Pancreatic Cancer UK

Hi There hopeful, Thanks for your post on the forums, and sorry to hear that your mum has been having some health issues of late. I have tried to email you directly, but I think your account has been deactivated unfortunately, which means I cannot get your email details. As we do not allow personal ...

Hi Petal, Certainly a high dose. Are you able to drop us an email to outline your daily routine please, or call us so we can go through any other suggestions we might have? Best wishes, Jeni. Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.uk su...

Hello Petal, Great news that you have completed your post-op chemo - how fantastic to get through all of that! Did you discuss the bloating at the time of your appointment, or was it not evident then? The bloating could be from a lack of pancreatic enzymes - I presume you are on enzymes? If so, how ...

Hi moonlight,

Sorry to hear all of the above.

I will just email you directly.

Kind regards,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Dear Saxon, We are so sorry to hear of this news about your wife. We are all sending our condolences and best wishes at this sad time. It sounds as though it was quite sudden - I hope that you and the family were well supported. It is good that your wife was surrounded by all those who meant so much...

Dear Keith, Great to hear that Kerry's quality of life has improved so much since stopping folfirinox and that she is enjoying getting out and about again. I hope that you all have a wonderful holiday, and the sun is just the job, especially with these cold spring days. Best wishes, Jeni Jones Pancr...

Hi Mohammad, Its likely that the consultant who gave you the results is aware of the EUS request, so if he has stated that it is not necessary, then that's probably the case. Good news that the issues have come back as a cyst - just ensure that you find out what follow up you need now. Kind regards,...

Hi Mohammad, Just to let you know that I have deleted your other post as it is a duplicate of the above, and both threads had responses. We can consolidate the responses to this thread. I trust this is satisfactory? Kind regards, Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic ...

Hello Paul, Many thanks for your post and welcome to the forums, no doubt not a place you thought you would find yourself. Paul, I will email you directly with some information. Kind regards, Jeni Jones Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcance...

Hello Mohammad, I would like to welcome you to the forum, however, realise its not a place anyone wants to be. I am very sorry to hear what you have been going through recently, and the waiting for results must be an anxious time for you. Mohammad, I wonder if you have a telephone number for a clini...

Dear Keith, Your response is most humbling, and of course, it is an honour and privilege to be able to support any of you in a small way. Good to hear things have not been so bad this time around. Keith, has anyone ever considered placing a line for Kerry? Or does she already have one? it would real...

Hello LST, That's great that there has been some progress in terms of the palliative care services. Hopefully, as you say, the morphine will be helpful. I hope the oncology appointment goes well on Friday LST. I wonder, LST, whether you might be able to see your gp and explain the pressure and exhau...

Hello Janine,

Thanks for sharing this very good news! How fantastic!

And well done to your mum!

Long may this continue.

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Hi LST, Just wondering how your mum is now? Are the pain levels improved? Please do feel free to contact us - we are all ex-NHS nurses, and can offer specialised advice regarding pain relief and other pancreatic cancer related matters. Kind regards, Jeni. Jeni Jones Pancreatic Cancer Specialist Nurs...

Hello Keith and also, Theresa, Great to hear the updates, as well as the challenges. Keith, it must be hard when both you and your wife work at the same hospital where Kerry is being treated - it must seem hard to get a "respite", so to speak, not that you want this more than likely, but you will ap...