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by PCUK Nurse Jeni
Mon May 06, 2019 5:15 pm
Forum: Ask the nurse
Topic: Enlarged peri-pancreatic lymph node found. Reason for concern?
Replies: 1
Views: 7936

Re: Enlarged peri-pancreatic lymph node found. Reason for concern?

Hi There hopeful, Thanks for your post on the forums, and sorry to hear that your mum has been having some health issues of late. I have tried to email you directly, but I think your account has been deactivated unfortunately, which means I cannot get your email details. As we do not allow personal ...
by PCUK Nurse Jeni
Thu May 02, 2019 4:38 pm
Forum: Treatment & side effects
Topic: Bloating
Replies: 4
Views: 9488

Re: Bloating

Hi Petal, Certainly a high dose. Are you able to drop us an email to outline your daily routine please, or call us so we can go through any other suggestions we might have? Best wishes, Jeni. Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.uk su...
by PCUK Nurse Jeni
Wed May 01, 2019 4:59 pm
Forum: Treatment & side effects
Topic: Bloating
Replies: 4
Views: 9488

Re: Bloating

Hello Petal, Great news that you have completed your post-op chemo - how fantastic to get through all of that! Did you discuss the bloating at the time of your appointment, or was it not evident then? The bloating could be from a lack of pancreatic enzymes - I presume you are on enzymes? If so, how ...
by PCUK Nurse Jeni
Thu Apr 11, 2019 3:29 pm
Forum: Family, friends and carers
Topic: Confused and worried
Replies: 4
Views: 8250

Re: Confused and worried

Hi moonlight,

Sorry to hear all of the above.

I will just email you directly.

Kind regards,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Tue Apr 09, 2019 12:18 pm
Forum: Family, friends and carers
Topic: Concerned husband
Replies: 52
Views: 61399

Re: Concerned husband

Dear Saxon, We are so sorry to hear of this news about your wife. We are all sending our condolences and best wishes at this sad time. It sounds as though it was quite sudden - I hope that you and the family were well supported. It is good that your wife was surrounded by all those who meant so much...
by PCUK Nurse Jeni
Thu Apr 04, 2019 1:18 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 118790

Re: This cruel disease

Dear Keith, Great to hear that Kerry's quality of life has improved so much since stopping folfirinox and that she is enjoying getting out and about again. I hope that you all have a wonderful holiday, and the sun is just the job, especially with these cold spring days. Best wishes, Jeni Jones Pancr...
by PCUK Nurse Jeni
Fri Mar 22, 2019 4:48 pm
Forum: Patient Experience Forum
Topic: Result worries
Replies: 10
Views: 12788

Re: Result worries

Hi Mohammad, Its likely that the consultant who gave you the results is aware of the EUS request, so if he has stated that it is not necessary, then that's probably the case. Good news that the issues have come back as a cyst - just ensure that you find out what follow up you need now. Kind regards,...
by PCUK Nurse Jeni
Fri Mar 08, 2019 2:19 pm
Forum: Patient Experience Forum
Topic: Result worries
Replies: 10
Views: 12788

Re: Result worries

Hi Mohammad, Just to let you know that I have deleted your other post as it is a duplicate of the above, and both threads had responses. We can consolidate the responses to this thread. I trust this is satisfactory? Kind regards, Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic ...
by PCUK Nurse Jeni
Thu Mar 07, 2019 3:28 pm
Forum: Patient Experience Forum
Topic: Some general advice please.
Replies: 1
Views: 6642

Re: Some general advice please.

Hello Paul, Many thanks for your post and welcome to the forums, no doubt not a place you thought you would find yourself. Paul, I will email you directly with some information. Kind regards, Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcance...
by PCUK Nurse Jeni
Thu Mar 07, 2019 3:19 pm
Forum: Patient Experience Forum
Topic: Result worries
Replies: 10
Views: 12788

Re: Result worries

Hello Mohammad, I would like to welcome you to the forum, however, realise its not a place anyone wants to be. I am very sorry to hear what you have been going through recently, and the waiting for results must be an anxious time for you. Mohammad, I wonder if you have a telephone number for a clini...
by PCUK Nurse Jeni
Wed Feb 27, 2019 4:33 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 118790

Re: This cruel disease

Dear Keith, Your response is most humbling, and of course, it is an honour and privilege to be able to support any of you in a small way. Good to hear things have not been so bad this time around. Keith, has anyone ever considered placing a line for Kerry? Or does she already have one? it would real...
by PCUK Nurse Jeni
Wed Feb 20, 2019 4:00 pm
Forum: Advanced pancreatic cancer
Topic: My Mum
Replies: 23
Views: 42007

Re: My Mum

Hello LST, That's great that there has been some progress in terms of the palliative care services. Hopefully, as you say, the morphine will be helpful. I hope the oncology appointment goes well on Friday LST. I wonder, LST, whether you might be able to see your gp and explain the pressure and exhau...
by PCUK Nurse Jeni
Wed Feb 20, 2019 3:46 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 85
Views: 194915

Re: My mum - Stage 4 PC with liver mets

Hello Janine,

Thanks for sharing this very good news! How fantastic!

And well done to your mum!

Long may this continue.

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Jeni
Tue Feb 19, 2019 4:39 pm
Forum: Advanced pancreatic cancer
Topic: My Mum
Replies: 23
Views: 42007

Re: My Mum

Hi LST, Just wondering how your mum is now? Are the pain levels improved? Please do feel free to contact us - we are all ex-NHS nurses, and can offer specialised advice regarding pain relief and other pancreatic cancer related matters. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurs...
by PCUK Nurse Jeni
Tue Feb 19, 2019 4:35 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 118790

Re: This cruel disease

Hello Keith and also, Theresa, Great to hear the updates, as well as the challenges. Keith, it must be hard when both you and your wife work at the same hospital where Kerry is being treated - it must seem hard to get a "respite", so to speak, not that you want this more than likely, but you will ap...

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