Search found 103 matches

by suef
Fri Apr 05, 2013 8:01 pm
Forum: Advanced pancreatic cancer
Topic: My Father
Replies: 16
Views: 10313

Re: My Father

Am so glad he is doing well! Remember we are here if you need us xx
by suef
Wed Apr 03, 2013 9:45 pm
Forum: Advanced pancreatic cancer
Topic: My Father
Replies: 16
Views: 10313

Re: My Father

Dear Susan, I had a Whipple operation about 3 years ago to remove a tumour on the head of my pancreas. The surgery lasted 8 hours, and I was in intensive care for 2 days before being moved to a ward. I was not allowed to eat or drink for 10 days, just fed by tube. That allowed the body to heal. I wa...
by suef
Thu Mar 28, 2013 9:28 pm
Forum: Family, friends and carers
Topic: Hello from KATB
Replies: 47
Views: 23121

Re: Hello from KATB

Dear Kate, I guess you have seen the list of specialist centres on the website http://www.pancreaticcancer.org.uk/information-and-support/your-local-specialist-centre It might be good to ask the support staff for advice when they are back in the office as they have a lot of experience of which speci...
by suef
Thu Mar 28, 2013 9:18 pm
Forum: General chat
Topic: tell us your experiences of diagnsis of pancreatic cancer
Replies: 15
Views: 74987

Re: tell us your experiences of diagnsis of pancreatic cancer

Dear Tina, So sorry to hear your news. This is just to say that I am happy to help if you need things translating from French to English. I had my Whipple operation in Brussels, done by French-speaking surgeons, so I know a lot of the vocabulary and am happy to help. You can contact me via the moder...
by suef
Thu Mar 28, 2013 7:15 pm
Forum: Family, friends and carers
Topic: Hello from KATB
Replies: 47
Views: 23121

Re: Hello from KATB

Hi Kate,

Glad your Dad is feeling better today. Those moments are precious.

I wish you much courage - and the strength to keep pushing to get your father the best possible care.

Thinking of you!

SueF
by suef
Thu Mar 28, 2013 1:49 pm
Forum: Family, friends and carers
Topic: Hello from KATB
Replies: 47
Views: 23121

Re: Hello from KATB

Dear Kate, I am so sorry to hear your news. You have done right to contact this group as you will get lots of practical and emotional support. I had a tumour on my pancreas and had a Whipple operation in February 2010. The tumour proved to be non-cancerous and I have made a good recovery. I was work...
by suef
Mon Mar 25, 2013 3:24 pm
Forum: Patient Experience Forum
Topic: Welcome to this new sub forum
Replies: 92
Views: 157237

Re: Welcome to this new sub forum

Hello Carole, I had a Whipple in February 2010 and have been taking Creon ever since. I have Creon Forte (25000) and take 15-20 a day. At first they made me nauseous but I got used to them after about 3 weeks. I usually take 1 or 2 before I start eating then a further 1 or 2 while I am eating. If I ...
by suef
Fri Mar 22, 2013 9:33 am
Forum: Advanced pancreatic cancer
Topic: NHS or private care? Good experience or bad?
Replies: 1
Views: 3929

Re: NHS or private care? Good experience or bad?

Hi, I was very sorry to hear about your experiences and totally support your aim to iumprove care. It is interesting to compare not only the contrast between NHS & private care in the UK but also hospitals outside the UK. There have been various mentions on this website of state-of-the-art technique...
by suef
Fri Mar 22, 2013 9:16 am
Forum: Treatment & side effects
Topic: Follow-up blood tests
Replies: 1
Views: 7987

Follow-up blood tests

Sorry, this is an additional point about the follow-up after a Whipple. I forwarded my blood test & scan results to my surgeons in Belgium and they noted that they would have tested levels of vitamins A,D,E,K in addition to the tests done here. Any comments on this? Thanks in advance!
by suef
Thu Mar 21, 2013 8:15 pm
Forum: Treatment & side effects
Topic: Incisional epigastric hernia
Replies: 2
Views: 7131

Re: Incisional epigastric hernia

Dear Dianne,

Thank you very much for this very useful reply!

Best wishes,

SueF
by suef
Wed Mar 20, 2013 5:40 pm
Forum: Treatment & side effects
Topic: Incisional epigastric hernia
Replies: 2
Views: 7131

Incisional epigastric hernia

I had a Whipple op in February 2010 for the removal of a tumour from my pancreas. The tumour turned out to be non-cancerous and I have made an excellent recovery. The operation was done in Belgium, where I was working. I have now returned to the UK and, as part of normal follow-up, have had a CT sca...
by suef
Mon Feb 25, 2013 10:29 pm
Forum: Patient Experience Forum
Topic: FAT MALABSORPTION 4.5 YEARS AFTER WHIPLES
Replies: 3
Views: 6007

Re: FAT MALABSORPTION 4.5 YEARS AFTER WHIPLES

Interesting to hear about the Facebook group for Whipple survivors! I have joined also! Thanks for the info. SueF
by suef
Wed Jan 30, 2013 7:55 am
Forum: Family, friends and carers
Topic: devastated mother in law diagnosed yesterday.
Replies: 6
Views: 4817

Re: devastated mother in law diagnosed yesterday.

Dear Lisa, So sorry to hear your devastating news. You will get lots of support from this website, also lots of practical info. We are here to help and support you, and to help you support your mother-in-law. Do let us know what news you get from the consultants, and remember to push hard if you thi...
by suef
Sat Jan 19, 2013 9:10 pm
Forum: Family, friends and carers
Topic: Husband newly diagnosed
Replies: 22
Views: 12565

Re: Husband newly diagnosed

Dear Bibs, I am so sorry to hear your news. It is really inexcusable that the reason for the delay was not clearly explained to you. Would you feel able to call the consultant's secretary on Monday and ask for a clearer explanation, and whether there are any other options - another hospital, another...
by suef
Sun Jan 13, 2013 5:13 pm
Forum: Patient Experience Forum
Topic: Joint pain?
Replies: 20
Views: 15341

Re: Joint pain?

Dear Sue, In fact, you have reminded me that I also had low levels of Vitamin D after my Whipple and I was prescribed a horrible liquid in a vial that I had to take once a week and it gave me violent diarrhea! But that was in Belgium, where I had my Whipple. The consultant here just told me to go ou...

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