Search found 297 matches

by PCUK Nurse Dianne
Thu Nov 10, 2016 5:01 pm
Forum: Coping with loss/ Memorial
Topic: Forum Threads II
Replies: 18
Views: 29640

Re: Forum Threads II

Thanks Ladies for your responses, and I do hope my response will answer some of the points that have been raised. Our forum guidelines are set within a framework of best practice for forums and it’s users. Best practice ensures providing a safe environment to those using and also viewing the forum, ...
by PCUK Nurse Dianne
Thu Sep 15, 2016 12:56 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337288

Re: Thanks for sharing your experiences . . .

Dear Mo, Thinking of you today on what is a very difficult day. I do apologise that I have only just caught up with your thread and the dilemma you must be facing. I appreciate that at this time of the day you will have had some input and/or made some decisions. Mo please feel free to be in touch so...
by PCUK Nurse Dianne
Wed Sep 14, 2016 5:13 pm
Forum: Coping with loss/ Memorial
Topic: Carrying On
Replies: 77
Views: 94271

Re: Carrying On

Dear Marmalade, Sad and wise words. There is no right or wrong, you have to go with your heart and do as you feel is right for you. These are difficult days and you have been such a wonderful generous soul in caring for Louis and those wonderful friends on the forum, we all feel for you in these lon...
by PCUK Nurse Dianne
Thu Sep 01, 2016 11:57 am
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 150065

Re: Thank you and our story... but we are not that far yet!

Thanks Ladies for your input on the issues of neuropathy. I came across an interesting article some months ago when investigating some alternative treatments for a support caller and this information may be of interest to you. This was in relationship to diabetic neuropathy, as you may know this is ...
by PCUK Nurse Dianne
Fri Aug 19, 2016 6:05 pm
Forum: Advanced pancreatic cancer
Topic: Struggling with it all
Replies: 59
Views: 71281

Re: Struggling with it all

Dear Judith, We are sorry to hear your sad news of Mark's passing. Please do accept our sincerest and heartfelt condolences at this sad time. It is warming to know that this amazing forum family 'dig deep' to support you. It was also lovely to hear that you found peace and respite in the wonderful h...
by PCUK Nurse Dianne
Fri Aug 19, 2016 5:58 pm
Forum: Family, friends and carers
Topic: Our Journey without chemo
Replies: 261
Views: 91308

Re: Our Journey without chemo

Dear Marmalade, I know Jeni has sent our thoughts and heartfelt sympathies to you and Suzie at this time. As all of us who 'share' this forum are aware, this is a 'tough' disease to say the least, and we hear so often from many of you who struggle endlessly throughout. Marmalade I also wanted to say...
by PCUK Nurse Dianne
Tue Aug 02, 2016 3:52 pm
Forum: Patient Experience Forum
Topic: Success with Folfirinox?
Replies: 16
Views: 24013

Re: Success with Folfirinox?

Hi Hayley, I note you have had some great answers from other forum family members which is excellent. I also thought it might be helpful to hear some perspectives that we do experience here on the support service. There are mixed results from patients with respect to both Folfirinox and Gem/Abraxane...
by PCUK Nurse Dianne
Tue Aug 02, 2016 1:19 pm
Forum: Family, friends and carers
Topic: 6 weeks!
Replies: 14
Views: 11104

Re: 6 weeks!

Dear Hillbill, I am sorry to hear of your sudden loss, and please accept our sincerest condolences on behalf of the nursing team at Pancreatic Cancer UK. I am sure this is a very sad and difficult time at present, however please do feel free to be in touch again at any time should you have any quest...
by PCUK Nurse Dianne
Tue Aug 02, 2016 12:20 pm
Forum: Treatment & side effects
Topic: Sore and dry Mouth - Best way to deal with it ?
Replies: 7
Views: 18144

Re: Sore and dry Mouth - Best way to deal with it ?

HI Burke21, I hope I may be able to help with some information re the dry mouth. There may be several reasons for this, for example is it due to some of the treatment you may be having currently? If having chemotherapy, the effects of this may cause you to have oral thrush, which can be very painful...
by PCUK Nurse Dianne
Tue Aug 02, 2016 11:52 am
Forum: Family, friends and carers
Topic: Our Journey without chemo
Replies: 261
Views: 91308

Re: Our Journey without chemo

Dear Marmalade, Thinking of you at this time in your life. Thank you for sharing such amazing courage and sentiment with your 'forum family', I know others will gain from your strength. Thinking of you all at this time, may Louis be peaceful. With all our thoughts, Pancreatic cancer nurses, Support ...
by PCUK Nurse Dianne
Thu Jun 30, 2016 5:26 pm
Forum: Advanced pancreatic cancer
Topic: Totally in awe of my wonderful Husband!
Replies: 494
Views: 209044

Re: Totally in awe of my wonderful Husband!

Dear PW, Thank you for sharing your beautiful story of a very difficult day I am sure. As others will be in contact, you know many are thinking of you, and of course you know from a nursing support perspective we are here for you into the future as you need. There will be difficult days/weeks and mo...
by PCUK Nurse Dianne
Thu Jun 30, 2016 1:14 pm
Forum: Advanced pancreatic cancer
Topic: Struggling with it all
Replies: 59
Views: 71281

Re: Struggling with it all

HI Judith, Thank you for taking the time to share your story, and sorry to hear these are such difficult days. As others have suggested, it is good to hear your husband is taking Creon, and it may be that this dose needs review, certainly some of the symptoms are similar to insufficient dose of panc...
by PCUK Nurse Dianne
Thu Jun 16, 2016 5:46 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 150065

Re: Thank you and our story... but we are not that far yet!

Thanks Dandygal, Thank you for your comprehensive list of Dad's meds and I do hope I can provide some solution here for you and that may also be helpful for others reading this. Fluoxetine I believe is well known for causing taste disturbances, we have evidence of this from some other patients and o...
by PCUK Nurse Dianne
Wed Jun 15, 2016 3:53 pm
Forum: Family, friends and carers
Topic: Benign or malignant tumor?
Replies: 3
Views: 7175

Re: Benign or malignant tumor?

Hi bubble, Welcome to the forum and thank you for posing some interesting questions. I am sorry to hear this is a difficult time with some conflicting results. It might be helpful if I respond to you in person as it may help to ask some questions and have further information. I will email you in per...
by PCUK Nurse Dianne
Wed Jun 15, 2016 12:47 pm
Forum: Advanced pancreatic cancer
Topic: How much time?
Replies: 15
Views: 23735

Re: How much time?

Hi Louise, Welcome to the forum, and I am sorry to hear of your experience so far, and also your mother in law's diagnosis. I am sure as you have already found this is a very supportive place to be and some wonderful 'forum members' who will be there for you in the coming period. I will email you se...

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