Search found 93 matches

by stepuha
Thu Jun 29, 2017 11:46 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 159083

Re: 36 yo adv pancr cancer patient treated in France

Thank you Quickly and Dandygirl. I am resting in bed after the biopsy. What a week it has been. My PET scan was moved forward to Monday, so that's all done and dusted. I received my results on Tuesday and it showed no further spread. Three remaining mets in the liver and a pancreatic tumor. All lit ...
by stepuha
Thu Jun 22, 2017 3:58 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 159083

Re: 36 yo adv pancr cancer patient treated in France

Thank you all very much for your warm words. Marmelade - I think you cold water bottle idea is brilliant. I may just try it tonight. According to the weather forecast the temperature will drop next week. I am looking forward to it. PW - I value your honest opinion. I don't have time for sugar coatin...
by stepuha
Thu Jun 22, 2017 3:29 pm
Forum: Patient Experience Forum
Topic: Mom's story
Replies: 12
Views: 15587

Re: Mom's story

Dear TexasDaughter, I am afraid I don't have any experience with end of life care but I just wanted to welcome you and thank you for sharing your experience. It sounds like you are doing a wonderful job looking after your mother but you shouldn't be shy about asking for help. It is a lot to do every...
by stepuha
Tue Jun 20, 2017 8:09 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 285227

Re: Thanks for sharing your experiences . . .

Here is that good news I was looking for. I am happy to hear that Peter is home and that antibiotics are working. That was a quick turnaround. I hope Peter perks up soon. I am sure sunshine will help when it arrives. I have an opposite problem, it is far too hot and I can't wait for the rain to cool...
by stepuha
Tue Jun 20, 2017 7:44 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 159083

Re: 36 yo adv pancr cancer patient treated in France

Good evening, Elaine, thank you very much for your warm message. I wrote a post half way through the month when I was feeling low and then deleted it when I recovered. Brief recap, I had an allergic reaction to Oxaliplatin, I became res and covered with spots. The nurses stopped chemo and gave me an...
by stepuha
Tue Jun 20, 2017 7:18 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 224929

Re: Carls story

I am very sorry for your loss.
Rest In Peace, Carl.
Big hug.
stepuha
by stepuha
Fri Jun 16, 2017 11:51 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 224929

Re: Carls story

Dear Rob,
I am so sorry to read your news. I am thinking of you both and wishing you strength in facing what's to come.
Big hug
stepuha
by stepuha
Fri Jun 16, 2017 11:28 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 285227

Re: Thanks for sharing your experiences . . .

Hello Mo, I am very happy to hear about the scan results. The possibility of infection is worrying but it sounds like everyone has been very efficient with attending to Peter and trying to figure out what's wrong. Sometimes the stent can get unblocked by itself which is hopefully what has happened. ...
by stepuha
Fri Jun 16, 2017 7:26 am
Forum: Family, friends and carers
Topic: Hello
Replies: 110
Views: 80644

Re: Hello

Dear Veebee, I am so sorry for your loss. I am glad Allan was in peace and surrounded by family. You have been amazing at helping him through the torment. Sending love to you and your family.
Big hug
stepuha
by stepuha
Fri Jun 09, 2017 10:49 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 285227

Re: Thanks for sharing your experiences . . .

Many thanks, Mo. Very helpful advice.
Very simple solutions from the nurse and dietician. I hope they make a difference.
Have a lovely weekend!
x stepuha
by stepuha
Thu Jun 08, 2017 8:43 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 285227

Re: Thanks for sharing your experiences . . .

Hello Mo, I am sorry to hear that you have been feeling down but I understand that scan results and uncertainty don't make it any easier. I can't understand why I can get my scan results the same day and everyone on NHS has to wait weeks for the results. It almost feels like cruelty. The 30 minutes ...
by stepuha
Mon May 29, 2017 7:20 pm
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 159083

Re: 36 yo adv pancr cancer patient treated in France

Thank you W&M, your opinion is worth a lot. I will look into chemosaturation, I have not heard of it before.
Xx stepuha
by stepuha
Mon May 29, 2017 9:00 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 159083

Re: 36 yo adv pancr cancer patient treated in France

Hi DG, I am always happy to hear your frank views :-) a. Of course I know that blips are rare but still possible, especially in the presence of a stent. For the moment there is no trend as such, only one increase, not very substantial but it should not be ignored in any case. I am already doing all ...
by stepuha
Fri May 26, 2017 8:44 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 159083

Re: 36 yo adv pancr cancer patient treated in France

Thank you ladies! You always say exactly what's I need to hear.
Wishing everyone a lovely weekend!
X stepuha
by stepuha
Tue May 23, 2017 11:14 am
Forum: Patient Experience Forum
Topic: 36 yo adv pancr cancer patient treated in France
Replies: 172
Views: 159083

Re: 36 yo adv pancr cancer patient treated in France

Greetings to everyone from sunny Lyon! Elaine, it is so lovely to hear from you. Welcome back to the forum! I am in the hospital waiting for Folfirinox to start. These days I get a pill that puts me to sleep during FF and that it makes it somewhat easier. I had a great month during Gem/Abraxane cycl...

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