Search found 188 matches

by susikus
Thu Nov 08, 2012 9:41 am
Forum: Family, friends and carers
Topic: I'm back
Replies: 4
Views: 3863

Re: I'm back

Good to see you back Lynbo! I feel like a newcomer still (though I do seem to have posted a lot!) and I found reading your posts very helpful. My husband Pete was diagnosed in August this year and died 2 weeks ago. It is his funeral tomorrow. This site has been a lifeline to me and I intend to stick...
by susikus
Sun Nov 04, 2012 4:32 pm
Forum: Treatment & side effects
Topic: Gastroparesis bewilderment!!
Replies: 5
Views: 12887

Re: Gastroparesis bewilderment!!

It does look like your mum's team have thought of everything they can - I thought they must have - I can't imagine they would stop searching for an answer. Interesting that she was on mirtazapine and came off it - here is what I found on another wikipedia page: "Antagonism of the 5-HT3 receptor, an ...
by susikus
Sun Nov 04, 2012 4:20 pm
Forum: Advanced pancreatic cancer
Topic: 24/7 its non stop since diagnosis
Replies: 33
Views: 20610

Re: 24/7 its non stop since diagnosis

Keep going Jools, you're doing a wonderful job. Bill is very lucky to have you in his corner. Lots of love, Sue, xxx
by susikus
Sun Nov 04, 2012 4:17 pm
Forum: Advanced pancreatic cancer
Topic: Living day by day
Replies: 35
Views: 20006

Re: Living day by day

Ooh I've done a lot of cleaning this weekend - and goodness me the house needed it - but finally the tears have caught up with me - it was reading the birthday card Pete gave to me a little over a month ago that did it - and that induced a need to stop cleaning and come and talk to all of you. My bi...
by susikus
Sat Nov 03, 2012 7:27 am
Forum: Treatment & side effects
Topic: Gastroparesis bewilderment!!
Replies: 5
Views: 12887

Re: Gastroparesis bewilderment!!

Hi Lis, I am sorry to hear about your mum. I don't have any answers for you but more questions really - ideas for you to check that everyone has thought of - these may all already have been done, it's hard to think they wouldn't have. Has your mum been scanned to see if there is any suggestion of du...
by susikus
Fri Nov 02, 2012 7:28 am
Forum: Advanced pancreatic cancer
Topic: Living day by day
Replies: 35
Views: 20006

Re: Living day by day

It seems hard to believe Pete has been gone over a week. Tonight will be my first night alone in the house - with my lovely dogs for company - and I'm quite looking forward to it. Funeral plans are all coming along nicely - Pete would have been amazed at how many people are coming - it will be stand...
by susikus
Fri Nov 02, 2012 7:06 am
Forum: Advanced pancreatic cancer
Topic: Recently diagnosed!
Replies: 33
Views: 22208

Re: Recently diagnosed!

This is a wonderful community because we are all facing an awful disease, that many others just do not understand. Together we will achieve more and support each other, whatever happens. Good luck Sue, I shall be very interested to hear, xxx
by susikus
Fri Nov 02, 2012 7:01 am
Forum: Advanced pancreatic cancer
Topic: No bed available at hospital for gastric bypass!!!
Replies: 204
Views: 97953

Re: No bed available at hospital for gastric bypass!!!

Yes it's next week. The last week has flown by so it will soon be here. Good luck with the chemo Paul. Our experience was that extra antiemetics were needed at chemo time - don't just take the usual, add in extra and what worked really well was odantsetron. Lots of love and hugs to you, Sue, xxx
by susikus
Thu Nov 01, 2012 7:49 am
Forum: Advanced pancreatic cancer
Topic: 24/7 its non stop since diagnosis
Replies: 33
Views: 20610

Re: 24/7 its non stop since diagnosis

Hugs Jools, am thinking of you and sending you virtual hugs. Let us know when you can how things are going - you will be feeling very busy right now. Lots of love, Sue, xxx
by susikus
Thu Nov 01, 2012 7:47 am
Forum: Advanced pancreatic cancer
Topic: Recently diagnosed!
Replies: 33
Views: 22208

Re: Recently diagnosed!

Hallo Sue, another Sue here. I will be very interested to hear how you get on with your nanoknife enquiries. We had started investigating but it was too late. One thing I did learn, that I now feel must be more widely known, is that nanoknife is incompatible with metal stents. And metal stents are t...
by susikus
Thu Nov 01, 2012 7:36 am
Forum: Advanced pancreatic cancer
Topic: Another 'newbie'
Replies: 35
Views: 21120

Re: Another 'newbie'

You are doing wonderfully well Lulu. I went to chemo with my dad for 10months and it was there that we had some of the best times and conversations (he had prostate cancer) and the consultant wrote to me after he died and said what a pleasure it had been to look after us. My husband only had two che...
by susikus
Mon Oct 29, 2012 6:16 am
Forum: Advanced pancreatic cancer
Topic: my friend wendy
Replies: 23
Views: 13721

Re: my friend wendy

I am sending you my condolences and love Laura. You have been a wonderful friend to Wendy. She is at peace now. RIP Wendy.
with love, Sue
by susikus
Sun Oct 28, 2012 6:56 am
Forum: News archive
Topic: New treatment with high sucess- please read
Replies: 18
Views: 33739

Re: New treatment with high sucess- please read

I am sure you don't need to me to tell you that I didn't ask any of the questions that I was going to. I am very interested though in nanoknife because it seems to me to be the only real glimmer of hope of a future treatment pathway that does more than the little on offer today. I am going to write ...
by susikus
Sun Oct 28, 2012 6:46 am
Forum: Advanced pancreatic cancer
Topic: 24/7 its non stop since diagnosis
Replies: 33
Views: 20610

Re: 24/7 its non stop since diagnosis

Lovely to get an update on how Bill is doing, thank you Jools. Isn't it amazing how pc causes so many different symptoms - none of our stories are the same despite having much in common. I am so glad Bill is home again. Enjoy the snow! And don't worry about the toes - they'll do their own thing and ...
by susikus
Sun Oct 28, 2012 6:39 am
Forum: Advanced pancreatic cancer
Topic: Another 'newbie'
Replies: 35
Views: 21120

Re: Another 'newbie'

I am so pleased to see you posting Lulu and Jacqui, not pleased that you need to at all, but given the situation you find yourselves in you won't find a better place to ask questions and find support from people who really do understand what is happening to you and your loved ones. Lulu, you asked a...

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