Search found 87 matches

by kate2101
Wed Nov 07, 2018 8:31 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 85
Views: 194733

Re: My mum - Stage 4 PC with liver mets

Hi Dee Brilliant news about your mum, really pleased her pain is so much better too. I have number 8 chemo tomorrow (Folfirinox), delayed a week because of low platelets. Like Erika I visualise my tumours, my scenario is red hot smouldering tumours that get hotter and hotter and burn themselves out ...
by kate2101
Sun Nov 04, 2018 11:43 am
Forum: General chat
Topic: Feeling morbid!
Replies: 11
Views: 11921

Re: Feeling morbid!

Hi Michaela and Erika Hope you are both ok today, and Michaela .... hope your mood has lifted. Re platelets... they don’t seem too worried at the moment as my levels rise again but my last few ‘Dr Doom’ appointments have been with the registrar, I am booked for an extra appointment with the oncologi...
by kate2101
Sat Nov 03, 2018 11:39 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 118684

Re: This cruel disease

It doesn’t seem fair we have to spend time and money to stay alive. Fortunately my life insurance paid out, I’m worried I’m not going to leave enough behind for the family but they want me to pursue all options and are behind me all the way. The thought of travelling all that way for surgery is real...
by kate2101
Sat Nov 03, 2018 9:35 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 118684

Re: This cruel disease

Hi Erika I am also thinking of Dr Donaway, I’ve had a couple of conversations with him. I finally got my latest CT scan disc from the hospital and need to send to him, I’m worried about my multiple liver mets but will see what he has to say, they have shrunk considerably which is good news. Is this ...
by kate2101
Sat Nov 03, 2018 9:02 am
Forum: General chat
Topic: Feeling morbid!
Replies: 11
Views: 11921

Re: Feeling morbid!

Hi Toodotty

Chemo delayed till next Thursday (number 8), low platelets again. Quite nice to have a week off, admit I have been more tired than usual which is probably why.
by kate2101
Sat Nov 03, 2018 12:16 am
Forum: General chat
Topic: Feeling morbid!
Replies: 11
Views: 11921

Re: Feeling morbid!

Hi Michaela You wouldn’t be human if you didn’t feel this way! Nurse Jeni has posted some good advice if you feel it’s too much for you. I get really down when I get home after chemo. I go for my treatment feeling quite well then it all becomes real again and I come home feeling a wreck. I just wish...
by kate2101
Fri Nov 02, 2018 8:24 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 118684

Re: This cruel disease

Hi Keith Brilliant news that your daughter is doing so well, I’m so pleased for you. Quick update on me .... should have had number 8 Folfirinox last Thursday but my platelets were too low again so a week off for me. My CA19-19 levels are down again, now right at the bottom of the scale instead of b...
by kate2101
Wed Oct 31, 2018 7:34 pm
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 25675

Re: Just diagnosed

Hi Theresa Good luck for tomorrow. I was supposed to have number 8 tomorrow but my platelets were low again so a week off for me. Not too worried as my CA19-9 levels down again. Been really tired this week so hopefully the week off will give my body chance to recover and get my energy back. Hope it ...
by kate2101
Thu Oct 25, 2018 8:56 am
Forum: Patient Experience Forum
Topic: Just started Folfirinox
Replies: 16
Views: 19446

Re: Just started Folfirinox

Petal I have the occasional glass of wine now if I feel like it, my oncologist says it’s ok and could even help my appetite. I have a big glass of water with it too. Life holds few pleasures now! Re hair loss - after 7 Folfirinox my hair is still there! It’s hardly growing and has thinned but I feel...
by kate2101
Wed Oct 24, 2018 11:46 am
Forum: Advanced pancreatic cancer
Topic: Diagnosed too late for treatment
Replies: 17
Views: 24885

Re: Diagnosed too late for treatment

Dear Kimmac

So sorry to hear your sad news, this is truly a dreadful disease. Thinking of you.

Kate xxx
by kate2101
Sun Oct 21, 2018 6:54 am
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 25675

Re: Just diagnosed

Hi Theresa Glad all going well so far. Good you managed to get out and you’re eating. Got rid of my bottle last night, I’m always pleased to say goodbye to it! You will probably find you will get more tired as the week goes on. My ‘dip’ is usually days 6/7 and you are at your most vulnerable as your...
by kate2101
Sun Oct 21, 2018 6:36 am
Forum: Patient Experience Forum
Topic: Just my story....Michaela1.x
Replies: 19
Views: 22708

Re: Just my story....Michaela1.x

Morning! Awake much earlier than I hoped, husband gone off for early game of golf and no matter how quiet he tries to be I always wake up. Felt pretty good yesterday, felt a bit yucky but took anti sickness pills and was fine, appetite not great but managed to eat ok. Went out for a bit of shopping ...
by kate2101
Fri Oct 19, 2018 7:59 am
Forum: Patient Experience Forum
Topic: Just my story....Michaela1.x
Replies: 19
Views: 22708

Re: Just my story....Michaela1.x

Hi Michaela Round 7 in the bag. All ok except bit of nausea and sickness last night which hasn’t happened for ages, think I feel ok this morning although I haven’t got up yet! Wondering if it’s because my last treatment was delayed due to low platelets and my body not used to the ‘poison’ again. Hav...
by kate2101
Thu Oct 18, 2018 7:13 am
Forum: Patient Experience Forum
Topic: Just my story....Michaela1.x
Replies: 19
Views: 22708

Re: Just my story....Michaela1.x

Hi Michaela

Glad today went well, you sound a bit more upbeat, good news about your ca19.

I have round 7 today, should have been last week but my platelets were too low. It was good to have a week off.

How I wish life was normal again x
by kate2101
Thu Oct 18, 2018 7:01 am
Forum: Patient Experience Forum
Topic: Just diagnosed
Replies: 28
Views: 25675

Re: Just diagnosed

Good luck today Theresa. I have number 7 today, I’ll be thinking of you x

Go to advanced search