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by PCUK Nurse Jeni
Wed Jan 05, 2011 3:34 pm
Forum: Advanced pancreatic cancer
Topic: message for clair 2305
Replies: 9
Views: 5734

Re: message for clair 2305

Hi Clair, My name is Jeni Jones and I work for PCUK. I am a qualified oncology nurse with 11 years experience, including dealing with Pancreatic cancer. I have been following your recent posts, and have seen that you are having physical symptoms at the thoughts of going out of the house. Apart from ...
by PCUK Nurse Jeni
Wed Dec 29, 2010 2:32 pm
Forum: Family, friends and carers
Topic: Message for Ladywood
Replies: 21
Views: 10412

Re: Message for Ladywood

Hi Marie, Very sorry to hear about your sister, Linda. It was sad to hear that the chemo might have been working - this is in keeping with the disease, as it is generally very responsive to chemotherapy. Unfortunately, the chemo is fairly tough going, and as you pointed out, is better tolerated if t...
by PCUK Nurse Jeni
Wed Dec 29, 2010 1:58 pm
Forum: Advanced pancreatic cancer
Topic: M.I.A
Replies: 15
Views: 9784

Re: M.I.A

You are absolutely right Lynn. These side effects you experienced are all documented side effects of Venlafaxine. The jaw clenching is actually a rare side effect! However, the dose used for night sweats is much smaller than for the usual use of the drug, so the side effects should be less at a lowe...
by PCUK Nurse Jeni
Fri Dec 24, 2010 3:48 pm
Forum: Advanced pancreatic cancer
Topic: Gemma - 8th August 2010
Replies: 14
Views: 8202

Re: Gemma - 8th August 2010

Hi Debbie,

Just to say thinking of you as you have your first Christmas without Gemma.

Hope it can be in some way enjoyable, and that you are not too upset and lonely without her.

God bless,

Jeni.
by PCUK Nurse Jeni
Fri Dec 24, 2010 3:22 pm
Forum: Family, friends and carers
Topic: mum diagnosed third sibling with pancreatic cancer
Replies: 9
Views: 5645

Re: mum diagnosed third sibling with pancreatic cancer

Hi Jackie, I have been reading your posts and think it would be really worthwhile in you getting in touch with the EUROPAC study. They are looking at incidences of familial /heredity Pancreatic Cancer, and with your family history, they would be very interested. I have posted the link below. http://...
by PCUK Nurse Jeni
Fri Dec 24, 2010 3:05 pm
Forum: Family, friends and carers
Topic: Message for Ladywood
Replies: 21
Views: 10412

Re: Message for Ladywood

Hello Marie, I have been reading your posts about your sister. Pancreatic Lymphoma is quite rare. It is true that lymphoma is an easily treated disease, and is usually very responsive to chemotherapy. There are 2 types -hodgkin's and non-hodgkins. The treatment for these is different. Combinations o...
by PCUK Nurse Jeni
Fri Dec 17, 2010 5:15 pm
Forum: Advanced pancreatic cancer
Topic: how do i take part in the study for survival?
Replies: 2
Views: 2589

study for survival

Hi Lyn, Did you actually get a chance to take part in the study for survival? If not, there will be Phase 2 of the study launched in January. You can get involved this way. Also, don't hesitate next time there is a launch or some great event in London -you can always contact our office and one of us...
by PCUK Nurse Jeni
Fri Dec 17, 2010 4:44 pm
Forum: Treatment & side effects
Topic: Incision hernia
Replies: 2
Views: 7368

Re: Incision hernia

Hi Smilodon, Incisional hernias are very common after major abdominal surgery. They are easily corrected, with a revised operation and insertion of a mesh to reduce the hernia. Usually 48 hour stay in hospital. No heavy lifting afterwards though! This is what can put pressure on the wound area. Ther...
by PCUK Nurse Jeni
Fri Dec 17, 2010 3:13 pm
Forum: Advanced pancreatic cancer
Topic: M.I.A
Replies: 15
Views: 9784

Re: M.I.A

Actually Julianna -I may have jumped the gun a bit with the drug! I was so busy finding it in my drug book! Have you actually tried over the counter remedies? Evening Primrose oil and red clover are also good for night sweats. Might be as well to try these before prescription meds? But, it is up to ...
by PCUK Nurse Jeni
Thu Dec 16, 2010 4:14 pm
Forum: Advanced pancreatic cancer
Topic: M.I.A
Replies: 15
Views: 9784

Re: M.I.A

Hi Julianna, There is a drug you can try called venlafaxine. it is an anti-depressant, but is used in small doses in counteracting night sweats. You would need to get it prescribed by your GP, or if you are still at the hospice, get a consultant there to do it. Sorry to hear your news has not been s...
by PCUK Nurse Jeni
Thu Dec 02, 2010 3:58 pm
Forum: Family, friends and carers
Topic: Experience request.
Replies: 9
Views: 5252

Re: Experience request.

Hi Jackie, I hope you have had some more information after your appointment on Wednesday. I would be delighted to answer any queries you may have. You can contact me via support@pancreaticcancer.org.uk I run the support service for the organisation and have experience of pancreatic cancer and the tr...
by PCUK Nurse Jeni
Fri Nov 26, 2010 2:01 pm
Forum: Family, friends and carers
Topic: good results with gemcitabine
Replies: 2
Views: 3081

Re: good results with gemcitabine

Hi Laura, I would like to echo Nicki's sentiments in offering my sympathies to you after the death of your father. This must be a very emotional time for you - sadness at the loss of your dad, and feeling happy for your aunt. This is an excellent response she has had to chemotherapy. As Nicky said, ...
by PCUK Nurse Jeni
Fri Nov 26, 2010 1:38 pm
Forum: Family, friends and carers
Topic: Having a bad day
Replies: 3
Views: 3273

Re: Having a bad day

Hi Jordan, It is really good that you are feeling brighter these days. It is always good when you have fond memories to look back on. Time is a great healer, and none of this can be rushed. I bet you are busy preparing for Christmas, and all that entails. Just don't get too bust to look after yourse...
by PCUK Nurse Jeni
Tue Nov 16, 2010 2:18 pm
Forum: Family, friends and carers
Topic: Having a bad day
Replies: 3
Views: 3273

Re: Having a bad day

Hi Jordan, Just been reading your post. Sorry that it has taken a while for this to appear, but I just wanted to say thinking of you.I know you had a bad day, and I hope you are feeling a bit brighter since then. It is so sad when you are best friends with someone also. It makes it like a double los...
by PCUK Nurse Jeni
Tue Nov 16, 2010 2:03 pm
Forum: Family, friends and carers
Topic: Both Carer and cared for.My Story.
Replies: 8
Views: 5338

Re: Both Carer and cared for.My Story.

Hi Richie and Margey,

Both of your stories are so inspirational.

Long may it be so!
We are looking forward to the first study for survival launch this week.

best wishes,

Jeni.

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