Search found 165 matches

by toodotty
Tue Jul 03, 2018 6:20 pm
Forum: Family, friends and carers
Topic: My Mum's PC Diagnosis
Replies: 9
Views: 12595

Re: My Mum's PC Diagnosis

Hi HT, I haven't had time to post directly to you, but felt I needed to. I am right there with your mum, you do need to also have a life. The diagnosis is terrible, but she is young and given the shocking wait for treatment and the attitude of the Oncologists, it is no wonder that the UK has the wor...
by toodotty
Mon Jul 02, 2018 11:09 pm
Forum: Family, friends and carers
Topic: Mum Diagnosis
Replies: 13
Views: 15569

Re: Mum Diagnosis

Hi Margie and HT959, Unfortunately, your experience is not isolated, you may have seen my post about Battling to get treatment. I believe that if I had not complained both to my MP and to the Chief Executive of the trust treating me, then I would probably not be alive now. It is hard enough to have ...
by toodotty
Mon Jul 02, 2018 10:55 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 43830

Re: Battling to get treament

Hi Jeni and Kate2101, Absolutely, no point in mooching around feeling miserable. Making the most of the time, could be run over by a bus tomorrow, there is no certainty in life. Was a bit worried I might be arrested on the suspicion of shoplifting today, as I was the only person in the shop in bobbl...
by toodotty
Mon Jul 02, 2018 10:42 pm
Forum: Patient Experience Forum
Topic: Wrong diagnosis?
Replies: 1
Views: 9262

Re: Wrong diagnosis?

Hi Michaela1, I am really sorry to hear your news, and the terror and sadness that this will be having on both you and your family. Sadly, if they suspect pancreatic cancer because of the CT scan, they are will be reasonably confident in their diagnosis. Unfortunately the UK has a very risk adverse ...
by toodotty
Sat Jun 30, 2018 10:29 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 43830

Re: Battling to get treament

Hi Kate2101, Unfortunately everyone who knows you will be devastated and find it difficult to cope. Some of my friends have admitting to crying continually, it even has taken one 2 months to ring me because she was afraid she would break down on the phone. I made her come and visit me today, we had ...
by toodotty
Fri Jun 29, 2018 11:58 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 43830

Re: Battling to get treament

Hi Kate2101, I am so sorry to hear about your diagnosis, and feel both for you and your family. I must admit that I have not yet told my sons the seriousness of the situation, I believe that there is plenty of time to mourn and it is not now. I am trying to get everyone to carry on with their lives ...
by toodotty
Thu Jun 28, 2018 9:08 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 43830

Re: Battling to get treament

Hi everyone, I have had a really good week this week, treatment is clearly making a big difference to me. I have gained 2kg in weight this week, and completed 35 miles on my exercise bike in 5 days, doing 10 miles yesterday and today. Went in to see Oncologist today, feeling very positive but Dr Doo...
by toodotty
Thu Jun 28, 2018 8:48 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 128831

Re: This cruel disease

Hi KeithKerry, Happy for you to contact me, Jeni has my email and I am happy to share with you. Re Heidelberg, it is really easy, they have a contact form you can fill in. This link will take you there. https://www.heidelberg-university-hospital.com/diseases-treatments/endocrine-and-metabolic-diseas...
by toodotty
Wed Jun 27, 2018 11:31 am
Forum: General chat
Topic: advice
Replies: 16
Views: 34406

Re: advice

Hi Seth, I was diagnosed with Stage 4 PC at Easter. This was despite having 3 clear ultrasound scans, numerous blood tests which came back clear, and an 8 hour visit to A&E where I was diagnosed with constipation. The diagnosis was only achieved after I paid to see a private specialist who immediate...
by toodotty
Mon Jun 25, 2018 8:48 pm
Forum: Family, friends and carers
Topic: Mum Diagnosis
Replies: 13
Views: 15569

Re: Mum Diagnosis

Sending a virtual hug to your mum. I too started going down hill really quickly, added to the fact that I couldn't get a date for treatment caused me and my husband huge stress levels. Do think about complaining, use the PALS service if necessary, they will respond quickly. It doesn't help when the ...
by toodotty
Mon Jun 25, 2018 11:31 am
Forum: Family, friends and carers
Topic: Mum Diagnosis
Replies: 13
Views: 15569

Re: Mum Diagnosis

Hi Margie, Sorry to hear about your mum, I too have had the symptoms and difficulties you describe, that was what sent me to the GP in the first place. I have had such bad bloating that I looked 8 months pregnant and had to undo trousers/skirts etc. to relieve the discomfort. To be honest, the medic...
by toodotty
Sun Jun 24, 2018 11:17 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 43830

Re: Battling to get treament

Hi Proud Wife and Dandygal76, Thank you for responding to my post. I totally agree with the being treated as "dead man walking syndrome", this is very much how I feel about my treatment, and something I want to challenge. My view is that we are all "dead men walking", it is part of a condition calle...
by toodotty
Mon Jun 18, 2018 10:48 am
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 43830

Re: Battling to get treament

Good morning Rachel, Thank you for your reply, I would have responded sooner but couldn't access the forum. I had my review with the Oncologist last Thursday who was reluctant to allow the next treatment to go ahead but after reviewing my bilirubin levels with him, which were the best they have been...
by toodotty
Mon Jun 11, 2018 5:31 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 43830

Battling to get treament

I am 55 years old, mother of two almost adult boys and wife to a devastated husband. I visited my GP in early March with annoying indigestion and weight loss, and despite numerous blood tests, 3 ultrasound scans and 8 hours in A&E, (who diagnosed constipation), nothing was found to be wrong. I paid ...
by toodotty
Mon Jun 11, 2018 4:23 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 128831

Re: This cruel disease

Hi KeithKerry, I am a Stage 4 PC sufferer, probably diagnosed at about the same time as your daughter. I have two (nearly adult) boys and I was a very fit 55 year old who enjoyed the outdoors, cycling, swimming, horse-riding etc. I too was overwhelmed by the diagnosis as my only symptoms were weight...

Go to advanced search