Pancreatic Cancer UK

Hi Clair, My name is Jeni Jones and I work for PCUK. I am a qualified oncology nurse with 11 years experience, including dealing with Pancreatic cancer. I have been following your recent posts, and have seen that you are having physical symptoms at the thoughts of going out of the house. Apart from ...

Hi Marie, Very sorry to hear about your sister, Linda. It was sad to hear that the chemo might have been working - this is in keeping with the disease, as it is generally very responsive to chemotherapy. Unfortunately, the chemo is fairly tough going, and as you pointed out, is better tolerated if t...

You are absolutely right Lynn. These side effects you experienced are all documented side effects of Venlafaxine. The jaw clenching is actually a rare side effect! However, the dose used for night sweats is much smaller than for the usual use of the drug, so the side effects should be less at a lowe...

Hi Debbie,

Just to say thinking of you as you have your first Christmas without Gemma.

Hope it can be in some way enjoyable, and that you are not too upset and lonely without her.

God bless,

Jeni.

Hi Jackie, I have been reading your posts and think it would be really worthwhile in you getting in touch with the EUROPAC study. They are looking at incidences of familial /heredity Pancreatic Cancer, and with your family history, they would be very interested. I have posted the link below. http://...

Hello Marie, I have been reading your posts about your sister. Pancreatic Lymphoma is quite rare. It is true that lymphoma is an easily treated disease, and is usually very responsive to chemotherapy. There are 2 types -hodgkin's and non-hodgkins. The treatment for these is different. Combinations o...

Hi Lyn, Did you actually get a chance to take part in the study for survival? If not, there will be Phase 2 of the study launched in January. You can get involved this way. Also, don't hesitate next time there is a launch or some great event in London -you can always contact our office and one of us...

Hi Smilodon, Incisional hernias are very common after major abdominal surgery. They are easily corrected, with a revised operation and insertion of a mesh to reduce the hernia. Usually 48 hour stay in hospital. No heavy lifting afterwards though! This is what can put pressure on the wound area. Ther...

Actually Julianna -I may have jumped the gun a bit with the drug! I was so busy finding it in my drug book! Have you actually tried over the counter remedies? Evening Primrose oil and red clover are also good for night sweats. Might be as well to try these before prescription meds? But, it is up to ...

Hi Julianna, There is a drug you can try called venlafaxine. it is an anti-depressant, but is used in small doses in counteracting night sweats. You would need to get it prescribed by your GP, or if you are still at the hospice, get a consultant there to do it. Sorry to hear your news has not been s...

Hi Jackie, I hope you have had some more information after your appointment on Wednesday. I would be delighted to answer any queries you may have. You can contact me via support@pancreaticcancer.org.uk I run the support service for the organisation and have experience of pancreatic cancer and the tr...

Hi Laura, I would like to echo Nicki's sentiments in offering my sympathies to you after the death of your father. This must be a very emotional time for you - sadness at the loss of your dad, and feeling happy for your aunt. This is an excellent response she has had to chemotherapy. As Nicky said, ...

Hi Jordan, It is really good that you are feeling brighter these days. It is always good when you have fond memories to look back on. Time is a great healer, and none of this can be rushed. I bet you are busy preparing for Christmas, and all that entails. Just don't get too bust to look after yourse...

Hi Jordan, Just been reading your post. Sorry that it has taken a while for this to appear, but I just wanted to say thinking of you.I know you had a bad day, and I hope you are feeling a bit brighter since then. It is so sad when you are best friends with someone also. It makes it like a double los...

Hi Richie and Margey,

Both of your stories are so inspirational.

Long may it be so!
We are looking forward to the first study for survival launch this week.

best wishes,

Jeni.