Search found 688 matches

by Slewis7313
Wed May 13, 2015 10:54 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 340621

Re: So far so good!

Thanks again for your comments and support. I had wondered about breaking my thread down into sub-sections to make it more manageable, but for reasons I do not fully understand I have been allowed to fight this thing off for a long time and thought it might helpful to leave it as it is. This makes m...
by Slewis7313
Wed May 13, 2015 10:33 am
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 146796

Re: Wish someone would help him

Leila, I lost my Mam in October and it is still difficult to believe she is not there and how many things we did which involved her. If we are passing in the car, I still find myself thinking I'll go and have a cup of tea with her. As you say, this must be a hundred times more difficult as you spent...
by Slewis7313
Wed May 13, 2015 10:22 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 340621

Re: So far so good!

Sitting in the Chemo Unit waiting for the Pharmacy to do their magic. My Tumour Marker has doubled to 1382, but this was expected after last week's NanoKnife. I'm fully recovered from last weeks's procedure, with only a small bruise on the upper belly. I guess for now it's 'watch this space'!

Steve
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by Slewis7313
Mon May 11, 2015 10:28 pm
Forum: Family, friends and carers
Topic: Trevor's Story
Replies: 278
Views: 157781

Re: Trevor's Story

Sandra, it sounds like the perfect 'send off', if somewhat unusual. It also sounds like it was well choreographed with appropriate props. The fact that words were said by family members of all ages sounds like a nice touch. He was obviously much loved and must have had a great sense of humour. I am ...
by Slewis7313
Thu May 07, 2015 4:20 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 340621

Re: So far so good!

After popping in to see the lovely folk at PCUK on Tuesday in their offices, Margaret, Holly and I headed for our Hotel to hopefully get some decent sleep before my NanoKnife procedure yesterday. After being admitted at 10:00, we were fully briefed on the options (based on what the CT scan would sho...
by Slewis7313
Mon May 04, 2015 10:11 am
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 340621

Re: So far so good!

Well.....it is finally about to happen. I am travelling to London tomorrow to undergo Nanoknife on Wednesday with Professor. Failing any last minute hitches, I will be admitted at 10:00 on Wednesday, to be zapped at 14:30 and released at 11:00 on Thursday. I will try and document the experience to b...
by Slewis7313
Mon May 04, 2015 9:58 am
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 146796

Re: Wish someone would help him

Leila, Just wiped the tears away long enough to respond. I will be thinking of you tomorrow and am sure it will be an amazing celebration of your Dad's life. The words are perfect as is the choice of music.... Hotel California is one of my favourites (has to be played really loud though!). I am trav...
by Slewis7313
Sat May 02, 2015 1:12 pm
Forum: Family, friends and carers
Topic: Mum's diagnosis
Replies: 650
Views: 245237

Re: Mum's diagnosis

Great to hear that your Mum continues to do well. I am sure the goals will spur her on even more!

Steve
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by Slewis7313
Sat May 02, 2015 1:03 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 263023

Re: Carls story

Excellent news Rob. I have been following Carl's blog for some time with great interest.....he tells a good tale! So envious of the cruise which I am sure you will enjoy immemsely after the trials and tribulations of Pancreatic Cancer. If all goes well with me over the next few months, we hope to do...
by Slewis7313
Sun Apr 26, 2015 11:18 pm
Forum: Treatment & side effects
Topic: Affects of Folfirinox
Replies: 5
Views: 9359

Re: Affects of Folfirinox

This does affect different people in different ways Sue, with (for me and others) the first few treatments being the worst. My initial problem was sickness and understanding what was causing it. Mine was down to 'delayed gastric emptying' (Gastroparesis), where the food sits in the stomach for up to...
by Slewis7313
Sun Apr 26, 2015 3:17 pm
Forum: Family, friends and carers
Topic: Trevor's Story
Replies: 278
Views: 157781

Re: Trevor's Story

Dear Sandra, I am so very sorry to hear of Trevor's passing. You both put up a long and sustained fight against this damned illness.... It is just so relentless and unforgiving. It has been a bad few weeks here for yourself and others, but my thoughts remain with you over the next days and weeks as ...
by Slewis7313
Fri Apr 24, 2015 12:59 pm
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 146796

Re: Wish someone would help him

Dearest Leila, I am so sorry to hear that your lovely Dad is gone. Whilst it is good to hear that he did not suffer, your own pain must be immense. I will continue to think about you a lot and hope you have some support through this very difficult time.


Lots of love
Steve
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by Slewis7313
Wed Apr 22, 2015 5:51 pm
Forum: Patient Experience Forum
Topic: So far so good!
Replies: 767
Views: 340621

Re: So far so good!

Thanks all for the comments. I started cycle 20 today and all went reasonably quickly (09:15 to 15:30). A bit of good news today was that the rapid marker increase seems to have slowed down. My last reading was 609 two weeks ago (a doubling from the previous result), but today's has only risen to 63...
by Slewis7313
Wed Apr 22, 2015 5:03 pm
Forum: Family, friends and carers
Topic: Roger's Story
Replies: 73
Views: 36454

Re: Roger's Story

Hi Sue, good to see the chemo has started. Delays are unfortunately not unusual as there are a number of things that have to come together on treatment days, the most common being the Pharmacists being given the go-ahead from the Doctor's to manufacture the chemo. That said, 09:45 to 19:00 sounds ex...
by Slewis7313
Mon Apr 20, 2015 9:50 am
Forum: Family, friends and carers
Topic: Wish someone would help him
Replies: 428
Views: 146796

Re: Wish someone would help him

Leila, your Dad really is fortunate to have such a wonderful Daughter who has fought for him through thick and thin. It sounds like you and he have good support at this difficult time and that the final stage of this journey should be peaceful.

Thinking of you both as ever.

Steve
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