Search found 58 matches
- Tue Apr 03, 2012 6:34 pm
- Forum: Treatment & side effects
- Topic: faecal incontinence
- Replies: 8
- Views: 12467
Re: faecal incontinence
Not nice to talk about I know! I can only say what has helped me in the past, which is: Don't eat much ( or any ) fat the day before the walk; Take a dihydrocodeine or other opiate tablet the night before and/or in the morning to slow down peristalsis. We went walking last week in Suffolk and I was ...
- Fri Mar 30, 2012 10:17 pm
- Forum: Advanced pancreatic cancer
- Topic: Devastated
- Replies: 22
- Views: 15194
Re: Devastated
Dear Bec,
I'm so sorry to hear your dreadful news,
it all seems to have happened so quickly.
Sincere condolences to you and your son at this sad time.
Anne
I'm so sorry to hear your dreadful news,
it all seems to have happened so quickly.
Sincere condolences to you and your son at this sad time.
Anne
- Fri Mar 23, 2012 9:53 am
- Forum: Treatment & side effects
- Topic: First bluebell?
- Replies: 2
- Views: 5770
Re: First bluebell?
Haven't seen any flowers yet - the leaves are all up and we keep looking.
You beat us to it and we're down south!
You beat us to it and we're down south!
- Thu Mar 22, 2012 10:44 pm
- Forum: Treatment & side effects
- Topic: Advice and Information on possible Whipples
- Replies: 8
- Views: 18557
Re: Advice and Information on possible Whipples
Hello Jim, I'm pleased to see that your chemotherapy seems to have made you a possible candidate for surgery. I had a Whipple's procedure in December 2010 and since I had had a distal pancreatectomy in April 2009 it was a completion pancreatectomy - in other words I have no pancreas. As a result of ...
- Sat Mar 17, 2012 11:24 pm
- Forum: Treatment & side effects
- Topic: How much Creon?
- Replies: 3
- Views: 8594
Re: How much Creon?
Hello Sue, I had a Whipple's in December 2010 and had already had a distal pancreatectomy so now have no pancreas. I use the 10,000 unit Creon capsules. I take a maximum of seven with a meal and two or three with a snack. This adds up to 15-20 a day. You must take the Creon with your food and the re...
- Fri Mar 02, 2012 11:30 pm
- Forum: Family, friends and carers
- Topic: My husbands pancreatic cancer situation
- Replies: 67
- Views: 69992
Re: My husbands pancreatic cancer situation
Hi Sooty and Laura, I don't think there is a 4,000 capsule so it's more likely to be the 40,000 capsules. I use the 10,000 unit capsules and take up to seven with a meal and just two or three with a snack. Seven is 70,000 which is almost the same as Brian's 75,000. I've always liked the lower dose c...
- Thu Feb 23, 2012 11:11 pm
- Forum: Treatment & side effects
- Topic: There is life after Whipple!
- Replies: 6
- Views: 9606
Re: There is life after Whipple!
Hi suef, Yes there certainly can be life after a Whipple. Well done for walking the Hadrian's Wall Path. I had a Whipple in December 2010 following a distal pancreatectomy the year before. Now, with no pancreas at all, I have a good life and although I haven't walked as far as you, not in one go, an...
- Wed Feb 22, 2012 10:44 pm
- Forum: Family, friends and carers
- Topic: my wife
- Replies: 45
- Views: 24893
Re: my wife
Dear Drew,
I'm so sorry to hear the news about Heather.
Heartfelt sympathies to you and your family at this sad time.
Anne
I'm so sorry to hear the news about Heather.
Heartfelt sympathies to you and your family at this sad time.
Anne
- Mon Feb 20, 2012 11:25 pm
- Forum: General chat
- Topic: vitamin D defficiency
- Replies: 2
- Views: 5768
Re: vitamin D defficiency
Hi dmc, There is some information here: http://www.cancer.gov/cancertopics/factsheet/prevention/vitamin-D#q8 ( Point 10 ) but apparently the evidence from two studies is conflicting. One says that people with higher levels of vitamin D have a lower risk of pancreatic cancer, the other shows no effec...
- Thu Feb 16, 2012 11:12 pm
- Forum: General chat
- Topic: Re: New booklet for people newly diagnosed
- Replies: 4
- Views: 6172
Re: New booklet for people newly diagnosed
Mike, I think you need to contact support@pancreaticcancer.org.uk
if you would like to be put in touch with someone.
Anne
if you would like to be put in touch with someone.
Anne
- Thu Feb 16, 2012 9:25 am
- Forum: General chat
- Topic: Re: New booklet for people newly diagnosed
- Replies: 4
- Views: 6172
Re: New booklet for people newly diagnosed
Hello Mike,
I'm glad to see you have joined this forum, too.
You will get lots of help and advice on here and it is
always encouraging to read other people's stories.
Best wishes,
Anne
I'm glad to see you have joined this forum, too.
You will get lots of help and advice on here and it is
always encouraging to read other people's stories.
Best wishes,
Anne
- Wed Feb 01, 2012 10:31 pm
- Forum: Treatment & side effects
- Topic: Laproscopic Whipples
- Replies: 7
- Views: 9727
Re: Laproscopic Whipples
I had my Whipple's at the xx which has an amazing team of surgeons.
It wasn't laparoscopic but I understand the xx does carry out the laparoscopic procedure.
This is worth looking at:
http://www.royalfree.nhs.uk/default.asp ... ews_id=774
Anne
It wasn't laparoscopic but I understand the xx does carry out the laparoscopic procedure.
This is worth looking at:
http://www.royalfree.nhs.uk/default.asp ... ews_id=774
Anne
- Tue Jan 31, 2012 8:51 am
- Forum: General chat
- Topic: spyglass test
- Replies: 19
- Views: 18230
Re: spyglass test
Hi dmc,
I have just been reading about the "Spyglass Test" at:
https://www.sphcs.org/TechnologiesSpyglass
It sounds great - non-invasive and not requiring X-rays.
Anne
I have just been reading about the "Spyglass Test" at:
https://www.sphcs.org/TechnologiesSpyglass
It sounds great - non-invasive and not requiring X-rays.
Anne
- Sat Jan 21, 2012 11:21 pm
- Forum: Patient Experience Forum
- Topic: IPMN
- Replies: 32
- Views: 32506
Re: IPMN
Hello dmc, I used to find with my IPMN that I didn't need Creon all the time. A pattern developed like this: 1. I would have pain and steatorrhoea which indicated that the mucus produced by the tumour was blocking the main duct and pancreatic enzymes weren't entering the duodenum. I would take Creon...
- Wed Jan 11, 2012 9:17 am
- Forum: Patient Experience Forum
- Topic: IPMN
- Replies: 32
- Views: 32506
Re: IPMN
Hello dmc236, I'm sorry to hear that you have a suspected IPMN. After seven years of pancreatitis with no obvious cause, it was discovered I had an IPMN in the tail of my pancreas. This was removed along with the distal pancreas and spleen in April 2009. Unfortunately, after about a year, I develope...