Search found 165 matches

by toodotty
Sun Aug 05, 2018 7:41 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 50603

Re: Nano knife for Stage IV PC.

Hi Rachel, Totally agree with what you have written, Heidelberg is the centre of excellence in Germany for treating pancreatic cancer and they will not undertake operations if there is no chance of success. However, they also recognise that chemotherapy can cause tumours to shrink and in some cases ...
by toodotty
Thu Aug 02, 2018 3:44 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 131537

Re: This cruel disease

Hi Keith,
Indeed great news. The reduction in tumour should also mean that your daughter's digestion may recover a bit so hopefully less diarrhoa. My scan is on Monday, so totally understand the trepidation.
toodotty
by toodotty
Thu Aug 02, 2018 7:07 am
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 50603

Re: Nano knife for Stage IV PC.

Hi timefortiffin, Unfortunately there are few statistics regarding Nanoknife, there just haven't been any clinical trials as far as I can tell, so most of the evidence an anecodotal, but this is good enough for me. Ridiculous really as Nanoknife has been used successfully (in extending life) for a n...
by toodotty
Thu Aug 02, 2018 6:59 am
Forum: Patient Experience Forum
Topic: Just my story....Michaela1.x
Replies: 19
Views: 26657

Re: Just my story....Michaela1.x

Hi Michaela1, Glad you got through the first round of treatment, but totally understand the 9th months pregnant bit, I too have had this, but this has lessened with each cycle. I am terribly constipated after chemo, but seem to have got a handle on this by eating less during this time. They push you...
by toodotty
Tue Jul 31, 2018 10:33 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 50603

Re: Nano knife for Stage IV PC.

Hi Veema, Thanks for your leads, I will follow this up. My Oncologist also is poo-pooing it, but there is good evidence of success abroad. I am not expecting a cure but more time would be great and the hope for a least some normal life with my family. Kate2101 you need to get to the end of your Folf...
by toodotty
Tue Jul 31, 2018 4:29 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 50603

Nano knife for Stage IV PC.

Hi, The long awaited thread on Nano-knife for Stage IV PC. I have been doing quite a bit of research on this and I am seriously considering this as my next step. I have spoken to the Professor who is very positive about my tumours, "quite small and discrete so there should be no problem treating the...
by toodotty
Tue Jul 31, 2018 4:19 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 44710

Re: Battling to get treament

Yep, definitely dip day today, feeling a bit tired since the steroids have worn off. But that is fine, I have been up and about all weekend and busy. Also I am not constipated and have not needed to resort to laxatives. Took a different approach to Round 6, I have decided because the chemo/steriods ...
by toodotty
Tue Jul 31, 2018 4:04 pm
Forum: Family, friends and carers
Topic: Put the brakes on!
Replies: 5
Views: 10314

Re: Put the brakes on!

Ange, I am sorry to hear about your brother, 59 is not old in terms of Pancreatic Cancer (PC), half of all cases are diagnosed in people 75+ with complex medical needs. Unfortunately the NHS has a one size fits all approach to Stage IV PC, which is basically go home and put your house in order .... ...
by toodotty
Mon Jul 30, 2018 3:23 pm
Forum: Advanced pancreatic cancer
Topic: Diagnosed too late for treatment
Replies: 17
Views: 28402

Re: Diagnosed too late for treatment

Hi Kimmac, Glad that your husband is home but not surprised that he is exhausted. My neighbour got sepsis last year, he was a fit and healthy 40 year old hardworking farmer and it nearly killed him, it took a year for him to recover without having to deal with cancer. Are they offering your husband ...
by toodotty
Sun Jul 29, 2018 1:46 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 44710

Re: Battling to get treament

Hi Kate2101, Glad your round 2 was better and it sounds as though it is already having benefits which is great. I lost most of my hair on this round, it sort of melted and all stuck together when I had a shower and we had to cut it off. It was quite long and thick and to use my husband's words "it l...
by toodotty
Sun Jul 29, 2018 1:37 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 95380

Re: First folfirinox experience

Oh, my sweet craving is Jelly Beans, no idea why!
toodotty
by toodotty
Sun Jul 29, 2018 1:35 pm
Forum: Patient Experience Forum
Topic: First folfirinox experience
Replies: 70
Views: 95380

Re: First folfirinox experience

Hi ladies, Yes the Bluebadge is a bit surreal, but I think will come in useful when the winter sets in, if only for a swift drop-off or pickup from treatment. I could have done with it when I had the bile stent fitted, I had to leave hospital in a wheelchair as I was unable to stand up without faint...
by toodotty
Sat Jul 28, 2018 8:14 pm
Forum: General chat
Topic: Time
Replies: 30
Views: 39224

Re: Time

Hi Fairy, I agree with the nurses, you need and are entitled to a second opinion. Clearly something is not right if after being given 12+ months to live that your mum has suffered so much. It can be a postcode lottery for cancer treatment and it is wrong that she has been written off so quickly. My ...
by toodotty
Sat Jul 28, 2018 7:55 pm
Forum: Family, friends and carers
Topic: Sadness
Replies: 11
Views: 15184

Re: Sadness

Hi Kerry, I am so sorry to hear about you and your poor dad. I totally understand how he feels about wanting to die, I too got to a position whilst waiting treatment and asking myself what is the point of this much pain? You are absolutely right to fight for what is right for all of you, not just yo...
by toodotty
Sat Jul 28, 2018 7:40 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 44710

Re: Battling to get treament

Hi All, Serves my right for being so smug about how well I had been feeling, it all caught up with me on Thursday. After a great week, I woke Thursday morning with a headache, thanks to the unbearable heat, by Thursday afternoon this turned to a raging temperate (38.5 and rising) and shivers, I was ...

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