Pancreatic Cancer UK

Hi The_petal, Sorry to hear that you've had a frustrating time and also about your back pain. We're happy to advise you if you'd like to drop us an email or call us on support line? Best wishes Rachel & Support line nurses Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: n...

Hi there ChrisTan, My name is Rachel, I'm one of the Nurses that works on the support services at the charity. I'm sure the forum family will reply soon, I just wanted to briefly say hello and welcome you on behalf of the nurses. I also wanted to pass on my heartfelt sympathies for your loss of Mal....

Hi LST, I'm so incredibly sorry and sad to read of your lovely Mum's passing. Thank you for sharing Mum's end of life story and pouring your heart out. Your Mum sounds such an amazing and brave lady. I'm certain she is massively proud of you and thankful for all you did as you tried to fight this dr...

Hi jac98, Welcome to the forum on behalf of the Nursing team here at the charity. I am sorry to hear of your Dad’s diagnosis of a pancreatic neuroendocrine tumour. I imagine it must be incredibly hard and often frustrating to live quite a distance from your parents and not be able to be there at the...

Hi Soo123, I'm sorry to hear that you've had a frustrating time over recent months and that you are still bothered with abdominal and back pain and other symptoms too. I imagine this is having a significant impact on you day to day. It may be best if we speak or email directly if you'd find this hel...

Hi Mohammed, I'm sorry that you're going through such an incredibly anxious time at the moment. It is positive that you are having all the appropriate investigations as you should and that they seem to be happening in a timely manner. Some Hospitals do not offer an EUS service so that is likely to r...

Hi The_petal, Doing a little search of the literature I see there is some conflicting evidence out there regarding this, some papers even suggest that it can increase white blood cells. However I think it is unlikely that a taking low dose of morphine will be contributing to your low neutrophil coun...

Hi there KeithKerry, I’m sorry to be reading your post. You must all be incredibly sad and disheartened that despite what she has gone through your Daughter’s treatment has not had the impact you and all of us on the forum were hoping for. I just wanted to let you know that we are thinking of you an...

Hi LST, I'm sorry to hear Mum's pain is not well controlled at the moment. I imagine you must be incredibly anxious for her. Do give us a call LST or send an email if you would like to discuss directly with us - details below. Kind wishes, Rachel Rachel Richardson Pancreatic Cancer Specialist Nurse ...

Hi there, Lisa47, I’m very sorry to hear that your Mom has been diagnosed with advanced pancreatic cancer. I can appreciate that you are going through an incredibly anxious time as you try and navigate your way through treatment options and do all you can to help Mom. I will send you an email so tha...

Some of you may now know the very sad news that Erika Vincent, who has been at the forefront of our Demand Faster Treatment campaign, passed away last week. All of our thoughts are with her loved ones at this extremely difficult time. I’m sure so many of you will be aware of Erika and her amazing, i...

Thank you all for all your lovely comments about Erika. She was such an amazing and brave lady who has helped so many with her posts on the forum, always so keen to offer help and support to those affected. She has inspired and spurred on the pancreatic cancer community and I have no doubt that she ...

Thanks Proud Wife for your lovely words and wise advice. Hi LST, I also wanted to welcome you to the forum on behalf of the Nurses. I'm sorry also to hear of your Mum's diagnosis and all the anxiety and upset that you are going through. Please know that we are here for you and stand with you in the ...

Dear drtzzr1100, I'm so very sorry to hear of the loss of your brave Husband. On behalf of us nurses here, we would like to extend our deepest sympathies to you and your family - please know that you are in our thoughts. It is lovely to hear that he was at home surrounded by all his Family. Thinking...

Hi there, Folfirinox was first introduced to the UK around 2012, initially this was only given to very fit and younger patients (initially 50 yrs and under). This was well tolerated and had some impressive results in some patients and over the last years older patients have had access to this too. H...