Pancreatic Cancer UK

A couple of developments here in Wales. The CT scan showed the Liver to be clear and the original site to be the same size, though the mass could contain harmless scar tissue as the result of Nanoknife. Apparently, none of the scans can reliably show what is scar tissue. The scan also showed a const...

Apologies all round for my lack of activity here. Now I am back on 2 weekly Folfirinox (still minus Exoliplatin) I find myself very fatigued for the whole cycle. I am meeting my Oncologist on 9th, so will discuss the possibility of going back onto a 3 weekly regime. I had a CT scan on Monday and wil...

This is directed at the Nurses, but there may be some experience out there amongst your good selves. I am struggling to hold my weight, so have been prescribed Prosource nutritional supplements to help. Should I adjust my Ceon intake when using this supplement?

Steve

How ridiculous this sounds Sheena! I have only had one biopsy in the early days which came back as inconclusive. However, the Multi-Disciplinary Team looked at all information and decided it was behaving like cancer, so would be treated as such and decided to start chemo i mediately. There was never...

Nat, so very sorry to hear your Mum has succumbed to this damned thing.

Steve
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Didge, I am like everone else here so sorry to hear about the latest update. I hope the Fox will help and give you both a little more time. Also glad to hear that the pain is under control. The Hospices are amazing places and will no doubt offer additional advice and assistance. You are such a great...

Hi Lin, sorry not to have commented earlier, but the advice given to you seems rather surprising. Did the Nurses have any thoughts on the 'no chemo' comments from your specialist. The majority of inoperable diagnosies relate to blood vessel involvement (as is the case with me). I was however given i...

Sue, sorry to hear your Mum is struggling. Whilst not as bad, I have been sick a fair bit over the last month which invarably has lead to a weight loss. I still have a bit of flab left, so it is not such a worry, though Margaret is very concerned about it. As a result, my Oncologist referred me to t...

Thanks for the comments Sue, the team at the Hospital will look after you totally. It was not an unpleasant experience at all, other than some discomfort in the evening after the procedure which was managed well by the very attentive Nursing staff. I felt fully recovered by the time I was discharged...

Now on cycle 23 of 'The Fox'. So far ok and the Tumour Marker has dropped from 1328 to 1188. Not sure if it is down to the increased frequency of chemo and/or NanoKnife, but the important thing is that it is going down. I have a CT scan in around 3 weeks to see what effect the NanoKnife has had, so ...

Were your discussions with your GP fruitful Mark? It would seem there is nothing to be lost in trying this one!?

Steve

Thanks Didge, I have emailed my Oncologist and asked to discuss this at my next review on 4th June.

Steve
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The Swansea Support Group meets again this Thursday (28th) from 10:30 to 12:00 at Maggies, Singleton Hospital. Hope to see you there!

Steve
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Thanks Leila, hope you are doing OK.

Steve
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Just a quick post regarding PICC Line flushing. This has become quite difficult, with appointments simply not happening and occasionally not all supplies available. As a result, Margaret has now been given permission (and training) to do all future flushes herself. We have agreed that as soon as we ...