Search found 59 matches

by Marmalade
Thu Aug 31, 2017 11:51 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 290483

Re: Thanks for sharing your experiences . . .

Hi Mo,

PW wants me to tell you she is thinking of you and sending positive vibes, she is having some trouble accessing the forum at the moment.

I will also be thinking of you both tomorrow as always M xx
by Marmalade
Thu Aug 31, 2017 11:33 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 119712

Re: Thoughts from the PC frontline

Dearest W&M, I know it's easy to say but this disease really is a roller coaster! I know you are in a down dip and truly, I can understand the anxiety, every time there is a set back it's as if we are facing the diagnosis again for the first time, the limbo land we live in beguiles us along the way....
by Marmalade
Sun Aug 27, 2017 2:51 am
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 121632

Re: Stephen's Story

Hi Sandie, How well we know the struggle to hold back from cajoling them to eat but there comes a time when it causes more pain and distress than it cures, you get fed up nagging and they get fed up trying to do what they can't do. I'm sorry things are catching up with you at the moment and that Ste...
by Marmalade
Sun Aug 27, 2017 2:31 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 290483

Re: Thanks for sharing your experiences . . .

Darling Mo, I am so sorry I have been lax in messaging with you. I can't fix it of course but you should know that we are all here, making time and walking with you in good times and bad. I'm glad Peter has broken his silence on his prognosis and that you will know what he ideally wants to happen to...
by Marmalade
Sat Aug 12, 2017 11:03 pm
Forum: Patient Experience Forum
Topic: What lies ahead
Replies: 9
Views: 15203

Re: What lies ahead

Dear Mags, You have made the first important step in finding your way by posting on here, this forum has the potential to be your personal place where you can bring your thoughts and feelings privately and safely with the guarantee that those who post and watch completely understand. Sadly no one ca...
by Marmalade
Thu Jul 27, 2017 6:12 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 290483

Re: Thanks for sharing your experiences . . .

Hi Mo, Glad the boy is out with his clubs and you got a swim. It's absolutely fabulous that Peter has had another year and is doing ok. This disease certainly makes you have a good look at your priorities and you have done really well too. I hope you take care of yourself and your health issues. You...
by Marmalade
Thu Jul 27, 2017 6:04 pm
Forum: Family, friends and carers
Topic: The nightmare so far....
Replies: 36
Views: 40222

Re: The nightmare so far....

Hi Andrea, I'm so sorry that you have had such a horrible time. We all completely understand the roller coaster ride and you will find many on here who will empathise with your husbands refusal to engage on end of life discussions. I had a thread on here about "Our journey without chemo" if you want...
by Marmalade
Mon Jul 17, 2017 2:48 pm
Forum: Coping with loss/ Memorial
Topic: Carrying On
Replies: 77
Views: 77164

Re: Carrying On

Hi Didge, Well if I have done nothing more than tell you that you are not alone it is something. I know what you mean about questioning relationships, dare I say it, even with ones children... It was actually my Financial Advisor who broke the news to me "your children don't need you" sounds harsh b...
by Marmalade
Sun Jul 16, 2017 9:18 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 178161

Re: Mum of 42 recently diagnosed inoperable PC

Thank you Tony, I know it's ghastly to be left but I'm glad it was quick in the end. I think you're right that the doctors knew what was coming but I wish they could have been more honest so that you were not left how you were. The hospice and palliative care doctors are brilliant aren't they? I hop...
by Marmalade
Sun Jul 16, 2017 6:50 pm
Forum: Ask the nurse
Topic: Whipple imminent, mass in head of pancreas - is this still classified as cancer
Replies: 12
Views: 14422

Re: Whipple imminent, mass in head of pancreas - is this still classified as cancer

Hi Smileymum, I have a daughter who is a doctor and am generally supportive of doctors but given your diagnosis, treatment options and the ongoing need for support I really do think it would be better to change GP now while you are comparatively well. It need not be a confrontational or unpleasant t...
by Marmalade
Sun Jul 16, 2017 6:11 pm
Forum: Coping with loss/ Memorial
Topic: Carrying On
Replies: 77
Views: 77164

Re: Carrying On

Hello all, It's a long time since I've posted on this thread but as Louis' anniversary draws closer I find myself drawn back to read again the "our journey without chemo" posts as I was in the immediate aftermath of his death. I hear from others that they too found it necessary to re-read their thre...
by Marmalade
Wed Jul 12, 2017 9:06 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 290483

Re: Thanks for sharing your experiences . . .

Hi Mo, So glad you have had a good week and don't you fret one bit about being smug. You are spot on with the good times being very special and I can't tell you how pleased I am that you are having this "ordinary" time together. That Peter is so well is due in no small part to your excellent care. G...
by Marmalade
Sun Jul 09, 2017 12:33 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 290483

Re: Thanks for sharing your experiences . . .

Greetings Mo,

Hope the tournament went well and that you are now able to rest a little and maybe get a swim for yourself. Thinking of you xxxx
by Marmalade
Sun Jul 09, 2017 12:31 pm
Forum: General chat
Topic: Improvement in 5 year survival in England
Replies: 1
Views: 7076

Re: Improvement in 5 year survival in England

What a brilliant post. The odds are still appallingly low but at last I think we are seeing more awareness, earlier diagnosis and more research. Thanks for posting xxxx

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