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by PCUK Nurse Jeni
Thu Jan 20, 2011 11:29 am
Forum: General chat
Topic: Cars, Paul and me - new book with proceeds to PCUK
Replies: 0
Views: 4446

Cars, Paul and me - new book with proceeds to PCUK

Peter Bullock has written a book called 'Cars, Paul and me' the proceeds of which with be donated to Pancreatic Cancer UK. A synopsis of the book is below: 'For the past three years, Peter Bullock has been the recipient of some very unfortunate luck with his cars. Many people who have had the experi...
by PCUK Nurse Jeni
Wed Jan 19, 2011 4:36 pm
Forum: Advanced pancreatic cancer
Topic: Gemma - 8th August 2010
Replies: 14
Views: 7270

Re: Gemma - 8th August 2010

Hi Lynne, With regard to the Pals meeting, then I would want to start by asking -what was your objective at the start of the meeting? If this has not been met, then you may well want to contact them again and arrange a meeting. At this stage, I do not think it would make sense to include the ward si...
by PCUK Nurse Jeni
Tue Jan 18, 2011 2:13 pm
Forum: Advanced pancreatic cancer
Topic: Gemma - 8th August 2010
Replies: 14
Views: 7270

Re: Gemma - 8th August 2010

Hi Debbie, That is fine if you want to keep in touch. I can understand that people often revisit things when some time elapses and they feel up to it. It is an important part of the process to be able to understand what has gone on, and to have any questions answered, particularly if there are 'burn...
by PCUK Nurse Jeni
Tue Jan 18, 2011 1:57 pm
Forum: Advanced pancreatic cancer
Topic: General Updates
Replies: 21
Views: 12281

Re: General Updates

Hi Pam, Sorry to hear you are feeling like you are back to square one in relation to your dad's death. I am not familiar with your story -just joined 3 months ago and I work for PCUK. If you would like to 'chat' it through at all, I would be happy to hear from you at support@pancreaticcancer.org.uk ...
by PCUK Nurse Jeni
Fri Jan 14, 2011 2:54 pm
Forum: Advanced pancreatic cancer
Topic: New to Board
Replies: 17
Views: 9764

Re: New to Board

Hello Its, Sorry to hear that your dad is not having a great time with his Gemcitabine. Though, it is, as you said, good news that the chemo is keeping the disease stable. Many chemotherapy agents cause taste changes and a metallic taste in the mouth. This will lead to, as in your dad's case, a lack...
by PCUK Nurse Jeni
Wed Jan 12, 2011 4:20 pm
Forum: Advanced pancreatic cancer
Topic: General Updates
Replies: 21
Views: 12281

Re: General Updates

Hi Juliana,

Hope you and your family have a lovely holiday.

Jeni.
by PCUK Nurse Jeni
Thu Jan 06, 2011 9:45 am
Forum: Advanced pancreatic cancer
Topic: Gemma - 8th August 2010
Replies: 14
Views: 7270

Re: Gemma - 8th August 2010

Hi Debbie, Just wanted to let you know that I work for PCUK. I am a nurse with 11 years experience in Oncology, and have dealt with pancreatic cancer a lot over those years. I would be happy to chat if you feel you might like to. Even to see if there is any way we can help. I can be contacted via su...
by PCUK Nurse Jeni
Thu Jan 06, 2011 9:31 am
Forum: Family, friends and carers
Topic: My Mum
Replies: 5
Views: 3147

Re: My Mum

Hi Lou, My name is Jeni and I work for Pancreatic Cancer UK. I am a qualified nurse, with speciality in oncology, chemotherapy and clinical trials. I have worked extensively with pancreatic cancer patients and their families. Firstly, I would like to say that I am very sorry to hear of your story ab...
by PCUK Nurse Jeni
Wed Jan 05, 2011 3:34 pm
Forum: Advanced pancreatic cancer
Topic: message for clair 2305
Replies: 9
Views: 5141

Re: message for clair 2305

Hi Clair, My name is Jeni Jones and I work for PCUK. I am a qualified oncology nurse with 11 years experience, including dealing with Pancreatic cancer. I have been following your recent posts, and have seen that you are having physical symptoms at the thoughts of going out of the house. Apart from ...
by PCUK Nurse Jeni
Wed Dec 29, 2010 2:32 pm
Forum: Family, friends and carers
Topic: Message for Ladywood
Replies: 21
Views: 8939

Re: Message for Ladywood

Hi Marie, Very sorry to hear about your sister, Linda. It was sad to hear that the chemo might have been working - this is in keeping with the disease, as it is generally very responsive to chemotherapy. Unfortunately, the chemo is fairly tough going, and as you pointed out, is better tolerated if t...
by PCUK Nurse Jeni
Wed Dec 29, 2010 1:58 pm
Forum: Advanced pancreatic cancer
Topic: M.I.A
Replies: 15
Views: 8740

Re: M.I.A

You are absolutely right Lynn. These side effects you experienced are all documented side effects of Venlafaxine. The jaw clenching is actually a rare side effect! However, the dose used for night sweats is much smaller than for the usual use of the drug, so the side effects should be less at a lowe...
by PCUK Nurse Jeni
Fri Dec 24, 2010 3:48 pm
Forum: Advanced pancreatic cancer
Topic: Gemma - 8th August 2010
Replies: 14
Views: 7270

Re: Gemma - 8th August 2010

Hi Debbie,

Just to say thinking of you as you have your first Christmas without Gemma.

Hope it can be in some way enjoyable, and that you are not too upset and lonely without her.

God bless,

Jeni.
by PCUK Nurse Jeni
Fri Dec 24, 2010 3:22 pm
Forum: Family, friends and carers
Topic: mum diagnosed third sibling with pancreatic cancer
Replies: 9
Views: 4918

Re: mum diagnosed third sibling with pancreatic cancer

Hi Jackie, I have been reading your posts and think it would be really worthwhile in you getting in touch with the EUROPAC study. They are looking at incidences of familial /heredity Pancreatic Cancer, and with your family history, they would be very interested. I have posted the link below. http://...
by PCUK Nurse Jeni
Fri Dec 24, 2010 3:05 pm
Forum: Family, friends and carers
Topic: Message for Ladywood
Replies: 21
Views: 8939

Re: Message for Ladywood

Hello Marie, I have been reading your posts about your sister. Pancreatic Lymphoma is quite rare. It is true that lymphoma is an easily treated disease, and is usually very responsive to chemotherapy. There are 2 types -hodgkin's and non-hodgkins. The treatment for these is different. Combinations o...
by PCUK Nurse Jeni
Fri Dec 17, 2010 5:15 pm
Forum: Advanced pancreatic cancer
Topic: how do i take part in the study for survival?
Replies: 2
Views: 2304

study for survival

Hi Lyn, Did you actually get a chance to take part in the study for survival? If not, there will be Phase 2 of the study launched in January. You can get involved this way. Also, don't hesitate next time there is a launch or some great event in London -you can always contact our office and one of us...

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