Pancreatic Cancer UK

Hi Jess, It's Rachel here one of the nurses. Welcome to the forum and thanks for posting. I am sorry to hear of your Husband's recent diagnosis. It's good news to hear that he is able to have surgery. I'm sure though you will be incredibly anxious about what lies ahead. Here at the charity we have a...

Hi concerneddil, It's Rachel here, one of the nurses from the support line. I am sorry to hear that your MIL's pancreatic cancer has returned. I'm sure you must all be devastated. I'm glad to hear she's having further investigations and that a treatment plan will be agreed. Hopefully your MIL can ac...

Hi angelina27, It's Rachel here, one of the nurses at the charity. Thanks so much for your post and for being brave putting yourself out there. I'm sure people will comment to let you know of their experiences. I just wanted to say hi and welcome you here. If you would like a chat to us on the suppo...

Hi SandraW, Thanks so much for sharing yours and your Husbands' experience, I am sorry for your loss. I'm sure reading your post will be really helpful for folk. I'm sure you must still miss your Husband so much. Its sounds like you have so many special memories and made sure to make the most of his...

Hi Pablo88 I know the waiting must be awful for you all, I hope you are further forward after your call later today. Please do contact us, it will be a pleasure to chat on the phone or over email. I’m afraid that our service is closed on Friday as it’s a bank holiday. We’re here today until 4pm on t...

Hi Pablo88, It’s Rachel here one of the nurses from the charity. A big warm welcome to the forum, we appreciate it’s not where folk would want to me but I’m sure people on here will make you feel very welcome and support you. I am sorry to hear of what has been happening with Mum over recent weeks. ...

Hi dave b, Thanks for your post and providing a little more information. The plan that you have been given makes much more sense if you have been told that you have a NET, we did not know this was the case. I wonder if you’re aware of another charity called Neuroendocrine Cancer UK? Here at PCUK our...

Hi dave b I’m glad to hear you’ve discussed things with your Consultant and have answers to the majority of your questions. Can I ask have you had a biopsy of the tumour taken? I see you mention in an earlier post that the tumour is malignant but I just wanted to clarify that this is correct and tha...

Hi dave b, I do appreciate where you’re coming from in wanting to find out answers to questions. We recognise that some people are not comfortable in sharing more than a certain level of information for public view, which is completely understandable and we have to maintain people’s privacy. Sometim...

Hi JohnDoe60, It's Rachel here, one of the nurses. I am sorry to hear that Mom is still having ongoing issues with her stools and is struggling in maintaining, or gaining weight. It's great to hear Mom's scan was all clear. I'm sure this was a big relief. I wonder whether you might consider contacti...

Hi Annieb, I'm Rachel, one of the specialist pancreatic nurses. I am sorry to hear that things are so tough at the moment for your Husband and you. Annabelle has given you some great advice, especially about trying to contact a specialist nurse. In terms of the hiccups, it would be good to try and e...

Hi Dee123, Very sorry to hear the news of your lovely Mum's passing. She sounds like such an incredible Mum and you have been so blessed to have her in your life. I'm sure that she too felt remarkably fortunate to have a Daughter that has loved and cared for her as you have over the last 18 months (...

Hi there hiljohn, Rachel here - one of the nurses. The recommendation is to take Creon with water but if this is the only way that you're managing it then I would think taking it with a small amount of milk would be fine. I see you mention its cold milk as heat will deactivate the enzymes. If you wi...

Hi Dee123, I am sorry too to hear that Mum's chemotherapy has been stopped. I know these won't be easy days. I really hope Mum is comfortable and getting the support and care she needs. You know where we are if you'd like to chat or email. We're closed the bank holidays but open 10am -2pm the other ...

Hi Dee123, Sorry to hear this news about Mum, I hope now that she has a had a few days worth of antibiotics that she is feeling slightly better and that there is a plan about the replacements stents. You know where we are if you's like to chat, or if there's anything we can help with. Kind wishes to...