Search found 88 matches

by kate2101
Thu Oct 18, 2018 7:01 am
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 25713

Re: Just diagnosed

Good luck today Theresa. I have number 7 today, I’ll be thinking of you x
by kate2101
Sun Oct 14, 2018 9:23 pm
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 25713

Re: Just diagnosed

It’s so good to read positive stories, makes such a difference. I agree with Desso, the first few weeks are the worst, somehow you learn to accept the situation and life returns to some sort of normality. Most of the time I feel ok and there are days when I can almost forget about ‘the beast within’...
by kate2101
Sat Oct 13, 2018 10:45 pm
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 25713

Re: Just diagnosed

Hi Theresa, So sorry you to hear your news. Your story is a mirror of mine, I was diagnosed in June with spread to liver, multiple lesions, just 60, healthy, no weight loss, just vague symptoms and indigestion. It was like a bolt from the blue. My life fell apart. Strange to say, life has now settle...
by kate2101
Sun Oct 07, 2018 12:52 pm
Forum: Patient Experience Forum
Topic: Just my story....Michaela1.x
Replies: 19
Views: 22752

Re: Just my story....Michaela1.x

Hi Michaela I can echo toodotty’s words, I definitely started to feel more ‘normal’ after round 4, my appetite increased and I started gaining weight. I know when my ‘dip’ days are likely to be and take it easy then but I have more energy now, even during the down times. I really hope you follow the...
by kate2101
Sat Oct 06, 2018 8:36 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 118788

Re: This cruel disease

Hi, I’m so pleased to hear the brilliant news about your daughter. I know it’s always at the back of your mind but to get ‘normality’ back again must be a wonderful. I’m at the scanxiety stage at the moment (first since diagnosis) and worrying about every little pain and niggle, hopefully results We...
by kate2101
Sat Sep 29, 2018 9:01 am
Forum: Patient Experience Forum
Topic: Just my story....Michaela1.x
Replies: 19
Views: 22752

Re: Just my story....Michaela1.x

Hi Michaela Sorrry you’ve had a tough time recently. Glad you’re home now and so pleased you had good CA 19-9 results. Concentrate on building yourself back up now and get your strength back. Had my 6th treatment Thursday (postponed for a week due to low platelets). Scan last Wednesday, told it may ...
by kate2101
Sat Sep 01, 2018 8:58 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 118788

Re: This cruel disease

I was so happy to read your post and delighted your daughter is doing so well. It’s so good to hear some good news, it lifts the spirits and gives us fellow sufferers hope, the best medicine there is. Love to your daughter, you and your family, I don’t need to say stay positive because you are! A po...
by kate2101
Fri Aug 31, 2018 9:45 am
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 43531

Re: Nano knife for Stage IV PC.

I’m so angry for you, how dare they! This is your life and your money, it’s beyond belief. Carry on fighting, behind you all the way x
by kate2101
Tue Aug 28, 2018 10:50 am
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 43531

Re: Nano knife for Stage IV PC.

That is devastating! This is your decision and you are in effect half way through your NanoKnife treatment. Words fail me I’m afraid.
by kate2101
Thu Aug 23, 2018 5:20 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 43531

Re: Nano knife for Stage IV PC.

Hi,

So pleased all went well and all positive for next week, sure you’ll keep us updated with your progress. Good to hear you’re pain free so quickly after the procedure. Just home from round 4 chemo, perhaps be following in your footsteps soon if I’m a suitable candidate.

Kate x
by kate2101
Wed Aug 15, 2018 6:47 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 69
Views: 80535

Re: First folfirinox experience

Hi Michaela Glad your bloating issues improved. Think I would introduce lactulose again, I find it’s the kindest to take, I take about 20/30 ml at night if needed and it usually works gently for me. Nothing drastic to report, on the up from third chemo, definitely better than first two. Day 6 today ...
by kate2101
Wed Aug 15, 2018 8:12 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 69
Views: 80535

Re: First folfirinox experience

Hi Michaela I’m sure my figures were way higher than that but I didn’t take it in. It was only after 2nd chemo that it went down which I think is par for course. It’s an indicator that chemo is having some effect, early days for you so don’t worry about it. Hope you’re coping and round two easier. H...
by kate2101
Tue Aug 14, 2018 4:00 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 43531

Re: Nano knife for Stage IV PC.

Wow!

Good luck! I’ll be folllowing your progress with great interest. Presume the professor is doing it? How were your recent scan results?

Xx
by kate2101
Fri Aug 10, 2018 10:26 am
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 69
Views: 80535

Re: First folfirinox experience

Morning all, Update. Had third Folfirinox yesterday, hoping I feel as good as second which was a breeze compared to first. Had good news from oncologist Wednesday as CA 19 levels dropped by about 1/4, can’t remember figures, sounded very high so my brain glossed over those details but at least movin...
by kate2101
Fri Aug 10, 2018 10:13 am
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 38558

Re: Battling to get treament

Hi

Hope you’re back home and feeling better. Sounds like you’ve been through the mill recently! Good luck with your scan results xx

Go to advanced search