Search found 58 matches

by AnneD
Tue Apr 03, 2012 6:34 pm
Forum: Treatment & side effects
Topic: faecal incontinence
Replies: 8
Views: 11810

Re: faecal incontinence

Not nice to talk about I know! I can only say what has helped me in the past, which is: Don't eat much ( or any ) fat the day before the walk; Take a dihydrocodeine or other opiate tablet the night before and/or in the morning to slow down peristalsis. We went walking last week in Suffolk and I was ...
by AnneD
Fri Mar 30, 2012 10:17 pm
Forum: Advanced pancreatic cancer
Topic: Devastated
Replies: 22
Views: 13885

Re: Devastated

Dear Bec,
I'm so sorry to hear your dreadful news,
it all seems to have happened so quickly.
Sincere condolences to you and your son at this sad time.
Anne
by AnneD
Fri Mar 23, 2012 9:53 am
Forum: Treatment & side effects
Topic: First bluebell?
Replies: 2
Views: 5442

Re: First bluebell?

Haven't seen any flowers yet - the leaves are all up and we keep looking.
You beat us to it and we're down south!
by AnneD
Thu Mar 22, 2012 10:44 pm
Forum: Treatment & side effects
Topic: Advice and Information on possible Whipples
Replies: 8
Views: 17607

Re: Advice and Information on possible Whipples

Hello Jim, I'm pleased to see that your chemotherapy seems to have made you a possible candidate for surgery. I had a Whipple's procedure in December 2010 and since I had had a distal pancreatectomy in April 2009 it was a completion pancreatectomy - in other words I have no pancreas. As a result of ...
by AnneD
Sat Mar 17, 2012 11:24 pm
Forum: Treatment & side effects
Topic: How much Creon?
Replies: 3
Views: 8136

Re: How much Creon?

Hello Sue, I had a Whipple's in December 2010 and had already had a distal pancreatectomy so now have no pancreas. I use the 10,000 unit Creon capsules. I take a maximum of seven with a meal and two or three with a snack. This adds up to 15-20 a day. You must take the Creon with your food and the re...
by AnneD
Fri Mar 02, 2012 11:30 pm
Forum: Family, friends and carers
Topic: My husbands pancreatic cancer situation
Replies: 67
Views: 66909

Re: My husbands pancreatic cancer situation

Hi Sooty and Laura, I don't think there is a 4,000 capsule so it's more likely to be the 40,000 capsules. I use the 10,000 unit capsules and take up to seven with a meal and just two or three with a snack. Seven is 70,000 which is almost the same as Brian's 75,000. I've always liked the lower dose c...
by AnneD
Thu Feb 23, 2012 11:11 pm
Forum: Treatment & side effects
Topic: There is life after Whipple!
Replies: 6
Views: 9133

Re: There is life after Whipple!

Hi suef, Yes there certainly can be life after a Whipple. Well done for walking the Hadrian's Wall Path. I had a Whipple in December 2010 following a distal pancreatectomy the year before. Now, with no pancreas at all, I have a good life and although I haven't walked as far as you, not in one go, an...
by AnneD
Wed Feb 22, 2012 10:44 pm
Forum: Family, friends and carers
Topic: my wife
Replies: 45
Views: 22704

Re: my wife

Dear Drew,
I'm so sorry to hear the news about Heather.
Heartfelt sympathies to you and your family at this sad time.
Anne
by AnneD
Mon Feb 20, 2012 11:25 pm
Forum: General chat
Topic: vitamin D defficiency
Replies: 2
Views: 5433

Re: vitamin D defficiency

Hi dmc, There is some information here: http://www.cancer.gov/cancertopics/factsheet/prevention/vitamin-D#q8 ( Point 10 ) but apparently the evidence from two studies is conflicting. One says that people with higher levels of vitamin D have a lower risk of pancreatic cancer, the other shows no effec...
by AnneD
Thu Feb 16, 2012 11:12 pm
Forum: General chat
Topic: Re: New booklet for people newly diagnosed
Replies: 4
Views: 5804

Re: New booklet for people newly diagnosed

Mike, I think you need to contact support@pancreaticcancer.org.uk

if you would like to be put in touch with someone.

Anne
by AnneD
Thu Feb 16, 2012 9:25 am
Forum: General chat
Topic: Re: New booklet for people newly diagnosed
Replies: 4
Views: 5804

Re: New booklet for people newly diagnosed

Hello Mike,
I'm glad to see you have joined this forum, too.
You will get lots of help and advice on here and it is
always encouraging to read other people's stories.
Best wishes,
Anne
by AnneD
Wed Feb 01, 2012 10:31 pm
Forum: Treatment & side effects
Topic: Laproscopic Whipples
Replies: 7
Views: 9156

Re: Laproscopic Whipples

I had my Whipple's at the xx which has an amazing team of surgeons.
It wasn't laparoscopic but I understand the xx does carry out the laparoscopic procedure.

This is worth looking at:

http://www.royalfree.nhs.uk/default.asp ... ews_id=774

Anne
by AnneD
Tue Jan 31, 2012 8:51 am
Forum: General chat
Topic: spyglass test
Replies: 19
Views: 16900

Re: spyglass test

Hi dmc,
I have just been reading about the "Spyglass Test" at:

https://www.sphcs.org/TechnologiesSpyglass

It sounds great - non-invasive and not requiring X-rays.

Anne
by AnneD
Sat Jan 21, 2012 11:21 pm
Forum: Patient Experience Forum
Topic: IPMN
Replies: 32
Views: 30564

Re: IPMN

Hello dmc, I used to find with my IPMN that I didn't need Creon all the time. A pattern developed like this: 1. I would have pain and steatorrhoea which indicated that the mucus produced by the tumour was blocking the main duct and pancreatic enzymes weren't entering the duodenum. I would take Creon...
by AnneD
Wed Jan 11, 2012 9:17 am
Forum: Patient Experience Forum
Topic: IPMN
Replies: 32
Views: 30564

Re: IPMN

Hello dmc236, I'm sorry to hear that you have a suspected IPMN. After seven years of pancreatitis with no obvious cause, it was discovered I had an IPMN in the tail of my pancreas. This was removed along with the distal pancreas and spleen in April 2009. Unfortunately, after about a year, I develope...

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