Search found 60 matches

by KeithKerry
Fri Jan 18, 2019 10:47 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 128966

Re: This cruel disease

Thank you so much Theresa The first day after Folfirinox Kerry was out shopping with her youngest daughter (wrapped up warm against the cold because of the risk of that particular side effect relating to cold air and cold surfaces), pump, PICC line and all. I love her "to hell with it" attitude. It ...
by KeithKerry
Wed Jan 16, 2019 10:22 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 128966

Re: This cruel disease

Thank you Ann

I hope things have improved for Dan.
by KeithKerry
Wed Jan 16, 2019 8:30 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 128966

Re: This cruel disease

Theresa Upton wrote: > Hi Keith, how is your daughter doing, has she started the trail yet? > > > My thoughts and best wishes are with you > > > Theresa Hi Theresa Despite being deemed fit enough to be considered for the trial, unfortunately Kerry's name was not one of those that 'came out of the ha...
by KeithKerry
Mon Dec 24, 2018 4:24 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 128966

Re: This cruel disease

Well, that wasn't as bad as I was dreading. The 2nd line treatment is indeed Folfirinox of some variety but we are lucky enough to have got a place on a trial that has 50 % chance of including a second experimental active ingredient AM0010 which is a trial of immunotherapy, which I'm very excited ab...
by KeithKerry
Sat Dec 22, 2018 10:52 am
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 128966

Re: This cruel disease

Hi Dee We had a mixture of news from the scan. The primary tumour is still dormant and much smaller than it was. Some lymph nodes have returned to normal (that was a real boost!) but there are signs of either fresh growth in her liver or regrowth of original cells that were too small to see on the s...
by KeithKerry
Wed Dec 19, 2018 12:45 pm
Forum: Family, friends and carers
Topic: My mum - Stage 4 PC with liver mets
Replies: 85
Views: 204390

Re: My mum - Stage 4 PC with liver mets

Good luck Kate and Erika

I will watch for replies with great interest as I will be asking questions of our Oncolgist regarding Nanoknife myself on Monday.
by KeithKerry
Tue Dec 18, 2018 7:04 pm
Forum: Advanced pancreatic cancer
Topic: My big brother
Replies: 22
Views: 22375

Re: My big brother

BromsgroveSister wrote: > My big brother has worsened since my last post. He has now been told that > his cancer is now too advanced to receive chemo. This is such a cruel blow. > Especially when he was told on the 21st Nov that he shouldn’t “panic” as > his cancer wasn’t particularly active so we d...
by KeithKerry
Tue Dec 18, 2018 5:43 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 40
Views: 42088

Re: Folfirinox Round 7

Hi again Sam Nab-Paclitaxel/Gemcitabine is the 'good stuff' in my book. It's what Kerry has been treated with as a first line treatment and responded so well to with very few symptoms. Certainly no seriously debilitating symptoms anyway. I'm glad you're going with your Mum for her chemo sessions. We...
by KeithKerry
Mon Dec 17, 2018 11:32 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 40
Views: 42088

Re: Folfirinox Round 7

Samsavan wrote: > Hi Keith > I just want to say I have read all your posts and you and your daughter > give me hope for my mum. I sincerely hope your beautiful daughter is doing > alright. I know what it may Feel like to have all clear and to have this > lingering feeling of this wretched thing retu...
by KeithKerry
Tue Dec 11, 2018 9:03 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 40
Views: 42088

Re: Folfirinox Round 7

Best of luck Erika. I really hope that the Nanoknife helps you. I wrote to my MP about getting faster treatment for PC patients and got a very nice and positive personal reply. That's a direct result of what you have started. You are a very brave and determined person that many others will take hear...
by KeithKerry
Thu Nov 22, 2018 5:43 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 40
Views: 42088

Re: Folfirinox Round 7

toodotty wrote: > Hi KeithKerry, > It is difficult not to worry about the big C even if it seems to have > disappeared, it will always be there in the background. Your daughter just > needs to listen to her body, any sign of change of digestion, even > something as simple as "oh that seems to have g...
by KeithKerry
Sun Nov 18, 2018 10:00 pm
Forum: Patient Experience Forum
Topic: Folfirinox Round 7
Replies: 40
Views: 42088

Re: Folfirinox Round 7

I'm glad it's going well for you. I remember years ago reading about a man that visualised that he had a pacman running round in his body gobbling up the cancer cells. He was eventually clear of cancer. That has stuck with me since I read it as a young teenager. I really hope your next scan results ...
by KeithKerry
Tue Nov 06, 2018 8:14 pm
Forum: Advanced pancreatic cancer
Topic: Successful Surgery in Heidelberg Germany - Inoperable in UK
Replies: 32
Views: 68751

Re: Successful Surgery in Heidelberg Germany - Inoperable in UK

If anyone can share any information about experiences they know of with Heidelberg, or how anybody would go about contacting the right people to set things in motion, I would be eternally grateful. I have to explore every possibility for my Daughter.
by KeithKerry
Sun Nov 04, 2018 7:22 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 128966

Re: This cruel disease

We are fortunate that our hospital is the regional centre for Pancreatic Cancer (and other Cancers). It's on our doorstep (my Wife and I have worked there for many years in admin roles). I do know that our MDT that covers PC meets every week to follow up on all patients and to make sure that they ar...
by KeithKerry
Sat Nov 03, 2018 9:50 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 128966

Re: This cruel disease

It seems that we were extremely fortunate as treatment started 3 weeks after we got confirmation of the horrifying diagnosis. However, I read an awful lot Pancreatic Cancer Facebook pages, forums, blogs, anything that I can get my eyes on and it does seem that in the UK we are frequently very slow t...

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