Search found 688 matches

by Slewis7313
Thu Mar 26, 2015 10:52 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 322007

Re: So far so good!

Thanks all for the supportive comments. Leila, I eat pretty much what I want. I have chronic diarrhea as a result of nerve damage from the operation in Germany. I take 4 Codeine and 6 Imodium every day which makes the diarrhea manageable. Before I started with Codeine, I found myself going to the lo...
by Slewis7313
Thu Mar 26, 2015 2:04 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 322007

Re: So far so good!

Met my Oncologist this morning, with the main topic being the results of my Liver MRI scan last week. It appears to be good news as the spots in my Liver have all but dissappeared (either no longer visible or less than 1/2cm). This is just what we need for Professor to focus on the primary site for ...
by Slewis7313
Thu Mar 26, 2015 7:41 am
Forum: General chat
Topic: South East Wales Support Group
Replies: 6
Views: 6492

Re: South East Wales Support Group

It really is scarey that people are met with such vastly differing levels of support and advice. In all fairness, Jeni did the groundwork with this, but I was certainly able to reassure them by simply being there 2 years post-diagnosis.

Steve
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by Slewis7313
Wed Mar 25, 2015 3:11 pm
Forum: General chat
Topic: South East Wales Support Group
Replies: 6
Views: 6492

Re: South East Wales Support Group

There was actually a very good turnout, though I had nothing to do with the organisation. Jeni and Debbie attended to represent PCUK. It turned out to be very interesting as I met a 74 year old gentleman who had been recently diagnosed. He was obviously very fit, but had been told that chemo would b...
by Slewis7313
Mon Mar 23, 2015 9:34 pm
Forum: General chat
Topic: South East Wales Support Group
Replies: 6
Views: 6492

South East Wales Support Group

Tomorrow is the first Support Group meeting in Newport (Gwent). Venue is St Davids Hospice, Malpas. Timings are 10:30 to 14:30. This has been advertised on FaceBook, but I thought I'd publicise it here as well.

Steve
by Slewis7313
Sat Mar 21, 2015 8:45 pm
Forum: Advanced pancreatic cancer
Topic: Mouth ulcers
Replies: 15
Views: 11660

Re: Mouth ulcers

Didge, Cyberknife is used within the NHS. This link may be of interest:

http://www.royalmarsden.nhs.uk/diagnosi ... knife.aspx

Steve
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by Slewis7313
Sat Mar 21, 2015 4:39 pm
Forum: Advanced pancreatic cancer
Topic: Mouth ulcers
Replies: 15
Views: 11660

Re: Mouth ulcers

Hi Didge, I have not had any issues with ulcers so can't help. By targeted Radiothetapy, do they perhaps mean Cyberknife? It is quite new, but apparently very effective.

Steve
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by Slewis7313
Fri Mar 20, 2015 11:47 am
Forum: Advanced pancreatic cancer
Topic: How much longer?
Replies: 18
Views: 14717

Re: How much longer?

So sorry to hear you have lost your dear Dad Sarah.

Take care

Steve
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by Slewis7313
Wed Mar 18, 2015 10:31 pm
Forum: Advanced pancreatic cancer
Topic: How much longer?
Replies: 18
Views: 14717

Re: How much longer?

So sorry to hear you have lost your dear Dad Sarah. Glad though that it was a peaceful end.

Thinking of you.

Steve
X
by Slewis7313
Wed Mar 18, 2015 8:25 am
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 252736

Re: Carls story

A bit of good news for you both. Not for the first time 'what a rollercoaster'!

Steve
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by Slewis7313
Wed Mar 18, 2015 8:23 am
Forum: Family, friends and carers
Topic: Trevor's Story
Replies: 278
Views: 151379

Re: Trevor's Story

Sandra, sorry that Trevor is struggling so much at the moment. Good that the scan was done promptly, and as you say with your experience, you knew pretty much what was coming. The stent should hopefully change the situation quickly and allow you to look at the next step. It is difficult as a relativ...
by Slewis7313
Wed Mar 18, 2015 8:12 am
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 230484

Re: Mum's diagnosis

Sue, sorry to see both you and your Mum are having such a hard time. The runaround you were given for the medication sounds almost unbelieveable and obviously cost you time you would preferred to have had with your Mum. I hope it has the desired results and helps your Mum pick up. Good also that wor...
by Slewis7313
Wed Mar 18, 2015 8:07 am
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 252736

Re: Carls story

Rob, this must be so frustrating after the confusion with the recent visit to Professor, but potentially good news regarding the illusive tumour. I hope Carl can get an appointment soon and give you both some clarity as to what is going on. As you say, it is a never-ending fight.

Take care

Steve
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by Slewis7313
Wed Mar 11, 2015 2:12 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 322007

Re: So far so good!

Another interesting day in the Chemo Unit. It is cycle 18, but my script had me down to receive Oxaliplatin even though we removed it from my regime in November. My Oncologist is on Holiday and they struggled so much to find a Consultant to sign off the amendment to remove the Oxaliplatin that they ...
by Slewis7313
Wed Mar 11, 2015 10:14 am
Forum: Treatment & side effects
Topic: Abraxane -our experiences so far
Replies: 243
Views: 107238

Re: Abraxane -our experiences so far

Nikki, It sounds as if the funeral was something special. You and the girls were brave to stand up and talk about your dear Paul, it is so difficult with all the emotions involved. Having people across the whole spectrum of Paul's support team turn up on the day must have been an indication that Pau...

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