Search found 82 matches

by PCUK Nurse Rachel R
Wed Oct 10, 2018 2:02 pm
Forum: General chat
Topic: Potential pancreatic cancer, help please!
Replies: 7
Views: 12332

Re: Potential pancreatic cancer, help please!

Hi Paige Just thought I would briefly say Hi, I'm Rachel, one of the Nurses here at the charity on the support line. I am sorry to hear that you are going through such an anxious time at the moment with Mum. Please don't hesitate to call or email us so that we can go through things together if this ...
by PCUK Nurse Rachel R
Fri Sep 28, 2018 2:23 pm
Forum: Ask the nurse
Topic: Scary times
Replies: 1
Views: 7219

Re: Scary times

Dear Vanessa I just wanted to say hello and welcome to the forum on behalf of the nurses here on the support line. I appreciate that you would never have imagined being on a forum such as this. I do hope that you receive valuable support here from the 'forum family'. I am very sorry to hear about yo...
by PCUK Nurse Rachel R
Fri Sep 28, 2018 1:05 pm
Forum: Patient Experience Forum
Topic: Just my story....Michaela1.x
Replies: 19
Views: 23717

Re: Just my story....Michaela1.x

Hi Michaela Thanks for the update. You have had quite a time - well done for persevering through all that, it must not have been easy. That is good news in getting home and also that your Ca19-9 has come down remarkably. We wish you all the best as you continue chemotherapy. You know where we are if...
by PCUK Nurse Rachel R
Fri Sep 28, 2018 12:58 pm
Forum: General chat
Topic: Time
Replies: 30
Views: 35859

Re: Time

Dear Fairy It's Rachel here. I am so sorry to hear about how tough things are for you and Mum at the moment. My heart goes out to you. Please don’t feel inadequate, you are doing so much for Mum and am certain you will be caring for her so well. Mum will know how much you are trying your very best f...
by PCUK Nurse Rachel R
Wed Aug 29, 2018 3:21 pm
Forum: Family, friends and carers
Topic: Update on my dad - gemcitabine chemo
Replies: 8
Views: 13581

Re: Update on my dad - gemcitabine chemo

Dear dmschampion I also wanted to offer heartfelt condolences for the loss of your Husband from the Nurses here. Our thoughts are with you as you grieve your brave Husband. It was lovely to hear that he was at peace towards the end and that he received such good care. We are here to talk if ever you...
by PCUK Nurse Rachel R
Sat Aug 11, 2018 3:43 am
Forum: Ask the nurse
Topic: Creon Shortage
Replies: 5
Views: 11767

Re: Creon Shortage

Hi there Thought it was useful to share this here as an update; Pharmaceutical company, Mylan have announced that supplies of pancreatic enzyme supplement, Creon, of 25,000 and 40,000 capsules have been received in the UK. This may take some time to be sent to your local pharmacy . If you have any c...
by PCUK Nurse Rachel R
Fri Aug 03, 2018 3:44 pm
Forum: Patient Experience Forum
Topic: Nano knife for Stage IV PC.
Replies: 41
Views: 45107

Re: Nano knife for Stage IV PC.

Hi Folks I thought it might be a good opportunity to update you on some aspects that you are mentioning in these posts. Currently in the UK we are still lacking sufficient data to recommend Nanoknife in certain conditions. We are aware that the provision of this may differ with each individual and a...
by PCUK Nurse Rachel R
Fri Aug 03, 2018 11:19 am
Forum: General chat
Topic: Time
Replies: 30
Views: 35859

Re: Time

Hi Fairy I am glad to hear that Mum is going to the hospice for a time and I do hope they are able to get on top of her symptoms. Please do keep us updated. Thinking of you. Rachel Rachel Richardson Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.or...
by PCUK Nurse Rachel R
Tue Jul 31, 2018 3:57 pm
Forum: Advanced pancreatic cancer
Topic: Diagnosed too late for treatment
Replies: 17
Views: 25913

Re: Diagnosed too late for treatment

Hi Kimmac Good news that your Husband is now back home. I do really hope that you can have some special time together along with your Children. In relation to antidepressant medication please don’t hesitate to give us Nurses a call on the support line – our details are in the signature below. You ra...
by PCUK Nurse Rachel R
Tue Jul 31, 2018 3:38 pm
Forum: Family, friends and carers
Topic: Put the brakes on!
Replies: 5
Views: 9989

Re: Put the brakes on!

Dear Ange I just wanted to welcome you here to the forum on behalf of the nurses. I am sorry to hear about your Brother's diagnosis. I can only imagine how difficult and anxious a time this is. I do hope that his condition improves to enable him to receive some chemotherapy if this is his wish. Plea...
by PCUK Nurse Rachel R
Fri Jul 13, 2018 10:45 am
Forum: Family, friends and carers
Topic: pnet husband having surgery soon
Replies: 6
Views: 11546

Re: pnet husband having surgery soon

Dear Tessa48

That's is wonderful news. Thanks for sharing and for your kind words for the Forum Family.

Best wishes

Rachel

Rachel Richardson
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707
by PCUK Nurse Rachel R
Tue Jul 03, 2018 5:07 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 40018

Re: Battling to get treament

Hi there kate2101 It’s Rachel here, I’m one of the other Nurses on the support line. I am glad to hear that you have now been seen by Oncology and that you have opted for folfirinox. We know that this regime is difficult to tolerate but is also showing us the best results in terms of outcome. I can ...
by PCUK Nurse Rachel R
Tue Jun 12, 2018 2:05 pm
Forum: Patient Experience Forum
Topic: Battling to get treament
Replies: 39
Views: 40018

Re: Battling to get treament

Dear toodotty I wanted to say a big welcome you to the forum, particularly from the Nursing team here. I do hope that you will find the forum family here a great source of support and comfort as so many do. Thank you for sharing your story so far. I am extremely sorry to hear of your diagnosis and a...
by PCUK Nurse Rachel R
Wed Jun 06, 2018 4:39 pm
Forum: Family, friends and carers
Topic: Mum Diagnosis
Replies: 13
Views: 15184

Re: Mum Diagnosis

Hi Margie I also wanted to welcome you to the forum on behalf of the Nurses here. Unfortunately we do often find that people with pancreatic cancer do have a complex diagnostic pathway. It does sound as if Mum has been diagnosed on the basis of her CT scan but it is the histological diagnosis that i...
by PCUK Nurse Rachel R
Tue May 22, 2018 3:47 pm
Forum: Family, friends and carers
Topic: This cruel disease
Replies: 105
Views: 122500

Re: This cruel disease

Hi KeithKerry That is so good to hear that your Daughter is keeping so well. Well done her. As you say another treatment down. I do wish you all the best as she heads towards the re-staging scan. With Kind wishes Rachel Rachel Richardson Pancreatic Cancer Specialist Nurse Support Team Pancreatic Can...

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