: Nanoknife and stents

Thank you Dianne for calling me today and contacting Professor secretary. Really appreciated
Karen
by karen17
Mon Aug 26, 2013 6:20 pm
Forum: Family, friends and carers
Topic: Nanoknife and stents
Replies: 7
Views: 5006

Re: Nanoknife and stents

Thank you for your information Cathy and Carole. Will contact Professor secretary tomorrow. Good to hear Clive is improving day by day Carole
Karen xx
by karen17
Mon Aug 26, 2013 6:15 pm
Forum: General chat
Topic: Planning Chemo in Prep for Surgery
Replies: 74
Views: 42842

Re: "Borderline" Suitable for Op

Hi Sarah, I think your local Dr will be just fine. You need to take every opportunity you can and only you as a family can drive things forward as a priority as you will just be one of many to your Dr. We have always be encouraged to get second opinions. Good luck with the consultation and try to en...

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