Search found 53 matches

by Michaela1
Wed Aug 01, 2018 11:45 pm
Forum: Patient Experience Forum
Topic: Just my story....Michaela1.x
Replies: 19
Views: 26130

Just my story....Michaela1.x

Well an update, and even on a new page! What can I say.....came home feeling rotten and in pain not because of the chemo but still because of still feeling 10 months pregnant. With every movement/jar/bump, break at lights etc etc in the car on way home I felt was a personal attack on my stomach just...
by Michaela1
Mon Jul 30, 2018 11:48 pm
Forum: Family, friends and carers
Topic: Put the brakes on!
Replies: 5
Views: 10186

Re: Put the brakes on!

I think here does not seem to be a specific time, but a specific person to each specific treatment! I start my 1st round of folrinox chemo tomorrow. I am stage 4 metastasized to the liver and around he cavity, still don't really know what it all means....now I guess just trying to focus on treatment...
by Michaela1
Mon Jul 30, 2018 11:28 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 93704

Re: First folfirinox experience

Good evening people, Short but sweet just to say out loud that I am so nervous about tomorrow! I want to be brave, by I'm struggling....Everybody around you says "Oh how well your dealing with it, etc etc" but all I can think of inside is 'I have no choice!' My tummy is so bloated, I resorted to a h...
by Michaela1
Sat Jul 28, 2018 11:39 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 93704

Re: First folfirinox experience

Sorry p.s.....am on lactoluse.....a little easier on the tummy, but not much success yet!
by Michaela1
Sat Jul 28, 2018 11:38 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 93704

Re: First folfirinox experience

Thanks Kate and toodotty, It makes me smile when I get a reply from you guys, makes me feel not so alone....even though I have so much support around me! I am now a Mrs!! The day was absolutely fantastic and it could not have been any more perfect....guests at the end had an impromptu game of volley...
by Michaela1
Wed Jul 25, 2018 8:11 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 93704

Re: First folfirinox experience

Thank you guys for your responses, certainly makes me feel less lonely. I havent had the first dose yet but have still felt ill! Mainly due to some stuff they gave me to make me go toilet, all it did was make me sick and put me in hospital for 3 days.... They told me to try again with it, but made m...
by Michaela1
Mon Jul 23, 2018 11:54 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 93704

Re: First folfirinox experience

Hi people, It's been nice reading all of your experiences. I have recently been diagnosed with stage 4 metastic pancreatic cancer.....my picc line is being put in tomorrow and then I will start folrinox next Monday I think. I am getting married to my long term female partner this Friday I am female ...
by Michaela1
Mon Jul 02, 2018 2:04 pm
Forum: Patient Experience Forum
Topic: Wrong diagnosis?
Replies: 1
Views: 9263

Wrong diagnosis?

I was wondering if anyone could help me please. I am a 47 year old female with a 13 year old daughter and partner and I have within the last week been diagnosed with pancreatic cancer with lesions on my liver too☹ I am trying not to be in denial but could it be wrong? I haven't had a biopsy yet, but...

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