Pancreatic Cancer UK

Hi Dee123, Very sorry to hear the news of your lovely Mum's passing. She sounds like such an incredible Mum and you have been so blessed to have her in your life. I'm sure that she too felt remarkably fortunate to have a Daughter that has loved and cared for her as you have over the last 18 months (...

Hi there hiljohn, Rachel here - one of the nurses. The recommendation is to take Creon with water but if this is the only way that you're managing it then I would think taking it with a small amount of milk would be fine. I see you mention its cold milk as heat will deactivate the enzymes. If you wi...

Hi Dee123, I am sorry too to hear that Mum's chemotherapy has been stopped. I know these won't be easy days. I really hope Mum is comfortable and getting the support and care she needs. You know where we are if you'd like to chat or email. We're closed the bank holidays but open 10am -2pm the other ...

Hi Dee123, Sorry to hear this news about Mum, I hope now that she has a had a few days worth of antibiotics that she is feeling slightly better and that there is a plan about the replacements stents. You know where we are if you's like to chat, or if there's anything we can help with. Kind wishes to...

Hi Pete, Welcome too to you on behalf of the nursing team here. Glad you have found this forum and that you are finding it beneficial. We are here too for anything that you may like to discuss, whether it's questions about chemotherapy or difficult to manage certain symptoms, or even if you just nee...

Hi StPancreas, It's Rachel here, one of the other nurses. Yes we would usually encourage folk to take the PPI medication regularly, most people tend to take this as a once daily medication or for some that continue to struggle with absorption it may be appropriate to divide this into 2 doses, this w...

Hi StPancreas, It's Rachel here, one of the nurses. I'm really pleased to see that you've had a positive conversation and hopefully now will see movement. Well done on providing the time line - I think this is a really powerful way to get the message across. You know where we are if you need to chat...

Hi Rlewis, It's Rachel here one of the nurses from the support service, I hope you don't mind me responding to your post. I am sorry to hear about your diagnosis and ongoing pain, this must be very difficult to cope with. Perhaps you would like to discuss your pain more via email or via our free con...

Dear AndAde, I'm so incredibly sorry to read your post, I can only imagine the pain that you're all going through. You're in our thoughts and do please be in touch if you'd like to talk. Kindest wishes, Rachel Rachel Richardson Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK ema...

Hi LST, Rachel here, one of the nurses. I'm so incredibly sorry for the loss of your lovely Mum. My heart goes out to you for all the pain you're going through. Please do accept our deepest sympathies. I will email you directly, please don't feel you're alone. Kindest wishes, Rachel, Dianne, Nicci &...

Hi KarenR, My name is Rachel, I'm one of the nurses on the support services at the charity. I hope you don't mind me responding to your post. I wanted to say hi and welcome you here, I'm sure others will post soon. I am terribly sorry to hear of your Husband's diagnosis, I can only imagine the heart...

Hi StPancreas, It’s Rachel here one of the other nurses. That’s is really positive to hear that Mum is doing well at the moment and that you feel she would fall into performance status 1. You are doing all the right things and I completely agree that it’s important to do all you can in order to acce...

Hi mummy.may Wanted to say a big welcome to you here on behalf of the nurses here. Fantastic news to share. Well done on reaching such a milestone. Kind wishes, Rachel, Dianne, Jeni and Nicci Pancreatic Cancer Specialist Nurse Support Team Pancreatic Cancer UK email: nurse@pancreaticcancer.org.uk su...

Hi Mai, Thanks for your reply, I'm Rachel - one of the other nurses. There are numerous reassuring things here which is positive. Perhaps if you wish to chat further with one of us then please do give our support service a call or send an email. It's good that your GP is continuing to see you and do...

Hi JaneL, My name is Rachel, I'm one of the nurses that works on the support service, I hope you don't mind me replying to your post. I am sorry to hear that your Husband's condition is declining and that you are encountering things such as confusion. It can be very difficult and distressing to see ...