Search found 103 matches

by suef
Mon Jan 07, 2013 10:40 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 60832

Re: Chemotherapy options

Dear Carole,

Good that you are pushing! Be polite but firm! Remember that every patient needs a strong advocate - and that is you!

Take care!

SueF
by suef
Sun Jan 06, 2013 9:51 am
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 60832

Re: Chemotherapy options

Dear Carole,

So sorry to hear about Clive's jaundice etc. How is he this morning? How are you?

Hopefully the NHS will be back at work tomorrow, there is really no excuse for this lack of coverage over holidays.

Thinking of you!

SueF
by suef
Fri Jan 04, 2013 2:04 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 60832

Re: Chemotherapy options

Dear Carole, So sorry to hear about your ongoing problems. Do keep pushing the NHS, especially over holiday times when key people vanish. And if someone tries to 'blind you with science' make them explain clearly. It is the mark of someone who really knows the topic to be able to explain it clearly ...
by suef
Tue Jan 01, 2013 5:58 pm
Forum: Coping with loss/ Memorial
Topic: New Year
Replies: 11
Views: 29685

Re: New Year

Dear Deb,

What a wonderful post. I am so glad you have found peace and send you my very best wishes for 2013.

SueF
by suef
Tue Dec 25, 2012 6:56 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 60832

Re: Chemotherapy options

What a wonderful forum this is, with so much knowledge and experience out there, all being shared so generously. I do strongly underline something that James said - don't give in to bureaucracy, keep fighting! It will help to keep you going and it will probably make a difference to the care your hus...
by suef
Wed Dec 19, 2012 9:56 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 60832

Re: Chemotherapy options

Dear Carole,

Just a little note to wonder how you are getting on?

Thinking of you,

Sue F
by suef
Sun Dec 16, 2012 10:54 pm
Forum: Treatment & side effects
Topic: Chemotherapy options
Replies: 95
Views: 60832

Re: Chemotherapy options

Dear Carole, I am so sorry to hear your sad news, but you have come to the right place. You will get lots of support and practical information here. Although I have not had chemotherapy (I had a Whipple directly), a dear friend of mine was in the same situation as your husband. She had chemo to shri...
by suef
Tue Dec 04, 2012 9:32 pm
Forum: Advanced pancreatic cancer
Topic: creon / 2nd attempt chemo?
Replies: 15
Views: 11723

Re: creon / 2nd attempt chemo?

Glad the oncologist is letting your dad try chemo again, hope it helps him. Do keep in touch!
by suef
Sun Dec 02, 2012 4:16 pm
Forum: Advanced pancreatic cancer
Topic: creon / 2nd attempt chemo?
Replies: 15
Views: 11723

Re: creon / 2nd attempt chemo?

Hi, Very sorry to hear about your dad, this is such a cruel illness. Do keep on at the consultants, GP etc, you need to keep pushing them, sad but true. I had a Whipple operation a couple of years ago and took Creon after that, made me feel very sick so I stopped but the consultant made me take it a...
by suef
Thu Nov 29, 2012 8:55 pm
Forum: Patient Experience Forum
Topic: Joint pain?
Replies: 20
Views: 15325

Re: Joint pain?

Dear Sue,

That is great news! Well done!

Best wishes,

Sue F
by suef
Sun Nov 25, 2012 10:39 am
Forum: Treatment & side effects
Topic: Whipples Operation
Replies: 14
Views: 22738

Re: Whipples Operation

Dear All, It is great to hear of all these Whipple success stories. I had a Whipple a couple of years ago and now live an almost completely normal life, helped by Creon with each meal. Regarding the bad breath issue, have you tried drinking LOTS of water? I drink at least a litre a day. All the best...
by suef
Sun Nov 25, 2012 10:33 am
Forum: Patient Experience Forum
Topic: Joint pain?
Replies: 20
Views: 15325

Re: Joint pain?

Dear Sue,

Congratulations of getting through your Whipple. I had a Whipple a couple of years ago, did not have any joint pain and have not heard of it affecting anyone else in this way.

Hope you make good progress with your recovery!

All the best from another Sue,

SueF
by suef
Sun Oct 14, 2012 1:50 pm
Forum: Advanced pancreatic cancer
Topic: My Mother
Replies: 9
Views: 5736

Re: My Mother

Please accept my condolences at this very sad time. It must have been such a shock for you to be called with this terrible news so early in the morning. Now you must take care of yourself also, you will have a lot to do. I hope you can take comfort in the fact that your mother is no longer suffering...
by suef
Wed Oct 10, 2012 9:43 pm
Forum: Advanced pancreatic cancer
Topic: My Mother
Replies: 9
Views: 5736

Re: My Mother

So sorry to hear about your mother. What a terrible illness this is. I wish you much courage for the days ahead. Thinking of you, Sue F
by suef
Wed Oct 10, 2012 2:01 pm
Forum: Family, friends and carers
Topic: Help with my fatthers overwhelming grief
Replies: 3
Views: 3166

Re: Help with my fatthers overwhelming grief

I am so very sorry to hear of this distressing situation. In all of this, you must make sure that you also seek help for yourself. I went through a similar situation when my mother died and my father had a very strong reaction, treated me very insensitively. I got a lot of help at that time from Sam...

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