Search found 473 matches

by Justamo
Wed Jan 10, 2018 4:25 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

The train came at 16.10 and Peter got on it.

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by Justamo
Wed Jan 10, 2018 12:29 pm
Forum: Patient Experience Forum
Topic: Possible Pancreatic Cancer
Replies: 2
Views: 10744

Re: Possible Pancreatic Cancer

Poor, poor guy. Imagine living with somebody like that ? He obviously stalks websites looking for symptoms. Hope he doesn't go onto Jo's Trust to check that out.

Really sad, and a dreadful condition in a way because as soon as he's "cured" of one obsession he'll get another one.
by Justamo
Wed Jan 10, 2018 12:22 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

The hospice rang me at 0730 this morning because I had asked to be told of any changes, and they had noticed a difference in Peter's breathing. So I fed Boo, washed my face, forgot to comb my hair because I don't look in mirrors anymore, and came here. The body which is housing my beloved is noisy a...
by Justamo
Tue Jan 09, 2018 8:46 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

I have been thrown out of the hospice. Not literally, but firmly advised by the lovely doctor in charge of Peter that I am exhausted and would benefit from some time out. Trouble is that while I am with him I find it so distressing listening to his breathing that I want to run away and as soon as I ...
by Justamo
Tue Jan 09, 2018 12:27 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

The nurses have just tarted him up a bit and squirted him with Sauvage. He smells lovely !
by Justamo
Tue Jan 09, 2018 10:55 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

Back at the hospice now. They have turned him on his side and he seems more comfortable. What a fighter. Peter was an Action Man in his youth. Diving, climbing, skiing - he worked as a ski instructor at weekends in the winter. Not especially because he wanted to share the beautiful scenery and the e...
by Justamo
Tue Jan 09, 2018 8:57 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

I came home at 0500 this morning for a short nap and freshen up. I've just rung the hospice, he's still waiting for his train and much the same as when I left him. His breathing is so harsh, it sounds like noisy snoring and it's been like that for more than 36 hours. I'll have a shower and go back t...
by Justamo
Mon Jan 08, 2018 11:11 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

I am staying at the hospice tonight; just feels like the right place to be. I nipped home to give Boo a quick cuddle and a dishful of food; he was not particularly impressed with the cuddle but professed mild interest in the food. I bet the whole lot went down in one as soon as I shut the front door...
by Justamo
Sun Jan 07, 2018 1:33 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

All quiet on the hospice front. Peter is waiting patiently for the next train, and the waiting room is so luxurious and comfortable - if Richard Branson ran it it would be called Rockstar - that he's quite content to bide his time. His breathing is uneven, and a bit noisy, although the noise is most...
by Justamo
Sat Jan 06, 2018 6:05 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

As a Catholic, I have always thought of death as a matter of changing trains to reach our ultimate destination. It seems to me that Peter is in some sort of waiting room, perhaps on Platform 2018, biding time until the right train comes along. A bit like those VIP airport lounges. May sound a bit si...
by Justamo
Fri Jan 05, 2018 11:35 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

Thanks V. I feel quite cwtched. I've just got home, because I was concerned about Boo, and they have just had to give Peter another dose of chemical cosh. He roused a little, so they tried, so carefully and gently, to take him to the bathroom but he wasn't prepared to cooperate one little bit. Even ...
by Justamo
Fri Jan 05, 2018 10:21 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

I am at Peter's bedside now, quite comfy in a reclining armchair. I have bought in the patchwork quilt from his bed at home, complete with Boris's fur, so that Peter has something familiar near him if he wakes up. I think it's clear that I won't be taking him home again. The lovely doctor told me th...
by Justamo
Thu Jan 04, 2018 9:06 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

Everything about the hospice is wonderful. The staff, the surroundings - Peter has a room overlooking the river with its own patio - the ambiance, the facilities for visitors, everything is perfect. It's really 5*, and people like me lower the tone. Grey skin and hair, wearing the only pair of jeans...
by Justamo
Thu Jan 04, 2018 6:41 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

It's 06.30 and I've been following Peter around all night, replacing furniture and trying to repair his TV. The room is full of fieldmice which he is trying to chase, and in despair I rang NHS 24 again and listened to their advice for 30 minutes while in the queue. I finally spoke to a doctor, who s...
by Justamo
Wed Jan 03, 2018 7:55 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 766
Views: 337076

Re: Thanks for sharing your experiences . . .

We saw Dr Feelgood last Friday (was it really only Friday ?) and he was able to tell us that Peter had 'one or two spots' on his liver. Chemotherapy might buy him a little more time, but at present he wasn't fit enough to take it. So he suggested that we see the dietitian - not sure if he meant the ...

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