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by Slewis7313
Sun Mar 24, 2013 12:29 pm
Forum: Patient Experience Forum
Topic: felt sick before I even started...
Replies: 18
Views: 16433

Re: felt sick before I even started...

Sorry to hear you are suffering so much with this Linda. Whilst it may perhaps not be relevant to you, my induction nurse advised me to avoid Rennie's whilst on chemo. I can't remember exactly why, but she said if I needed anything of this kind I should use gaviscon. I assume you we given a list of ...
by Slewis7313
Sat Mar 23, 2013 11:52 am
Forum: Patient Experience Forum
Topic: felt sick before I even started...
Replies: 18
Views: 16433

Re: felt sick before I even started...

Hi again Linda, this is exactly what happened to me on Wednesday (not for the first time). Apparently the doctor had not signed off my bloods as ok in time for the pharmacy to prepare the chemo so I sat for 30 minutes with the 'flush' before my medication arrived which was very cold as it was straig...
by Slewis7313
Sat Mar 23, 2013 11:44 am
Forum: Patient Experience Forum
Topic: Slight set back...
Replies: 2
Views: 5641

Re: Slight set back...

Hi Linda, they are not always forthcoming with information are they. Whilst they may not be concerned, it would still be good for them to share the information at the time. That said, I certainly noticed a difference by the end of the first cycle, so what they are saying about the chemo effects woul...
by Slewis7313
Thu Mar 21, 2013 6:46 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 323289

Re: So far so good!

Thanks Deb, I'll update the thread as soon as I have something back from the Hospital.

Steve
by Slewis7313
Wed Mar 20, 2013 10:42 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 323289

Re: So far so good!

I have been called for a CT scan on Monday. We will now see if my good feelings are reflected in the size (and position) of that damned thing inside me. Once I have the results, I will also be taking them for a second (private) opinion. No issue with what is being done so far, but just keeping the o...
by Slewis7313
Sat Mar 16, 2013 8:59 am
Forum: Patient Experience Forum
Topic: Diagnosed December 2nd & still waiting for help
Replies: 23
Views: 17702

Re: Diagnosed December 2nd & still waiting for help

Hi Linda, I was contemplating all the positive messages on my thread and in particular from you. The penny then dropped that I had not fully read your threads, but now have. To be honest I feel a little guilty as I now see that you have had a real fight to get to the point of finally being treated. ...
by Slewis7313
Wed Mar 13, 2013 12:18 am
Forum: Patient Experience Forum
Topic: Driving License...donate Pancreas?
Replies: 5
Views: 8105

Re: Driving License...donate Pancreas?

I had also wondered about (the apparent lack of) this option for PC sufferers. It again seems to reinforce what a complex and difficult Illness this is!

And to think, 3 months ago I had no idea what the pancreas was / did!
by Slewis7313
Tue Mar 12, 2013 8:01 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 323289

Re: So far so good!

Thanks Deb. I have been concentrating on trying to put more weight on with some success. It is really useful to know that it should stay constant once measured up for radiotherapy, so I will keep a close eye on it. I actually weigh every day and add the detail to a diary which I have maintained from...
by Slewis7313
Tue Mar 12, 2013 3:34 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 323289

Re: So far so good!

Thinking back, probably one of the most significant things for me ( though i did not realise it at the time) was the initial consultation with my GP. We were new to the area and I had taken up sea rowing and living at the top of a hill meant even more exercise. My symptoms were constant indigestion ...
by Slewis7313
Mon Mar 11, 2013 10:46 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 323289

Re: So far so good!

Thanks all for the amazing words of support. I've checked out the Manchester clinic which looks really interesting. It will certainly be an option if I hit a brick wall. However, tomorrow's chemo has been deferred by one day to allow me to have a kidney test as a pre-requisite for radiotherapy. Also...
by Slewis7313
Sat Mar 09, 2013 7:07 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 323289

Re: So far so good!

Just for information, my name is Steve, I live in Swansea and consider myself to be a young 58 year old.
by Slewis7313
Sat Mar 09, 2013 12:54 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 323289

Re: So far so good!

Why oh why did I not post here earlier? Just 'speaking' to one person in the same boat as me is good. I too have arranged for a second opinion after my next CT scan as I know the NHS has limited resources and I may be able to draw on private health insurance (though it is sad that I even need to con...
by Slewis7313
Sat Mar 09, 2013 11:09 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 323289

So far so good!

I was diagnosed with PC on 4th December 2012. It was at that time inoperable as it intimately involves blood vessels and the surgeon commented that there is only a slim chance that treatment would change the situation as far as surgery went. I immediately started on CREONS and my weight loss (2.5 st...

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