Search found 53 matches

by Michaela1
Tue Aug 14, 2018 10:40 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 66
Views: 76610

Re: First folfirinox experience

Hi guys, Hole you are feeling ok? Had my 2nd round to day...came straight home and slept the nausea feeling off...i asked the nurse about my CA19 levels even though I don't really know what they are, they were in the 1000 plus range pre treatment, today my last bloods before round two they were in t...
by Michaela1
Mon Aug 13, 2018 5:08 pm
Forum: Treatment & side effects
Topic: Supplements?
Replies: 4
Views: 11307

Supplements?

Good afternoon all, I hope you are all feeling good.....or at least ok! Well it will be round 2 tomorrow, I am hoping it will be easier than round 1! I am losing weight and am struggling to eat so I feel it is time to start looking at supplement drinks that may help with this that are easy on the st...
by Michaela1
Fri Aug 10, 2018 4:49 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 66
Views: 76610

Re: First folfirinox experience

Hi Kate, Awesome you are feeling better! And Toodotty glad you are not feeling so bad, you are just in front of Kate and i regarding treatment so its always good to see how you are dealing with it! It gives me hope. I had a bit of good news.....i didn't need a drain fitted, although they did find fl...
by Michaela1
Thu Aug 09, 2018 7:25 pm
Forum: Treatment & side effects
Topic: Severe distention and tightness
Replies: 18
Views: 19638

Re: Severe distention and tightness

Sorry Kate and Veema only just noticed you had written too! Went straight to last page and didn't realise there was more messages! The pic of your husband certainly made a difference from having the drain done.......especially the fact he looks much happier after!x
by Michaela1
Thu Aug 09, 2018 7:21 pm
Forum: Treatment & side effects
Topic: Severe distention and tightness
Replies: 18
Views: 19638

Re: Severe distention and tightness

That's great you managed to escape , not so great only a plastic stent! I'm sorry your feeling so rubbish at the mo, I felt like that last night when my body suddenly decided to give me diarrhoea and vomiting! When you are Sat on the loo with a bucket in hand sweat dripping off you at 2 a.m you real...
by Michaela1
Wed Aug 08, 2018 6:03 pm
Forum: Treatment & side effects
Topic: Severe distention and tightness
Replies: 18
Views: 19638

Re: Severe distention and tightness

Hi Dandy et al
Well now I have to go in hosp Fri overnight and have a drain fitted apparently, so I guess they are now putting it down to fluid......they haven't done an ultrasound yet.....they will before though! I thought they would just drain it off though, why a drain fitted?
Michaela
by Michaela1
Wed Aug 08, 2018 4:05 am
Forum: Treatment & side effects
Topic: Severe distention and tightness
Replies: 18
Views: 19638

Re: Severe distention and tightness

Hi Toodotty, How did your walk go? I didn't realise you were in hospital at the moment, are you ok? What part of the country do you live? I live in n.e. Lincolnshire. Yes I have been walking around too.....sometimes I just pace back and forwards to try and ease the pain! I spent 5 hours walking arou...
by Michaela1
Tue Aug 07, 2018 11:15 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 36549

Re: Battling to get treament

Sorry you are having it rough at the mo toodotty, how's the temperature now? How are you feeling? I hope you bounce back quick. I am still a bit green with all the treatment stuff really. I though after getting detached from my bottle that that was that and if I was going to shave side eff3cts in wo...
by Michaela1
Mon Aug 06, 2018 8:01 pm
Forum: Treatment & side effects
Topic: Severe distention and tightness
Replies: 18
Views: 19638

Re: Severe distention and tightness

Hi Veema, I have spoken with my nurse today and she is going to speak with my consultant on Wednesday and then call me, I think they will be giving me an ultrasound to check! I think I am convinced it is fluid, especially as now I have gone to the toilet.....yet still swollen! I will keep taking the...
by Michaela1
Sun Aug 05, 2018 8:00 pm
Forum: Treatment & side effects
Topic: Severe distention and tightness
Replies: 18
Views: 19638

Re: Severe distention and tightness

Thanks toodotty, I am sorry you are suffering with it too, I will get the cherries and Apple juice! When you say exercise do you mean when it is actually hurting as I feel like I just need to sit and crouch forward with my water bottle.....if I move it hurts! It is very random isn't it, there seems ...
by Michaela1
Sun Aug 05, 2018 6:57 pm
Forum: Treatment & side effects
Topic: Severe distention and tightness
Replies: 18
Views: 19638

Severe distention and tightness

Hi everyone, I've started this thread to see if anyone can help me with this problem, e.g cause, relief, advice, anything!! Since I was diagnosed really around 6 weeks ago my stomach has been so bloated it looks like I am full term pregnant. I have been constipated since starting meds e.g morphine t...
by Michaela1
Fri Aug 03, 2018 4:14 pm
Forum: General chat
Topic: Fundraising for treatment - any advice
Replies: 6
Views: 9123

Re: Fundraising for treatment - any advice

Hi, Thanks for that, I have only read from what I've picked up on here really, but good to know that he will look for free and give advice! I think will do 6 sessions first and get the next scan, then he can have a comparison from the folrinox treatment, what do you think? I guess at my stage anythi...
by Michaela1
Thu Aug 02, 2018 11:57 pm
Forum: General chat
Topic: Fundraising for treatment - any advice
Replies: 6
Views: 9123

Re: Fundraising for treatment - any advice

The only advice I can give is a go fund me page....but I Don't really know how successful they are. Maybe as it is such nice weather summer bbq/fete where people and local can donate brick a brac....local supermarkets may donate food. Do you have a lions club around you, they can be very good at fun...
by Michaela1
Thu Aug 02, 2018 11:49 pm
Forum: General chat
Topic: Time
Replies: 30
Views: 32511

Re: Time

Hi Fairy, I am afraid i do not have any words of advice for you, but like you am taking great comfort in just being around other people who are going through this rollercoaster of a ride. I really hope they can get your mum comfy at the hospice, all I have heard is wonderful things about them....sou...
by Michaela1
Thu Aug 02, 2018 11:44 pm
Forum: Patient Experience Forum
Topic: Just my story....Michaela1.x
Replies: 19
Views: 21281

Re: Just my story....Michaela1.x

Thank you Jenni and the rest of the the group's input! Feeling a bit better today, released form my bottle of folrinox and promptly had an ice Lolly, it actually made me giggle how the cold was making my lips feel, but the Lolly prevailed.....so much so I had two! My Mamillian nurse is dropping in t...

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