Search found 103 matches

by suef
Fri Mar 23, 2012 7:59 am
Forum: Treatment & side effects
Topic: First bluebell?
Replies: 2
Views: 5442

First bluebell?

As I was wandering round my garden yesterday evening, trying to digest a sausage roll that I had rather unwisely decided to have for tea, and wondering how many more Creon I would need to digest it, I saw the first bluebell this year! Very early for here in north east England, and it lightened my he...
by suef
Wed Mar 21, 2012 3:43 pm
Forum: Treatment & side effects
Topic: Whipple Procedure.................
Replies: 24
Views: 27978

Re: Whipple Procedure.................

Dear Gill, Here is some more positive news. I had a Whipple 2 years ago to remove a tumour from the head of my pancreas. The tumour turned out to be non-cancerous, for which I am truly grateful. I spent 3 weeks in hospital, and another 3 weeks convalescing at home before going away on holiday. In Se...
by suef
Mon Mar 19, 2012 9:35 pm
Forum: Treatment & side effects
Topic: How much Creon?
Replies: 3
Views: 8135

Re: How much Creon?

Dear Laura & Anne,

Thank you very much for your advice. I will let you know how I get on.

All the best,

Suef
by suef
Sun Mar 18, 2012 12:50 pm
Forum: Family, friends and carers
Topic: Losing my mum to PC
Replies: 20
Views: 17167

Re: Losing my mum to PC

Dear Gem,

I am so very sorry to hear your sad news and send you my sincere condolences. It must be particularly hard for you, today being Mothers' Day. I am glad you have such good memories of your mother, and that she was able to pass away at home with her loved ones around her.

Much love,

Sue F
by suef
Sat Mar 17, 2012 8:38 pm
Forum: Treatment & side effects
Topic: How much Creon?
Replies: 3
Views: 8135

How much Creon?

Does anybody have advice on how many Creon to take? I had a Whipple in February 2010, in Belgium, and based on a faecal elastase test, was advised to take 15-20 Creon Forte (25,000 units) a day, before and during each of six small meals. Now, back in England, my new consultant has said I certainly d...
by suef
Sun Mar 04, 2012 8:52 am
Forum: Family, friends and carers
Topic: My Dad
Replies: 67
Views: 32727

Re: My Dad

Dear Gill & Steve, I'm so glad your dad is making progress, hope he can be home soon. Must be so hard for your mother at her age. Dear Alison, I also get a lot of support from this website, there is so much information on these pages, and real, practical experience from people who have been through ...
by suef
Tue Feb 28, 2012 10:29 pm
Forum: Family, friends and carers
Topic: My husbands pancreatic cancer situation
Replies: 67
Views: 66908

Re: My husbands pancreatic cancer situation

Dear Sooty, What a difficult situation for you both, but it is so good that your husband has already survived over two months longer than expected by his doctors and he seems to have lots of energy for walks. May I suggest that you call the Pancreatic Cancer support line on 020 3535 7099. They were ...
by suef
Sun Feb 26, 2012 8:31 am
Forum: Patient Experience Forum
Topic: Lack of Vitamin D
Replies: 3
Views: 8486

Lack of Vitamin D

I had a Whipple in February 2010 and ever since I have had problems absorbing Vitamin D. Every blood test shows that my Vitamin D level is 19 and it should be 30. Under 20 is critical. As lack of this vitamin affects bones, and as I already have arthritis, I would like to have supplements, but my GP...
by suef
Fri Feb 24, 2012 8:52 am
Forum: Treatment & side effects
Topic: There is life after Whipple!
Replies: 6
Views: 9133

Re: There is life after Whipple!

Lovely to hear these stories. I have to admit that life is not all roses, I still get dreadful diarrhea occasionally and that was my main fear on the Walk, despite taking 15-20 Creon a day and being careful with food. But on the whole life is great and I consider myself really lucky
by suef
Thu Feb 23, 2012 7:24 pm
Forum: News archive
Topic: Early stage US trial shows promise for new treatment
Replies: 2
Views: 9533

Re: Early stage US trial shows promise for new treatment

That sounds like great news. I wonder if those trials will be replicated in the UK.
by suef
Thu Feb 23, 2012 7:18 pm
Forum: Treatment & side effects
Topic: There is life after Whipple!
Replies: 6
Views: 9133

There is life after Whipple!

I had a Whipple in February 2010 because of a tumour on my pancreas. My hobby before that was walking, and I never thought I would have the strength to get back to it. But in September 2011, together with a very patient friend, I did most of the Hadrian's Wall path, did around 80 miles over 10 days,...
by suef
Tue Jul 06, 2010 7:13 pm
Forum: Treatment & side effects
Topic: Continuing care after Whipple
Replies: 2
Views: 7035

Re: Continuing care after Whipple

Dear Vee,

Thank you very much for this very useful information, I really appreciate your help!

Best wishes,

Sue
by suef
Wed Jun 30, 2010 7:47 pm
Forum: Treatment & side effects
Topic: Continuing care after Whipple
Replies: 2
Views: 7035

Continuing care after Whipple

I had a Whipple in February to remove a cyst from my pancreas. The cyst turned out not to have become cancerous but was close to it. The surgeons removed the head of my pancreas, 30% of my stomach, my gall bladder and various other bits and pieces. Because I work in Belgium, I had the operation at a...

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