Search found 59 matches

by Marmalade
Mon Dec 04, 2017 9:40 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336936

Re: Thanks for sharing your experiences . . .

Darling Mo, Your writing is a great treat for us all, it's full of seemingly insignificant cameos which say such a lot. I, and I suppose many others empathise with your anxieties and the checking of the meds and so many other things. I read your words and I am back there watching, waiting... I am so...
by Marmalade
Fri Dec 01, 2017 11:33 am
Forum: Patient Experience Forum
Topic: What lies ahead
Replies: 9
Views: 19451

Re: What lies ahead

Dear Mags, Was just wondering how things were going with you? Constipation is very uncomfortable. My doctor daughter suggested the old fashioned California Syrup of Figs for my husband as it does not use anything to make your stomach cramp unlike some laxatives. Also, the GP recommended children's s...
by Marmalade
Fri Dec 01, 2017 11:17 am
Forum: Family, friends and carers
Topic: New - feeling scared
Replies: 8
Views: 7029

Re: New - feeling scared

I am so sorry you have found yourself here, everyone on here knows exactly how you feel so you never need apologise for feeling hurt or angry or despondent. As other have said there is financial help available almost immediately you get the diagnosis. In our case the hospital sent the for DS1500 dir...
by Marmalade
Thu Nov 30, 2017 7:58 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 183006

Re: 36 yo adv pancr cancer patient treated in France

Such sad news of one so young. It is good and reassuring to know she went peacefully. The family will miss their partner and mother but will also have the very finest example of love and courage to guide and inspire them in life. God bless Stepuha, you touched many lives, may you rest in peace. Marm...
by Marmalade
Mon Nov 20, 2017 4:27 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 183006

Re: 36 yo adv pancr cancer patient treated in France

Best wishes Stepuha, Being in hospital is never nice but at least you are getting some relief. I hope that you are feeling a little better and getting some pain free rest and its good to know that you feel you are getting good nursing and treatment. You have many friends on the forum who are thinkin...
by Marmalade
Thu Nov 16, 2017 8:21 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336936

Re: Thanks for sharing your experiences . . .

Morning Mo,

Delighted that the patient is well enough to be giving you the run around! Just wanted to say that I love the play list and might do the same this evening.

Much love xxxx
by Marmalade
Tue Nov 14, 2017 5:25 pm
Forum: Patient Experience Forum
Topic: Overwhelmed
Replies: 6
Views: 12189

Re: Overwhelmed

Dear Fifi, Struggling to find or accept a diagnosis can be very difficult - life is never straight forward and there may be many facets to our health problems. People are very complex and there is not a one size fits all diagnostics kit. It seems from what you tell us that whatever ails you is very ...
by Marmalade
Tue Nov 14, 2017 4:34 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336936

Re: Thanks for sharing your experiences . . .

Great news Mo, really great.

If the injections are heparin they are a doddle but getting rid of the needles is a minefield. We had a sharps box but no one would take it off us!

Sniff the out of date food, if it smells ok it is :)

Glad both patients are making progress

M xxxx
by Marmalade
Mon Nov 13, 2017 4:07 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336936

Re: Thanks for sharing your experiences . . .

Great to hear some better news Mo! It's hard to understand the attitude of some family and friends but there are people who just can't cope with reality so they blank it out, or drink or take drugs or whatever helps them pretend it is not happening. Some it is just illness they can't deal with, I ha...
by Marmalade
Mon Oct 30, 2017 3:03 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336936

Re: Thanks for sharing your experiences . . .

Dearest Mo, For reasons beyond me I have stopped being notified when you post and I am unreliable at checking. I am astounded about the Crafte Fayre and having done many many risk assessments and public events I feel that someone somewhere has misinterpreted the guidelines although anything which sa...
by Marmalade
Thu Oct 26, 2017 12:25 am
Forum: General chat
Topic: So frightened
Replies: 2
Views: 10442

Re: So frightened

Hi Fifi, None of us on here are qualified to say what ails you but you should take heart from the clear colonoscopy and the CT. It sounds like your doctors are eliminating the most serious things first. It's is distressing not to have the answers you seek but there are many non life threatening cond...
by Marmalade
Sat Sep 16, 2017 10:28 pm
Forum: Patient Experience Forum
Topic: Stephen's Story
Replies: 127
Views: 136798

Re: Stephen's Story

Dearest Sandie, I'm so very sorry to read that you and Stephen have been parted, I know it is that which is hell and to his release from suffering. You have been a wonderful wife and made this terrible burden bearable for him. I send you and your family love and prayers in your sad loss and joy for ...
by Marmalade
Sat Sep 16, 2017 10:20 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336936

Re: Thanks for sharing your experiences . . .

Darling Mo, There are no rights and wrongs only your story. Of course you need a bit of help for goodness sake, it doesn't matter that Peter has been comparatively well this last year living with this diagnosis is a form of torture! There are times when knowledge is unbearable. I am so glad that Pet...
by Marmalade
Fri Sep 08, 2017 8:38 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 336936

Re: Thanks for sharing your experiences . . .

Hi Mo, I'm going off line for a week but wanted to drop you a line to say well done for getting in some swimming and adopting a more relaxed attitude to Peters diet. I know it's really hard to let them push a plate away. I'm glad you and Peter are managing this new phase although none of us underest...
by Marmalade
Thu Aug 31, 2017 11:59 pm
Forum: Family, friends and carers
Topic: Thoughts from the PC frontline
Replies: 187
Views: 123640

Re: Thoughts from the PC frontline

Dear W&M,

PW is having some issues accessing the forum but wants you to know she is thinking about you and sending lots of positive vibes for blips R Us xx

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